Re: Come out of hiding from Naa Koshie to Marla & Jacki

[Guest guest]

You know I'm not sure, I have many Sarc lesions, and for me they rarely bleed, they swell up and get sore, but even if I pick at them they don't bleed, they burn if I do to much with them. I would get it removed if it bothers you.

and don't be afraid to start the Plaquenil, I have no side effects. Good luck, hope all goes well. Marla

Thanx for your input on the Plaquenil. I have a confession to make and I feel kinda ridiculous admitting it. I have had the Plaquenil prescription filled for a few days and have been afraid and too stubborn to start it. I know, that sounds stupid, but the thought of having to monitor another sarcoidosis component makes me sad and pisses me off and scares me at the same time. While writing this, I'm getting over myself though, and will begin the med in the morning.

Another question. I have a wart in my nose (ewwwwwww). Blocks my breathing a bit and bleeds sometimes. The EN & T doctor says its not cancerous but wants to have it removed in the new year. Since warts are caused by viruses and some theories say so is sarc to a certain extent, is there a known correlation between the

two? Been doing some research, but thought I'd ask some folks who are in the fight with me.Much Love, Naa Koshie

To: Neurosarcoidosis Sent: Sunday, December 14, 2008 8:30:56 PM

Subject: Re: Come out of hiding from Naa Koshie

Good to hear from you, I have been on Plaquenil for over 5 years now, it really helped my breathing and my skin in the beginning, my lungs are still good, but the skin not so.

I have to see the eye doctor every year, I guess Plaquenil can mess with the eyes, but my eye doctor told me that in 30 years he's only had one patient have to quit the Plaquenil. I take 200mgs in the morning and at bedtime. I hope you have as much success with it as I do.

Merry Christmas, Marla

On Mon, Dec 15, 2008 at 2:24 AM, Naa Koshie O. Mills <koshie127 (AT) yahoo (DOT) com> wrote:

Hope everyone is having a wonderful holiday. Me and the children are getting ready for Christmas. I'm working like a dog so that I can get my own place separate from my ex. Thankfully we are better at being friends than romantic partners, but I am so ready to have my own. Hopefully, it will be in February.

Been trying to get the doctor's at s Hopkins to wean me off the pred but they would not for various reasons. So, I weaned myself down to a lower dose in between appointments to see how my body would react. I know this isn't recommended, but... When I saw the doctor last Wednesday, I told him about the lower dosage and he decided to continue to wean me off and added Plaquenil. Any guidance anyone has on the use of Plaquenil would be most helpful.

Also, after having a breathing

test (result " normal " but decreased oxygen diffusion?), doctor recommended an echocardiogram. I scheduled it for Monday. I'm nervous, but would rather know where I stand healthwise. This is a blow to my confidence right now. Have been able to exercise, still beautifully overweight, but loving how my body is responding.

Anyway, I hope everyone has a wonderful Holiday Season. Merry Christmas, Happy Chanukah, Happy Kwanzaa, and Peace and Blessings and Better Health in the coming year.Much Love,Naa Koshie O. Mills

" How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant of the weak and the strong. Because someday in life you will have been all of these. "

~ Washington Carver

-- Marla BramerIndependent Beauty Consultant Kay mbramer (AT) marykay (DOT) com

www.marykay. com/mbramer

May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26)

-- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer

May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26)