Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 I haven't posted in months. This is because I am not sure if I belong to this group. I have many of the symptoms of NS. One neurologist I saw in 2006 decided even though they couldn't biopsy, he thought it likely. My current neurologist says my disease is autoimmune caused. My immune system is attacking the myelin sheath of 7 cranial nerves. What I have they have never seen before, but it is responding to Remicade. I am on several drugs, all the same as many of you are on - Remicade, Imuran, Prednisone. I have been sick for 9 years. So I've decided to let you all decide. I have no support group since I have a weird diagnosis, not a recognizable condition. NS is the most similar condition to what I have. Let me know what you think. Quote Link to comment Share on other sites More sharing options...
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