Guest guest Posted October 5, 2001 Report Share Posted October 5, 2001 At 6:26 PM +0000 10/5/01, unreel2me@... wrote: >Hi Everyone, > >My name is Amy and I have been researching WLS for about 2 years. I >have just recently discovered the DS procedure and I am very curious >about why people who have had RNY are so against it. Are they >jealous because it was not available to them? Could be. Then, their physicians warn them about the " dangers " of malabsorption, etc., ans, of course, since physicians are demi-gods, they buy into it. >It sounds like the >superior method of WLS and I can't wait until more surgeons learn to >do it. >I am currently trying to get an approval to go to California for the Why California? Where do you live? >surgery but every surgeon I have come across is requiring a down >payment of at least $12K! From what I read on this list, Rabkin might charge $12K, but Keshishian charges a lot less ($2000 or $4500?). Nick, what say you as one of Dr. K's latest patients? >Yikes! Anyone out there have very recent >experience with Blue Cross/Blue Shield covering a California surgeon? What's this California obsession? >I am extremely anxious to get on with this surgery, I am afraid I may >have to resort to the " old fashioned " RNY after all. Think long and hard about that. This isn't like a choice between vanilla and strawberry ice cream. It's more like a choice between riding buses or taking cabs (if not limousines). And it is a life-long choice. --Steve -- Steve Goldstein, age 61 Lap BPD/DS on May 2, 2001 Dr. Elariny, INOVA Fairfax Hospital, Virginia Starting (05/02/01) BMI = 51 BMI on 09/27 = 41 (-66 lb.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Hi ette, What province are you in, I'm in Orangeville, Ontario. , mom of 3 1/2 Autism Spectrum Disorder > I'm new to the group. We suspect that our three year old son is > somewhere on the autism spectrum but we are still awaiting a diagnosis. > We live in Canada and there is a huge wait in the health care system. I > just found out that our health plan will pay for most of a private > diagnosis so we are going that route. In the meantime, I am in the > process of putting on a GFCF diet. He has been on the diet for > about 2 weeks but we have had some slip ups as a result of this all > being so new. Interestingly enough I am recognizing some of the > regressions I have been reading about on this message board - chewing > his sleeves, night waking, an unbelievable tantrum at the doctor's > office today. I would be interested in hearing from other people in > Canada about Canadian GFCF products, other alternative therapies I'm > hearing about hear, and if it is possible to find a doctor that will > support me. I told my GP about the diet today and gave me a look that > told me she thought it was pitiful that I was resorting to " alternative > therapies " that would not work. This site has been a wealth of info. > Thanks to everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2004 Report Share Posted November 26, 2004 Hi, . How wonderful to have another NZ member! And you already have plans to go to the convention. That is terrific. The convention will be one of the best experiences you will ever have. It is like being with one huge family, even though you will not have met most of the people there. It is the one time that I feel I can relax and let my son be part of a group where he does not stand out, but really fits in. Of course, he is 16 now and will be 17 by the time of the convention (YIKES!!!), but he loves it as much as I do and is comforted by the large number of kids who have g- tubes as he does. No one stares, no one questions that he is really the age that he is (most think he is 12 at best) and a whole lot of people like to see him as a glimpse into the future for their own children. He is happy to oblige. Hint: If you really want to make friends with s, bring her some Tim Tams. After being taught by Forsyth, I showed her the Tim Tam Implosion. She is as hooked as I am. (Fortunately my Aussie friend ne brought me a supply of them last summer and they are stored in my freezer to last me a long while.) Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Hi , Welcome to the group, you've found a great bunch of people here. We do have an adult in our group who's from Scotland, she has RSS. My daughter Olivia has just turned 5 and has RSS. This is a very resourceful group of people and we're all willing to answer any questions that you may have. What was your son's birth weight? and his weight now? Leah, mom to 9 and Olivia 5, 19lbs, 34 " , RSS, OI, lots of meds > > Hi, my name is . I'm from Scotland. My son, Blair, is 14 months > old and was diagnosed with RSS 2 months ago. I would love to chat to > other parents about his condition. Are there any ish families in > the group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Hi , Where about in Scotland are you? I'm ish - but I won't be much use to you as I now live in New Zealand (married to a kiwi!!) - however, my parents and wider family are all in Fife and we do get home for a visit every couple of years. On our last trip home we consulted with the endo at the " Sick Kids " in Edinburgh - he was really nice and we really just made the contact on the off chance that we decide to move back to Scotland at some point in the future. There was a family on this list serve from Inverness - but I haven't heard from them for about 18mths. When we went to the sick kids in Edinburgh the endo thought he had about 20 RSS patients at that time. How is Blair doing? Do you have good care for him where you are? Best Wishes > > Hi, my name is . I'm from Scotland. My son, Blair, is 14 months > old and was diagnosed with RSS 2 months ago. I would love to chat to > other parents about his condition. Are there any ish families in > the group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Hi Leah and Tonya, Thank you both for replying, you all sound so friendly. It's great to have so many people to share things with. Blair was born at 37 weeks and weighed 3lbs13oz. At 14 months now he probably weighs about 17 lbs and is about 62cm. We feel very lucky because he doesn't have alot of the symptoms that so many of the kids have. He has small stature, low set ears and a slight blue tinge to the white of his eyes but that seems to be it. He is a good eater, great sleeper and the best natured boy i've ever known. He has been walking since the age of 1 and can say a few words. He is incredibly handsome with a great sense of humour. I would love to hear from you all. Best Wishes from (mum to Greg age6 nonRSS and Blair 14 months RSS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Hi karen my name is kim and i'm an rss adult age 26 and live in scotland. In Oct 2003 i attended a child growth foundation conference in england and net a family from glasgow, have you joined the CGF?,as they could maybe put you in contact with any rss families in scotland, i'm on aol ( mightyatom2@...) if you want to email me or instant message me privately anytime.Look forward to hearing from you soon Hi, my name is . I'm from Scotland. My son, Blair, is 14 months old and was diagnosed with RSS 2 months ago. I would love to chat to other parents about his condition. Are there any ish families in the group? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 - Welcome to the group. I have a daughter - 15 1/2 months - she was born full term at 4# 10oz, 18 1/2 " . She has been diagnosed SGA with ?RSS - we get different oppinions from different Dr.s. walked at 13 months, says about 6 words - she is very bright and social. Now at 15 months she weighs 15lb 15oz and is 27 " long. She has been my easiest baby yet - good sleeper - always happy. You have found a great group here. Jane - mom to 2 boys (wild ones) and , SGA ?RSS and holding her own with 2 big brothers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2006 Report Share Posted June 27, 2006 Hello Group My name is , I recently had the surgery on My 31st 2006. At the time i weighed at 347 and stood at 5'9. After my first week i was 327, now im at 333. I called my doc nurse she said it was normal to gain weight if im excersing and lifting weights, and that muscle mass weighs more, which i knew. but im a lil concerned cuz i can drink alot of water in a sitting and eat a can of soup enterily as well, im hoping i havent stretched out my pouch. Has anyone else experienced this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Puerto--First of all you posted when lots of us are or were busy leaving town or preparing for the upcoming holiday. The day after you posted there were only 3 posts! The next day there were only 8 posts! The next day only 9! Secondly, in your original post (see below) you asked if anyone else had experienced this. Since no one replied to you --apparently they had not. So why get mad about that. Thirdly, what were you thinking? Eating a whole can of soup when the Binder clearly states you should only be having only 1/4 cup, 3 times per day. As far as the water it has been said time and again "sip, sip, sip." Have you stretched your pouch? I'm sure you have. You went through the pain of surgery so why not work your "tool" the way it was meant to be, instead of testing it to see how much you can get away with. In the end you only hurt yourself. Your anger and vile comments are misdirected. on 6/27/06>> Hello Group> > My name is , I recently had the surgery on My 31st > 2006. At the time i weighed at 347 and stood at 5'9. After my first > week i was 327, now im at 333. I called my doc nurse she said it was > normal to gain weight if im excersing and lifting weights, and that > muscle mass weighs more, which i knew. but im a lil concerned cuz i can > drink alot of water in a sitting and eat a can of soup enterily as > well, im hoping i havent stretched out my pouch. Has anyone else > experienced this?> > > Quote Link to comment Share on other sites More sharing options...
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