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In a message dated 10/29/2003 5:51:55 PM Eastern Standard Time,

kellirz@... writes:

What I want to know is if you think I should medicate him? The Beh

Ped said we could. At first I thought that it would be worse to

deal with drugs and the side effects than just the trauma of being

restrained. But now I'm having second thoughts. What do you think?

First of all what would you medicate him with? You cannot medicate

him with anything strong enough to take the pain out of a blood draw. You can

ask the Ped if they can give u some emla cream it is used to numb the skin and

put on 1/2 hour prior to a blood draw although It is my understanding you

cannot get it anymore. Some medications also affect what ever it is that they

are

drawing the blood for. And I actually have never medicated any of my patients

even kids that do freak out which is 99% of all 4 year old for blood draws.

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When you say " medicate " do you mean his regular meds or do you mean a special

med to calm him down?

Also, there is a cream they can put on his skin so he won't hurt when he gets

" stuck " - I think Jill mentions it sometimes.

Roxanna

In a message dated 10/29/2003 5:51:57 PM Eastern Standard Time,

kellirz@... writes:

What I want to know is if you think I should medicate him? The Beh

Ped said we could. At first I thought that it would be worse to

deal with drugs and the side effects than just the trauma of being

restrained. But now I'm having second thoughts. What do you think?

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> He is almost 4 1/2 is 4' and 78lbs.>>>>.

Wow I guess you have a carseat that goes up to 100 pounds since they

have to be in them until they are 80 pounds and 8 years old which

ever come last. So there fore he will be in on till he is 8 even

though he is 80 pounds becauce he is not yet 8.

Marj

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-- I wouldn't medicate. I mean most meds strong enough would

have to be given thru a shot wouldn't they??? And it might effect

the outcome of your testing, right?? I don't know.. You have to do

what you think is best but personally I wouldn't! Good luck!

Steph

> Hey everyone,

>

> I don't post often...usually I'm a week behind reading the posts,

at

> that point my opinions are old news. And in all honesty, I am so

> new to this, I'm not sure I can add much of value.

>

> I am in need of your experienced opinion. We finally got in to see

> the Behavioral Ped. She sent our son for bone-age films since he

is

> so large. He is almost 4 1/2 is 4' and 78lbs. She wants to rule

> out other things before she orders the blood work so we can get all

> the tests at one time. I am very glad of this since the last time

> we had blood drawn it took four people to hold him down and it took

> three different people and a total of four sticks to get the

blood.

> It was absolutely horrible and I am dreading it already. I plan on

> requesting their most experienced phlebotomist.

>

> What I want to know is if you think I should medicate him? The Beh

> Ped said we could. At first I thought that it would be worse to

> deal with drugs and the side effects than just the trauma of being

> restrained. But now I'm having second thoughts. What do you think?

>

> Kelli, mom to Xander(4) and Isa(10

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Thanks to everyone who responded to my question.

Xander isn't on any medication at this time. I'm pretty sure we

couldn't get him to swallow anything anyway. I read through your

answers and realized that it isn't the pain that is the problem it

is being restrained/touched. It is just another trial to get

through. I'm such a whimp when it comes to my babies. I will try

to be brave. :)

Kelli

> In a message dated 10/29/2003 5:51:55 PM Eastern Standard Time,

> kellirz@h... writes:

> What I want to know is if you think I should medicate him? The

Beh

> Ped said we could. At first I thought that it would be worse to

> deal with drugs and the side effects than just the trauma of being

> restrained. But now I'm having second thoughts. What do you

think?

> First of all what would you medicate him with? You cannot

medicate

> him with anything strong enough to take the pain out of a blood

draw. You can

> ask the Ped if they can give u some emla cream it is used to numb

the skin and

> put on 1/2 hour prior to a blood draw although It is my

understanding you

> cannot get it anymore. Some medications also affect what ever it

is that they are

> drawing the blood for. And I actually have never medicated any of

my patients

> even kids that do freak out which is 99% of all 4 year old for

blood draws.

>

>

>

>

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Kelli,

Perhaps a social story describing the procedure would help. It could talk about

how important it is for him to be still. How it hurts more and takes longer if

he

moves. How it might hurt some, but he can focus on staying still. How it is

okay for him to tell you how much it is hurting. How other people may help

him stay still, but they will let go of him when it is all done.

Good luck!

in Massachusetts

> Thanks to everyone who responded to my question.

>

> Xander isn't on any medication at this time. I'm pretty sure we

> couldn't get him to swallow anything anyway. I read through your

> answers and realized that it isn't the pain that is the problem it

> is being restrained/touched. It is just another trial to get

> through. I'm such a whimp when it comes to my babies. I will try

> to be brave. :)

>

> Kelli

>

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I know some people who draw blood for a living are trained to use

some sort of " papoose " restraint for small kids who freak out.

Hospitals usually have at least one person who can do that. You may

want to look into it. I also know people who have used the numbing

cream, and have said the it has helped.

Meredith

> > In a message dated 10/29/2003 5:51:55 PM Eastern Standard Time,

> > kellirz@h... writes:

> > What I want to know is if you think I should medicate him? The

> Beh

> > Ped said we could. At first I thought that it would be worse to

> > deal with drugs and the side effects than just the trauma of

being

> > restrained. But now I'm having second thoughts. What do you

> think?

> > First of all what would you medicate him with? You cannot

> medicate

> > him with anything strong enough to take the pain out of a blood

> draw. You can

> > ask the Ped if they can give u some emla cream it is used to numb

> the skin and

> > put on 1/2 hour prior to a blood draw although It is my

> understanding you

> > cannot get it anymore. Some medications also affect what ever it

> is that they are

> > drawing the blood for. And I actually have never medicated any of

> my patients

> > even kids that do freak out which is 99% of all 4 year old for

> blood draws.

> >

> >

> >

> >

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Kelli,

There is such a thing as a cream that numbs the area and he won't be able to

feel it....see it yes, but feel the needle no. At some point they want us to do

the Fragile X test and I can only imagine having to take my 4 yr old's

blood.....getting a splinter is a whole family ordeal that lasts an hour with

lots of screaming. Its pretty awful.

Your ped should know about it. They gave it to me when they had to take a

freckle out and it works wonders.

Good luck!

Johanna

Kelli <kellirz@...> wrote:

Hey everyone,

I don't post often...usually I'm a week behind reading the posts, at

that point my opinions are old news. And in all honesty, I am so

new to this, I'm not sure I can add much of value.

I am in need of your experienced opinion. We finally got in to see

the Behavioral Ped. She sent our son for bone-age films since he is

so large. He is almost 4 1/2 is 4' and 78lbs. She wants to rule

out other things before she orders the blood work so we can get all

the tests at one time. I am very glad of this since the last time

we had blood drawn it took four people to hold him down and it took

three different people and a total of four sticks to get the blood.

It was absolutely horrible and I am dreading it already. I plan on

requesting their most experienced phlebotomist.

What I want to know is if you think I should medicate him? The Beh

Ped said we could. At first I thought that it would be worse to

deal with drugs and the side effects than just the trauma of being

restrained. But now I'm having second thoughts. What do you think?

Kelli, mom to Xander(4) and Isa(10

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  • 4 years later...

I was wondering how you all would feel about this. I realized as I

was walking out from our scanning appointment that while I knew what

was going on and what would happen next and what it's like to have a

child with plagio & what it's like to go through the band treatment

and all-- not every parent coming out of those evaluations would--

and I thought- I wish I could tell all those moms & dads about this

group--

so I was thinking-

would it be okay to print up a few business type cards (to be left at

the desk of the facility, with permission)that just said something

like- " do you have questions about plagiocephaly? want to talk to

other parents in the same situation? you can get your questions

answered and talk to other parents on the positional plagiocephaly

group online. new members welcome. " and have the url listed on

the card.

not sure if this is a violation of things or not so moderators please

let me know-- and if it'd be better for me to make up a local

group for plagio I could do that, too- and put cards out for that.

it's just a brainstorm. I know for me one of the first things I do

when I'm faced with a new unknown is to google & search the heck out

of it- which is how I found all of you- but I don't think most people

are like that.

anyhow. chime in, pipe in, give me your 2 cents. you all have been

so wonderful to me that I don't want to violate trust or friendships,

but if you think it's a good idea, I'd hate for others to miss out

when they could at the least find some solidarity out there.

okay. looking forward to feedback.

lynn

mom to:

dylan, age 3yr, docband grad

daphne & andrea, age 6mo, starband hopefuls

northern indiana

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