Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Wow! Thank you for taking the time to share your story and put some of at ease. Of course as parents we worry how our children will feel. Other children can be so mean. But knowing you are where you are and happy lets us know thank just because our children have a syndrome doesn't mean it has to change who they are. Thank you and best of luck in college. Re: First Time- > > Hi . > I am a 22 year old with RSS. Unfortunately I can't answer your growth hormone > question, because I was never on them. However, I hope that maybe I can ease > your fears a little about your son's future. I am a senior at the University > of Colorado, and my life is very much that of a typical college student. So > typical, in fact, that I would hate to bore you with the details because they > are so mundane. I am very happy and would like to think that I am relatively > accomplished . I can't really say that RSS has held me back from doing > anything that I've wanted to do - I was an athelete and an honor student in > high school and now in college, I am very involved in the student government on > campus and social justice work both on and off campus. I am applying for law > school right now and hope to one day practice public interest law (I'm most > interested in disability rights, women's issues, indigenous rights and > immigration issues). If I were asked to name some of the worst things that > have ever happened to me, RSS wouldn't even make the list. > > I still do have some very minor food issues - I am by far the pickiest eater I > know and there are days I have to make myself eat even when I am not hungry, > but all in all, those issues are pretty minor. > > All of the other RSS adults that I have had the pleasure of meeting or > corresponding with are also happy, well adjusted indviduals. All have careers > that they like, many are married and a few have children. Some of them are on > this list, and hopefully they will chime in and add their two cents. > > I don't know what the future will hold for your son specifically, but I can > tell you that it is possible to live a fully, happy, meaningful life when you > have RSS. > > Best Wishes, > Hillary > 22, RSS > 4'2 " > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Hi . I am a 22 year old with RSS. Unfortunately I can't answer your growth hormone question, because I was never on them. However, I hope that maybe I can ease your fears a little about your son's future. I am a senior at the University of Colorado, and my life is very much that of a typical college student. So typical, in fact, that I would hate to bore you with the details because they are so mundane. I am very happy and would like to think that I am relatively accomplished . I can't really say that RSS has held me back from doing anything that I've wanted to do - I was an athelete and an honor student in high school and now in college, I am very involved in the student government on campus and social justice work both on and off campus. I am applying for law school right now and hope to one day practice public interest law (I'm most interested in disability rights, women's issues, indigenous rights and immigration issues). If I were asked to name some of the worst things that have ever happened to me, RSS wouldn't even make the list. I still do have some very minor food issues - I am by far the pickiest eater I know and there are days I have to make myself eat even when I am not hungry, but all in all, those issues are pretty minor. All of the other RSS adults that I have had the pleasure of meeting or corresponding with are also happy, well adjusted indviduals. All have careers that they like, many are married and a few have children. Some of them are on this list, and hopefully they will chime in and add their two cents. I don't know what the future will hold for your son specifically, but I can tell you that it is possible to live a fully, happy, meaningful life when you have RSS. Best Wishes, Hillary 22, RSS 4'2 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2004 Report Share Posted November 24, 2004 My daughter Destiny is 5, doing third grade work in all but math which is 1st grade, will be testing soon for a brown belt in taekwondo and is generally very well adjusted. She has had a few moments with kids calling her a midget and adults thinking she is younger than she is but she makes friends easily and soon sets adults straight, Most of the RSS kids I have been hearing about on this list seem to have the same type of bright sparkling will-not-be-denied personalities. Granted, my child is on the very mild end of the spectrum, but generally the RSS child is a joy and an imp simultaneously. Have fun! Re: First Time- Hi . I am a 22 year old with RSS. Unfortunately I can't answer your growth hormone question, because I was never on them. However, I hope that maybe I can ease your fears a little about your son's future. I am a senior at the University of Colorado, and my life is very much that of a typical college student. So typical, in fact, that I would hate to bore you with the details because they are so mundane. I am very happy and would like to think that I am relatively accomplished . I can't really say that RSS has held me back from doing anything that I've wanted to do - I was an athelete and an honor student in high school and now in college, I am very involved in the student government on campus and social justice work both on and off campus. I am applying for law school right now and hope to one day practice public interest law (I'm most interested in disability rights, women's issues, indigenous rights and immigration issues). If I were asked to name some of the worst things that have ever happened to me, RSS wouldn't even make the list. I still do have some very minor food issues - I am by far the pickiest eater I know and there are days I have to make myself eat even when I am not hungry, but all in all, those issues are pretty minor. All of the other RSS adults that I have had the pleasure of meeting or corresponding with are also happy, well adjusted indviduals. All have careers that they like, many are married and a few have children. Some of them are on this list, and hopefully they will chime in and add their two cents. I don't know what the future will hold for your son specifically, but I can tell you that it is possible to live a fully, happy, meaningful life when you have RSS. Best Wishes, Hillary 22, RSS 4'2 " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 what do you mean your child is one very end of the spectrum? Re: First Time- > > > Hi . > I am a 22 year old with RSS. Unfortunately I can't answer your growth hormone > question, because I was never on them. However, I hope that maybe I can ease > your fears a little about your son's future. I am a senior at the University > of Colorado, and my life is very much that of a typical college student. So > typical, in fact, that I would hate to bore you with the details because they > are so mundane. I am very happy and would like to think that I am relatively > accomplished . I can't really say that RSS has held me back from doing > anything that I've wanted to do - I was an athelete and an honor student in > high school and now in college, I am very involved in the student government on > campus and social justice work both on and off campus. I am applying for law > school right now and hope to one day practice public interest law (I'm most > interested in disability rights, women's issues, indigenous rights and > immigration issues). If I were asked to name some of the worst things that > have ever happened to me, RSS wouldn't even make the list. > > I still do have some very minor food issues - I am by far the pickiest eater I > know and there are days I have to make myself eat even when I am not hungry, > but all in all, those issues are pretty minor. > > All of the other RSS adults that I have had the pleasure of meeting or > corresponding with are also happy, well adjusted indviduals. All have careers > that they like, many are married and a few have children. Some of them are on > this list, and hopefully they will chime in and add their two cents. > > I don't know what the future will hold for your son specifically, but I can > tell you that it is possible to live a fully, happy, meaningful life when you > have RSS. > > Best Wishes, > Hillary > 22, RSS > 4'2 " > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2004 Report Share Posted November 25, 2004 I mean at 5years 10mo she weighs 37 pounds is 42 inches tall and eats, no tubes no periactin no GH. So her RSS is very mild compared to most kids who's parents are posting regularly here. I don't post much because we have very few RSS related issues but I stay involved partly to balance the picture. I think the more a parent has to cope with RSS related issues the more likely they are to post here. Sometimes it may be useful to new members to know that there are also children like mine who have a more mild situation. Re: First Time- > > > Hi . > I am a 22 year old with RSS. Unfortunately I can't answer your growth hormone > question, because I was never on them. However, I hope that maybe I can ease > your fears a little about your son's future. I am a senior at the University > of Colorado, and my life is very much that of a typical college student. So > typical, in fact, that I would hate to bore you with the details because they > are so mundane. I am very happy and would like to think that I am relatively > accomplished . I can't really say that RSS has held me back from doing > anything that I've wanted to do - I was an athelete and an honor student in > high school and now in college, I am very involved in the student government on > campus and social justice work both on and off campus. I am applying for law > school right now and hope to one day practice public interest law (I'm most > interested in disability rights, women's issues, indigenous rights and > immigration issues). If I were asked to name some of the worst things that > have ever happened to me, RSS wouldn't even make the list. > > I still do have some very minor food issues - I am by far the pickiest eater I > know and there are days I have to make myself eat even when I am not hungry, > but all in all, those issues are pretty minor. > > All of the other RSS adults that I have had the pleasure of meeting or > corresponding with are also happy, well adjusted indviduals. All have careers > that they like, many are married and a few have children. Some of them are on > this list, and hopefully they will chime in and add their two cents. > > I don't know what the future will hold for your son specifically, but I can > tell you that it is possible to live a fully, happy, meaningful life when you > have RSS. > > Best Wishes, > Hillary > 22, RSS > 4'2 " > > Quote Link to comment Share on other sites More sharing options...
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