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Re: First Time- & Debbie

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Welcome ,

You have found the right place. This list serve and these families

have been a true life saver for me. No matter what your question or

if you just need to vent there is always someone here that

understands and is willing to help you through it.

I remember how scared I was for the future of my son. He has a twin

sister and she does not have RSS. With him being a boy I know how

hard it will be for him to be shorter then her. I thought about it

every day. I was so scared for him. Then I met a group of great

adults with RSS. If there is any way that you can attend The MAGIC

Convention you really should. Each year they have a panal of adults

with RSS that talk and answer questions. They changed my whole

perspective. The first year I went there was a man there and his mom

was the same height as me and he was taller then us. I was so

happy. It gave me the hope that I needed. Now I do my best to make

sure Coby gets the nutritian and gh that he needs, but I don't worry

about how tall he will be. I know that he too will grow to be a

happy, healthy, successful adult. And your son will too.

Take care,

le, mom to:

Shye almost 10, Brock 8 and Coby (RSS) & Carlee 2

new stats: 20.2 lbs, 31 3/4 in, Periactin and Humatrope GH

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