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le- a question about Dr. Riggs

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le, are you talking about Dr. Riggs at St. vincents Hospital, if so,

what did you think of him, and do you think he is very educated about RSS? I

saw him, and just didn't know. If this is the right Dr., do you have trouble

with Dr. Escobar's office returning calls? If you are talking about different

Doctors, disregard this message. Thanks,

le mom to Datreon, RSS, 14months, 15lb 9oz, periactin, tubes,

assymetry

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le, I felt the same way about Dr. Riggs, he told me that he thought

that RSS was common, and it kind of threw me off. I don't know, let me know if

Dr. Escobar gives another endo that would be good. He is great, I really like

him, but not his office. I am having to fight them about everything it seems

like. Where are you from? Thanks and I'll talk to you soon.

le mom to Datreon

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Hi le,

Those are the exact doc's I was talking about. I am still on the

fence about Dr. Riggs. He hasn't done anything terribly wrong, but

he hasn't done anything to impress me either. I know there is

another family on here that had a horrible experience with him, but

there is also a family here that seen him for the first time last

week and they were very happy with him. I am going to talk to Dr.

Escobar when we see him in a couple of weeks and see what he thinks,

but I do believe that I will be finding a new endo. I feel like he

gives me unsure answers. Either he doesn't explain himself well in

laymen's terms or he just doesn't know the answers. I don't feel

like he is very confident. I'm also not happy with the measurements

they take in his office and he doesn't seem to be concerned about the

inaccuracies. I'm not sure how many RSS patients he has had in the

past and I'm not sure how much he understands RSS. I'm just not real

sure in general about him and that is my biggest concern. I usually

know after the first appointment if I'm going to be happy with a doc

or not.

As for Dr. Escobar, I LOVE HIM!!! He is the best doc I've ever had

the pleasure of dealing with in any way. He has truly been the

saving grace in Coby's life. I have not had to fight him on any of

Dr. H's protocols because he follows most very closely. Like Dr. H,

I feel that Dr. Escobar deals with the " whole " child as well. I can

ask him about any part of Coby and he can answer or lead me in the

right direction to get the correct answer. As for his office, I

don't deal with them much. I've never been very impressed with his

nurses, so I don't ever talk to them. If I have a question for him,

I e-mail him and he answers me very quickly. When I do have to call

the office I always ask for Meadow. She was our genetic counselor.

I don't know that it is her job to deal with me, but we have always

had a bond so I use that to my advantage. Hint: If you e-mail Dr.

Escobar you can only ask him one or two questions or he doesn't

remember to answer each question….hehehe. Meadow says he does it

with her in e-mail as well.

Let me know if I can help with anything else,

le, mom to:

Shye almost 10, Brock 8, and Coby (RSS) & Carlee Terrible 2's!!!

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