Re: Coby's new stats from GH & questions- S.

[Guest guest]

Hey ,

Thanks for explaining. I followed you completely. I used the wrong

word. I was trying to ask about " growth hormone deficiency " . After

hearing and saying " insulin resistant " I got my wording mixed up.

I understand that some of our kids are " growth hormone insufficient "

and why, but I still don't understand " deficient " .

Coby's stim test came back at like a 6 I believe, a little low. So

does that mean that he is " growth hormone deficient " ? Or is the stim

test unreliable? If so how do you get an answer to that question?

UGHHHHH...this really confuses me..hehehe

I understand everything you said about the measurements as well.

It's not even the endo that measures, but some nurse that probably

has NO experience with special children. She kept referring to Coby

as a " 2 " yr old. When they turn " 2 " we do this and that. Well Coby

isn't the average 2 yr old and I don't think she understood that.

She wanted to weigh him fully dressed and with his shoes on. DUH!

My gene is going to talk with the endo about the problems. I will

see what they have to say. The only measurements Coby has ever had

that I felt like were accurate were at the convention. I never

worried about it, but now that he's on the GH is just seems like

common sense to me that they would want exact measurements to me.

Why is that not common sense to them???

Ok, thanks for the answers and listening to me ramble.

Take care, le

Shye almost 10, Brock 8, and Coby (rss) & Carlee terrible 2's

[Guest guest]

le - Totally understand -- my head has been running in

multiple different directions lately, and I keep finding myself

mixing things up, too.

I don't have a copy of 's stim test results here, so I can't

remember what a 6 was. Someone on this listserve probably has

theirs -- it will have a column that shows if it was within the

normal range, and where in the range of normal it was (for example,

if " normal " is 6-18, then 6 would be low normal). If normal is 8-

16, for example, then on your lab results it would show your

child's " 6 " as being OUT OF NORMAL RANGE. Does that make sense?

Let's see if someone else responds knowing what the normal range for

a stim test is. Jenn

>

> Hey ,

>

> Thanks for explaining. I followed you completely. I used the

wrong

> word. I was trying to ask about " growth hormone deficiency " .

After

> hearing and saying " insulin resistant " I got my wording mixed up.

>

> I understand that some of our kids are " growth hormone

insufficient "

> and why, but I still don't understand " deficient " .

>

> Coby's stim test came back at like a 6 I believe, a little low.

So

> does that mean that he is " growth hormone deficient " ? Or is the

stim

> test unreliable? If so how do you get an answer to that

question?

> UGHHHHH...this really confuses me..hehehe

>

> I understand everything you said about the measurements as well.

> It's not even the endo that measures, but some nurse that probably

> has NO experience with special children. She kept referring to

Coby

> as a " 2 " yr old. When they turn " 2 " we do this and that. Well

Coby

> isn't the average 2 yr old and I don't think she understood that.

> She wanted to weigh him fully dressed and with his shoes on.

DUH!

> My gene is going to talk with the endo about the problems. I will

> see what they have to say. The only measurements Coby has ever had

> that I felt like were accurate were at the convention. I never

> worried about it, but now that he's on the GH is just seems like

> common sense to me that they would want exact measurements to me.

> Why is that not common sense to them???

>

> Ok, thanks for the answers and listening to me ramble.

>

> Take care, le

> Shye almost 10, Brock 8, and Coby (rss) & Carlee terrible 2's