Re: Latest Update on Dalia-eating question---> Jay

[Guest guest]

Hi Jay,

You're right, this one is a tough call and I guess we all have to

decide which is best for our child. I don't think there is a right

or wrong to this, personal preferance and situation are what you

have to go on.

I made the choice to sacrafice Olivia's baby teeth in order for

her to have the bottle longer. With her having OI (osteogenesis

imperfecta aka brittle bone disease) she also had Dentinogenesis

Imperfecta (DI). Dentin is the substance under the enamel forming

the rest of the tooth and most of the root structure, it's similar

to bone. In other words her teeth were a mess too and she now has a

mouthfull of silver crowns. I still think I would have kept her on

the bottle past 3 even with the teeth problems if we'd known about

RSS earlier.

Great suggestion with the spill proof cups (spill LESS in our

house!! lol). Olivia liked them for water and juice and we tried to

get her to take one to bed but the whole latching on and suction cup

effect was wrong for her. Maybe for others it would work but there

is still the same problem of the formula sitting and pooling in the

mouth over night.

It's great discussing all of this here... I had so many friends

and family members very mad and perplexed because I had allowed the

bottle for so long. It's so nice that everyone here understands

even if we take different paths!!

Leah mom to 9 years and Olivia 5 years, 19lbs, 33 " , RSS, OI,

lots of meds

> Yeah unfortuantely weight is an issue for all children with RSS,

but how

> does one handle the tooth decay and any future problems with adult

teeth

> when feeding nightime bottle???? My sister did not have an RSS

child but

> kept her little one on a bottle until he was three and all his

baby teeth

> were silver crowned from nightime formulas and milk. He is now 10

and has

> had problems with his teeth coming in already. Perhaps offering

daytime

> bottles at home (limiting at home just to put a restroction if you

are

> concerned), and then giving a bottle of water at bedtime after the

teeth are

> brushed so the sugar from another form of liquid substance doesn't

harm the

> teeth? Another question....Why is giving a bottle so important?

How come a

> child can't feel comfort and receive nourishment from the new

spill proof

> cups (well not exactly spill proof with the straws from playtex?

>

> Again, I don't know personally; hopefully offering kindness and

support.

>

> Goodluck, any decsion willl be the best you can make for your

child.

>

> Jay

>

>

> Mom to

>

> 5 1/2

> Mathieu 23 months 20 pounds 30 " unknown diagnosis

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