Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 Mamie, Many of us who have been on the list for years kid around to break the tension of losing so many friends over the years. All of us need to find a way to deal with losing friends as we are in a war with MSA, and as in any war - we lose some. I am to the point where I have very few of my original friends left from March, 1999 when I came on the list. Many of them are on Charmayne's wall of rememberance http://freepages.health.rootsweb.com/~charmayn/memorial.html Charmayne's husband died only days ago, but she was a great help in setting up the resouces we now have available to us. The first group had few links to go by and always struggled to find info. At that time Jeff Millman had the only real webpage devoted to SDS and he has since moved on to raising his child who was born about the time I came on the list. Of the list members we had in March of 1999 I can only think of a few still on the list - thankfully Barb Selleck and Barb have remained on the list as well as Pam and others are still living but can no longer write. Rose - our resident speech therapist also lost her loved one, but is now busy with her twins, so there is life after MSA. I do call Anne Pledger a couple of times a month and it is always a joy, as she is always so up in spite of all her problems. She has been an inspiration to all of us, even after dealing with severe autonomic failure for over 23 years. She now has a pacemaker to help her stomach move food through it and is dealing with a disc problem so she can not write emails as she is bedbound. I did get an email after I sent flowers from the list and she said to thank all of you for your thoughts. I did get to meet Anne and her family when I visited Australia in May of this year. I stayed with Anne and Tony and even went up to her daughter 's home in the mountains. I also saw and Ford ( died in August) and Bill Pilgrim while I was downunder. I stopped for half a day in Los Angeles, on my way back (Barb was kind enough to pick me up and drive me out) and met a bunch of our Californians at Fred and Vera's home. BUT I kept falling asleep during our meeting I had been in airplanes or airports for the previous 24 hours as I flew from Gold Coast (AUS) to Sydney, then from Sydney to Los Angeles without sleeping - so I was wiped out. Vera will NEVER let me forget that There are others who we do hear from once in a while such as Harriet in Hawaii and Becky (who lost her husband/caregiver to a drunk driver). But they are unable to type anymore. Others like have had to go on with their life for various reasons - kids, selling homes, etc. Relles and Ramm still put jokes on the list, but " The bird lady " is busy running her farm now and no longer puts up jokes. So feel free to join in with our joking around. The friends we make here are true friends and in spite of our little differences, we are friends. Even though we have never met in person, we have touched each other's lives. I miss Barb Selleck's little attachments which died because some idiots insist on sending viruses. To our Aussie friends - I hope all of you are wearing your magnetic boots so you don't fall off Petrol (gasoline) was a trip there also it seemed cheap at 75-80 cents (a litre) but it still took so many (often 40) to fill the tank And if you buy a burger it is often made of chook rather than beef But my sense of direction was always loused up downunder - in the USA the sun is always to the south, downunder it is always to the north. No wonder they drive on the wrong side of the road I just hope politicians will think long and hard before they vote on things that affect our lives so heavily. My grandson who was eight when Charlotte died, said to me the other day " Grandpop, I have trouble at times remembering what grandmom looked like. " He sees pictures of Charlotte like the 1958 photo at http://freepages.health.rootsweb.com/~charmayn/images/BillCharlotteWerre.jpg and the Christmas 2000 photo at http://freepages.health.rootsweb.com/~charmayn/images/BillCharlotteWerre00.jpg Thanks Charmayne! Take care, Bill Werre ======================================= MBur234@... wrote: >Hi Vera, > >Thanks so much for the news from Belinda--She really has been busy! I can >understand why I haven't seen anything from her for a while. By the way, I >always enjoy your messages, too, especially the little jibs between you and >Bill. Sure is good to be able to have some fun, isn't it?! > >Blessings to you and Fred. > >Mamie > ><< >Message: 10 > Date: Sun, 17 Nov 2002 17:45:36 EST > From: FVJAMES@... >Subject: this is what Belind's up to>Mamie > >Hi Mamie: >You posted to Amy and said >>I especially noted Belinda's name because I have >not seen anything >from her for a while. Do you hear from her? I hope she is ok--and you, too.<< > >I just got this note from Belinda, as you can see she's been busy. > >Take Care Vera >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2002 Report Share Posted November 20, 2002 I have just finished reading your post about joking on the list, you can't know how much I appreciate the laughter I have enjoyed, tears rolling down my face from laughing so much. Reg and I are still fairly early on the road of this disease, and quite frankly I think we are both scared witless about what lies ahead, and already we know how important it is to maintain our sense of humour. If we can't laugh we will never make it through the coming years. I took a look at the photo's of you and Charlotte, she was very beautiful, I am sure you miss her very much. Regards, Robyn Norman, from the Central Coast, NSW, downunder, where it has been raining lightly but steadily since late last night. In shydrager@y..., Werre <b.werre@v...> wrote: > Mamie, > > Many of us who have been on the list for years kid around to break the > tension of losing so many friends over the years. All of us need to > find a way to deal with losing friends as we are in a war with MSA, and > as in any war - we lose some. I am to the point where I have very few > of my original friends left from March, 1999 when I came on the list. > Many of them are on Charmayne's wall of rememberance > > http://freepages.health.rootsweb.com/~charmayn/memorial.html > > Charmayne's husband died only days ago, but she was a great help in > setting up the resouces we now have available to us. The first group > had few links to go by and always struggled to find info. At that time > Jeff Millman had the only real webpage devoted to SDS and he has since > moved on to raising his child who was born about the time I came on the > list. Of the list members we had in March of 1999 I can only think of a > few still on the list - thankfully Barb Selleck and Barb have > remained on the list as well as Pam and others are still living but can > no longer write. Rose - our resident speech therapist also lost her > loved one, but is now busy with her twins, so there is life after MSA. > > I do call Anne Pledger a couple of times a month and it is always a joy, > as she is always so up in spite of all her problems. She has been an > inspiration to all of us, even after dealing with severe autonomic > failure for over 23 years. She now has a pacemaker to help her stomach > move food through it and is dealing with a disc problem so she can not > write emails as she is bedbound. I did get an email after I sent > flowers from the list and she said to thank all of you for your > thoughts. I did get to meet Anne and her family when I visited > Australia in May of this year. I stayed with Anne and Tony and even > went up to her daughter 's home in the mountains. I also saw > and Ford ( died in August) and Bill Pilgrim while > I was downunder. I stopped for half a day in Los Angeles, on my way > back (Barb was kind enough to pick me up and drive me out) and met > a bunch of our Californians at Fred and Vera's home. BUT I kept falling > asleep during our meeting I had been in airplanes or airports for the > previous 24 hours as I flew from Gold Coast (AUS) to Sydney, then from > Sydney to Los Angeles without sleeping - so I was wiped out. Vera > will NEVER let me forget that > > There are others who we do hear from once in a while such as Harriet in > Hawaii and Becky (who lost her husband/caregiver to a drunk > driver). But they are unable to type anymore. Others like > have had to go on with their life for various reasons - kids, selling > homes, etc. Relles and Ramm still put jokes on the list, > but " The bird lady " is busy running her farm now and no longer puts up > jokes. > > So feel free to join in with our joking around. The friends we make > here are true friends and in spite of our little differences, we are > friends. Even though we have never met in person, we have touched each > other's lives. I miss Barb Selleck's little attachments which died > because some idiots insist on sending viruses. > > To our Aussie friends - I hope all of you are wearing your magnetic > boots so you don't fall off Petrol (gasoline) was a trip there also > it seemed cheap at 75-80 cents (a litre) but it still took so many > (often 40) to fill the tank And if you buy a burger it is often > made of chook rather than beef But my sense of direction was always > loused up downunder - in the USA the sun is always to the south, > downunder it is always to the north. No wonder they drive on the wrong > side of the road > > I just hope politicians will think long and hard before they vote on > things that affect our lives so heavily. My grandson who was eight when > Charlotte died, said to me the other day " Grandpop, I have trouble at > times remembering what grandmom looked like. " He sees pictures of > Charlotte like the 1958 photo at > > http://freepages.health.rootsweb.com/~charmayn/images/BillCharlotteWer re.jpg > > and the Christmas 2000 photo at > > http://freepages.health.rootsweb.com/~charmayn/images/BillCharlotteWer re00.jpg > > Thanks Charmayne! > > Take care, Bill Werre > > ======================================= > MBur234@a... wrote: > > >Hi Vera, > > > >Thanks so much for the news from Belinda--She really has been busy! I can > >understand why I haven't seen anything from her for a while. By the way, I > >always enjoy your messages, too, especially the little jibs between you and > >Bill. Sure is good to be able to have some fun, isn't it?! > > > >Blessings to you and Fred. > > > >Mamie > > > ><< > >Message: 10 > > Date: Sun, 17 Nov 2002 17:45:36 EST > > From: FVJAMES@a... > >Subject: this is what Belind's up to>Mamie > > > >Hi Mamie: > >You posted to Amy and said >>I especially noted Belinda's name because I have > >not seen anything > >from her for a while. Do you hear from her? I hope she is ok--and you, too.<< > > > >I just got this note from Belinda, as you can see she's been busy. > > > >Take Care Vera >> > > Quote Link to comment Share on other sites More sharing options...
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