Hi There

[Guest guest]

Jo:

Welcome to the list and sorry you have to be there. I normally make the DC

Group meeting but had to miss last Sunday's. Tell me some more about what

yopu learned Sunday. In our case Terry, my wife, has MSA/SND and FTD.

Message: 5

Date: Thu, 21 Nov 2002 12:16:01 -0000

Subject: Hi There

Greetings to all! I am a newbie to your group and after reading

Bill's sentimental posting about losing old friends, I had to say

HELLO! I met some wonderful people on Sunday at the support group

meeting in land. The information I gained from this group in just

a couple hours is amazing. I'm not very good at chatting, but I

promise to contribute my opinion now and then……

In August, the good doctors at town University figured out I

didn't have a stroke but instead Parkinson Plus MSA. Sinemet didn't

change anything for me and the doctors there weren't PD/MSA

specialists. I've been floundering around with this diagnosis for a

while, no doctor, and no treatment. Just bummed out. So, I searched

the Internet and read everything printed about PD/MSA. I found you

guys! Today I am going to see a Neurologist/Movement Disorder/MSA

Specialist: ne Goldstein in Columbia, MD.

I'm not too bad off for being 47. But, I can't believe how slow I

move, how tired I get, and my speech is really slurred and weak

sounding. So maybe a new doc and new meds will be an improvement.

Thank you all for being around.

Take good care,

Jo

Greenbelt MD

Sennewald Charlottesville, Virginia

[Guest guest]

Welcome Jo and know we are all in this together and you are not alone. This

is a wonderful " MSA family " who offer love, support and information from

being there.

So many doctors don't have a clue what it's like to live with this disease

even if they have the information on it.

Best to you,

Sandy B.