Re: MSA/PATIENTS WANT TO DO MORE THAN THEY CAN. Maybe from habit

[Guest guest]

I personally think part of the problem is that they have always been able to

do certain things and it is almost a habit to try again. In addition, I

think they do not want to give up their independence.

I say this to you after being upset with Speedy many times when he would

fall because he tried to get up, or was determined to walk on his on too

long when he should have been in a wheel chair. He even drove his wheel

chair into a big ditch where it turned upside down on him. The day he went

to the hospital for the last time, earlier in the day, he was using his

extension picker upper (I don't know real name) to pick up tiny things on

the floor in an attempt to help with the work of keeping us going. Many

times he lay in his hospital bed (very rigid and heavy/w no ability to get

up on his own) and would wake up from a nap and think that he could walk to

the bathroom.

Speedy's mind was sharp as a tack, even at the last. We talked to him about

the dangers many times, even so, he wanted to try to see if maybe he could

do the task today, even if he could not yesterday.

I look back on it now and think that we should be proud of them for TRYING,

although at the time I was often frustrated.

Marilyn in TN

[Guest guest]

Yvonne, I agree with every word. Marilyn in TN

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