Re: Uh oh - drug companies again

[Guest guest]

Thanks for saying that, Jodi. We all make tough decisions every day

and we come to this forum to share information without being judged.

My husband and I spent many months researching GH and balancing

different information before we started our daughter, Abby, on GH.

The information coming out now on pharmatheutical companies is no

surprise. The concerns have been out there for years.

Our decision to start GH had nothing at all to do with the

pharmatheutcal companies, but their support and assistance in getting

started on it were invaluable. Sure, they had their own reasons for

doing it. How does that make the benefit to my family any less?

Sherri D. - Mom to 6 year old twins - Abby (RSS) and Sam (nonRSS)

>

> Let's tread carefullly on the subject, my fellow listserve

members.

> We have been down this road before and it has caused many hurt

> feelings and complications. I am not saying that we should not

> listen to what we have to say to each other, but we must also

> respect the decisions of each other and the routes that we decide

to

> take. We have been affected by other who-will-remain-unnamed

people

> and it has caused major rifts among us.

>

> Please bare in mind that this is a sharing community, with the

right

> to voice an opinion, but not judge what we decide to do for our own

> children. I agree that some of the meds are scary, but we all try

> to make informed decisions and do what we feel is right for what we

> believe in. This is a support group - not a lobby.

>

> Jodi Z

[Guest guest]

Jodi,

I joined this list several weeks ago to find a new endocrinologist

because I wasn't comfortable with our current one. During this

time

I have read many opinions and judgments, and yes even frequent

lobbying promoting their doctor. Perhaps I have used misjudgment,

and maybe this an issue that should be ignored. But is growth over

good health the best measurement of treatment?

In my decision making process, I searched the list and found that

there seems to be a distinctively different philosophy in the way

some of the doctors use drugs. In the case of one child I was able

to identify at least 31 drugs that he had taken over the years of

treatment which appears to have resulted in many complications.

This is indicative of one of the many problems when dealing with

drug company priorities; for the most part in their clinical testing

they do not review the interaction of drugs, especially a large

number. After watching PBS's segment last night on the drug

industry and the gross lack of over site by the FDA regarding the

issues I have brought to everyone's attention, it only solidifies

in

my mind as to the course of action I plan on taking.

I have gathered the information that I need for making my decision,

and I respectfully ask that the moderator to please remove me from

this list. Thanks and the best of luck to all in whatever treatment

mode pursued.

Jill

Let's tread carefullly on the subject, my fellow listserve members.

We have been down this road before and it has caused many hurt

feelings and complications. I am not saying that we should not

listen to what we have to say to each other, but we must also

respect the decisions of each other and the routes that we decide to

take. We have been affected by other who-will-remain-unnamed people

and it has caused major rifts among us.

Please bare in mind that this is a sharing community, with the right

to voice an opinion, but not judge what we decide to do for our own

children. I agree that some of the meds are scary, but we all try

to make informed decisions and do what we feel is right for what we

believe in. This is a support group - not a lobby.

Jodi Z

[Guest guest]

Jill,

I'm sorry you feel you have to leave the group. As I said, we all

share info and appreciate hearing new things. It's a shame that

when things got a little heated, you backed down. I would have

liked to have heard a bit more and learned from you as I hope you

would learn from us.

Jodi Z