MSA Patients/Shy-Drager Group

[Guest guest]

I have been a member of this group since approximately 1999 when my husband

was diagnosed with MSA. I was frantically searching for all the information

I could gather on this disease. This group has been a source of solace and

information. I was the caregiver for my husband until he passed away on

5/24/2002. He was 64 years old.

My husband also would forget that he couldn't walk and there were a few

times he had fallen when I went outdoors. One time he crawled back to his

chair and was sitting in it with a big knot on his forehead!

The last couple of months of his life, he was admitted to a Hospice home

where he received excellent care. He was immobile and barely able to feed

himself, yet his mind was very clear and his attitude was one of dignity and

grace. He never complained.

His disease progression followed the pattern that I have seen on many of the

groups' messages: orthostatic hypotension, failure of muscle coordination

and balance, slurred speech and writing difficulties, urinary problems,

blurred vision.

I still check the messages this group sends and I can relate to what the

caregivers and patients are going through. Take one day at a time and keep

each day precious with memories of your loved ones.

Donna