any parents of RSS-children in Holland, Belgium, Scandinavia, Germany?

[Guest guest]

Hi,

I am parent of a RSS-child three years old. In Europe we do not measure in

lbs, pounds or inches. So it is a bit difficult to compare. My youngest

daughter, Sterre (RSS) is about 90 cm tall and weighs almost 11 kg. The

story of Colton (link on the Magic-site) could me my story. The horrible

time at the end of pregnacy because of an infant not growing. The terrible

time after her birth: a far too small child and all the predictions of what

it could be.

At the age of one we started with GH-therapy. Now she does very well.

I would like to get in contact with parents in Europe. I have a feeling that

the discussions about the drug companies and the influence they have on

governmental decisions is of another nature in Europe. But maybe I'm wrong.

Up to now I have a great confidence in the drugs we get for Sterre.

Dorien (The Netherlands)

-----Oorspronkelijk bericht-----

Van: Briggs

Verzonden: dinsdag 21 december 2004 22:12

Aan: RSS-Support

Onderwerp: Re: turns 3!!

Happy Birthday !!!! I love the Spiderman Cake. Looks Yummy.

He is a cutie and I agree with the others, he doesn't have that baby

look anymore. Enjoy the day.

Love

B

(almost 5) RSS and Kelli 2 Non RSS

> Hi Everyone!!

>

> Today turns 3!! In honor of his special day, I posted some

new pics of his b-day party this weekend. I left the pic of him at 8

months of age, so those who don't know him, can see just how far he's

come!!

>

> Hey Jodi Z and Jenn, does it seem possible that he's already 3 years

old?? LOL I remember when I first joined this list serve trying to

find ways to help him, and you both were here ready and SO willing to

help!! A million thanks to you both!!

>

> Hugs to you all!!

> Pat (g-ma to , RSS, 3yrs old TODAY!!!, 23.9#, 32.2 " , G-Tube)

>

>

[Guest guest]

Hi Dorien,

Welcome to our group.

I hope we can answer your questions.

There are several people on the list from Europe. Nonjia Rosen

is a member of this list and she is either from The Netherlamds or

Belgium. She hasn't posted for a while but hopefully she will

respond. Her e-mail address is nonjia.rosen@ owenscorning.com

I converted your daughters measurements to english. You mentioned she

is 90 cm tall which is 35.4 inches and she is 11 kg which is 24.25

lbs.

I hope this helps.

Ken M

> > Hi Everyone!!

> >

> > Today turns 3!! In honor of his special day, I posted

some

> new pics of his b-day party this weekend. I left the pic of him

at 8

> months of age, so those who don't know him, can see just how far

he's

> come!!

> >

> > Hey Jodi Z and Jenn, does it seem possible that he's already 3

years

> old?? LOL I remember when I first joined this list serve trying to

> find ways to help him, and you both were here ready and SO

willing to

> help!! A million thanks to you both!!

> >

> > Hugs to you all!!

> > Pat (g-ma to , RSS, 3yrs old TODAY!!!, 23.9#, 32.2 " , G-

Tube)

> >

> >