Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Brigitte, About the only thing you can do for now is the small, frequent meals. Maybe you would have more success with feeding even less every two hours instead of three? Do you add any cereal to the formula to give it some bulk to help it stay down? You don't need a lot, just enough to thicken the formula a bit. As I said, smaller, more frequent meals may keep her more comfortable. Other than that, there is not much else to do, to my knowledge. Max takes Cisapride to help his emptying, but that is a special protocol and not easy to get. What a shame. It is a miracle drug for so many, but it was found to put kids at risk for heart problems. Max has to have an EKG and bloodwork every three months to make sure things are okay. Another thing that might help is to keep her elevated after eating and to help her move around. Even if you just sit her in an infant seat and play with her legs, the movement will help the food move along. Just don't let her take a lot of formula at once. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Jodi Thanks for that advice, Bobbi has just recently started on Domperidone which is supposed to empty the stomach quicker, it helps as far as the about she vomits, but not with the discomfort, she also has Gaviscon in her milk which thickens it abit, so I don't know about thickening it any more with cereal. We have an apppointment on the 22nd Dec. so hopefully this can all be discussed then. Does Max suffer a lot from this now he is 16? How much does he weigh/height? Thanks again Brigitte x Brigitte Brigitte, About the only thing you can do for now is the small, frequent meals. Maybe you would have more success with feeding even less every two hours instead of three? Do you add any cereal to the formula to give it some bulk to help it stay down? You don't need a lot, just enough to thicken the formula a bit. As I said, smaller, more frequent meals may keep her more comfortable. Other than that, there is not much else to do, to my knowledge. Max takes Cisapride to help his emptying, but that is a special protocol and not easy to get. What a shame. It is a miracle drug for so many, but it was found to put kids at risk for heart problems. Max has to have an EKG and bloodwork every three months to make sure things are okay. Another thing that might help is to keep her elevated after eating and to help her move around. Even if you just sit her in an infant seat and play with her legs, the movement will help the food move along. Just don't let her take a lot of formula at once. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2004 Report Share Posted December 14, 2004 Brigitte, Max is 16.5 years old, about 5'2 " and weighs 107 pounds. He does still have delayed emptying, but he knows how to manage it. He's learned over the years. He takes Cisapride, which helps some, and he eats small meals. He really grazes rather than eats a whole meal. It sometimes seems like he is always eating, but he does not gain weight, so I guess he is doing okay. It gets kind of hard to keep track with a teenager, you know? He wants his independence and privacy. And he has earned it, believe me. We are getting a real kick out of watching Max mature into a regular young man. His voice has almost finished changing and his features are more adult-like. He does not look like a 10 year old anymore. It just amazes me that we don't have babies in this house any longer. Jenna is 19 and Max is 16. Where did the time go? Jodi Z Quote Link to comment Share on other sites More sharing options...
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