Guest guest Posted November 23, 2002 Report Share Posted November 23, 2002 Hi Sue... and I did a cruise last year. She is in a wheelchair, unable to walk or stand, and in a fairly advanced state of MSA. It was one of the best times we have had in a long time. We were on a big ship (2400 passengers and 2400 crew) but I was amazed at how accessible everything was on the ship. Of the 13 decks, the only place she could not get to was a tiny observation deck. The waiter at the table made her a special breakfast tray each morning ( usually cannot get herself ready for the world till about 10 AM) that I could take to the room after my breakfast, with her favorite things on it. The dining room mades a special effort to serve portions cut up to the right size, as soon as we made her needs known, We did not have BAD weather, but did have some wind and rolling seas, and it had no affect on her. The handicapped room was huge, the bath and shower very accommodating, and the crew was kind, attentive and helpful in every way possible. Even though she has declined a lot in the past year, God willing, we are going on another cruise in March. It was difficult to go onshore at the port stops. Once off the boat, especially in countries other than the US, it can be difficult for a wheelchair. Many of the ground tours departed quite a distance from the ship, (many blocks) so we quickly learned to be very selective about leaving the ship, and being sure that we could get a taxi or bus that would take her chair. When we did leave, it was usually only for a few hours. Back at the ship, even when in port, the food remains fantastic, the crowds are small, the service great, the entertainment continues, the deck is there to stroll, the library is there to read in and so on. If the ship is small, and even if it is large and you hit rough seas, you may get sick, but so will most everyone. You won't be alone, and the wind will stop blowing eventually... Personally...I would go and enjoy... I have the opportunity to go on a cruise in the Antarctic (relatively cheaply) and was about to leap at the offer, when a neuropsychiatrist friend sent me this comment: " It depends what you want out of the cruise. My concern is that the constant motion will worson your autonomic symptoms and that will make the cruise too physically unbearable to enjoy. " Can anyone comment on that? It would too awful to be stuck on the ship, unable to leave and unable to actually do anything. I'd really appreciate some advice. Sue <A HREF= " http://groups.yahoo.com/group/shydrager/post?protectID =06107519225401802805019920310824706317414409104616712115204 1077 " >sueblyth@g...</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 About a year ago, I was invited to participate in a cruise of Alaska for people with neurological disorders. The ship was to have 2 neurologists on board and the crew was trained to help both the patient and caregiver. They made accomodations on the ship so that wheelchairs could get over port holes, etc. I've looked around and can't find the specific link to them but here is what I did find... I hope it is of some benefit. http://search.atomz.com/search/?sp-q=cruise & sp-a=sp10015e28 http://www.fctd.info/resources/sourcesLev3.cfm?category=18 & subcat=4 http://www.disabilities-online.com/index.php3?viewCat=153 US Dept. of Justice stance on cruise accomodations for the disabled http://www.disabledperson.com/articles/dojreport.asp Hugs and Warm Fuzzies, Deborah aka Tenacity Forum,website,photosite(DBS & PET) http://pub13.ezboard.com/bpdhangout http://www.pdhangout.com http://community.webshots.com/user/tenacitywins _________________________________________________________________ Protect your PC - get McAfee.com VirusScan Online http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2002 Report Share Posted November 24, 2002 JJJANE FROM THE DUMPSTER SITE WENT ON A CRUISE DEBORAH. HAVE U LOOKED AT THAT SITE? BTW, HOW ARE U FEELING? ANY NEW MEDS? NANCY Deborah Setzer wrote: > > About a year ago, I was invited to participate in a cruise of Alaska for > people with neurological disorders. The ship was to have 2 neurologists on > board and the crew was trained to help both the patient and caregiver. They > made accomodations on the ship so that wheelchairs could get over port > holes, etc. > > I've looked around and can't find the specific link to them but here is what > I did find... I hope it is of some benefit. > > http://search.atomz.com/search/?sp-q=cruise & sp-a=sp10015e28 > > http://www.fctd.info/resources/sourcesLev3.cfm?category=18 & subcat=4 > > http://www.disabilities-online.com/index.php3?viewCat=153 > > US Dept. of Justice stance on cruise accomodations for the disabled > http://www.disabledperson.com/articles/dojreport.asp > > Hugs and Warm Fuzzies, > Deborah aka Tenacity > > Forum,website,photosite(DBS & PET) > http://pub13.ezboard.com/bpdhangout > http://www.pdhangout.com > http://community.webshots.com/user/tenacitywins > > _________________________________________________________________ > Protect your PC - get McAfee.com VirusScan Online > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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