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MSA/dementia?

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Peggy:

I'm not sure I would take a promise as a fact from some with MSA. I know I

don't from Fred. If he tell's me he promises not to do it, then for sure he

will. I don't know if he just forget's the promise or his testing me or

himself. Twice I've had to go to the doctor for myself and both times he

promise he would just sit in his chair and not do anything. Right! I now know

better , came home both times to find that he'd been outside, down the street

and gotten hurt. I know he only waited till my car was down the street until

he was out and going. He now goes with me to the doctor for all my test, but

I still can't trust him. Just the other night he was sitting at the table . I

asked him if he would stay there, I just had to run to the restroom. He said

he would. I was gone 5 minutes at the most, brushing teeth etc. Came out ,

went into the family room and found Fred flat on the floor. I asked him why

he didn't stay in the chair like he said? His answer was " I don' " t know " .

He tells me his stick of falling and won't do it again, but the next chance

he get's to do it again, He does it.

I know Barb told me a story about Ken and the person that she had that

would help her with Ken. Ken had had many falls also. Each was always when

they would just leave him for a minute. So each time Ken would get up they

would make sure that they got up right away to help and keep him from

falling. One day Barb said she started to go into where Ken and her helper

were , when she saw Ken start to get up and then the helper would start to

get up, so Ken would sit back down and the helper would sit back down. Barb

said Ken kept doing this for sometime. Ken get up, helper get up , Ken sit

down, helper would sit down. Ken was just having a good old time with this

game. He was testing and having all the fun he could doing it. We all have

these stories to tell. It can drive you nuts at times, but you can laugh at

it later. Can't say your mother won't hurt herself. They all have, but I

guess it's just part of trying to hang onto the life they have.

Take Care Vera

**********************

I haven't posted before, but I have been reading for a couple of

weeks. My mother was diagnosed with MSA about a year ago. It took 4

neurologists to finally tell us what was going on.

My mother is currently residing in an assisted living and she is in a

wheel chair. If she tries getting up on her own she falls every

time, but no matter how many times the caregivers and I talk to her,

and she promises not to get up, she gets up. She clearly has some

dementia, but I don't see that much as a symptom with MSA from

previous postings. I'm worried sick about her falling and really

hurting herself. When I ask her why she got up, she says she doesn't

know.

Could the dementia be just an added " benefit " .

Regards,

Peggy (mom is Polly)

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Is ur husband on Sinemet?? What other meds is he on??

Have u talk to his neuro?? How long has this behavior going on??

nancy

sandybierman@... wrote:

>

> Hi ,

> Thanks for your response and I should have been more detailed regarding

> dementia as opposed to short term memory (which Tom has also). Some

> examples; he woke yesterday morning saying there was a 12 pound steak that

> was his and someone threw it on the floor and I needed to pick it up. When I

> said there was no 12 lb. steak on the floor, he said well it's only 6 lbs.

> after it's cooked on the grill. He is also very convinced (we've had several

> days of going over this) that he has $100 worth of Canadian quarters that is

> in a box in the trunk of his car (that he hasn't driven in over 8 months).

> He insisted he bought a chocolate milkshake with some of it recently. (He

> has been bedbound since July). I'm not really sure what the term " dementia "

> really includes but if any of you can enlighten me/us, I'd really appreciate

> it.

> PS. Tom also thinks he has two wives...we both have the name, Sandy, and we

> look so much alike. One of us is so nice, the other grumpy and mean.

> For this Thanksgiving, I thank God for my sense of humor. A Thanksgiving

> prayer:

>

> For all that that has been given, we thank you God. For all that has been

> taken, we thank you God. For all that is left, we thank you God.

>

> Love to all,

> Sandy B.

>

>

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