16 month with local helmet

[Guest guest]

Hi everyone,

I'm back with some updates on my (now) 16-month old daughter with

plagio. http://katejustine.blogspot.com. I mentioned before that we

were referred to a local orthotist/prosthetist here in Singapore and

they fabricated a helmet after they did a plaster cast of her head.

Now i just have questions on how the DOC or Starband users with the

fit of their helmet. The reason i'm asking is now that we've got the

helmet, we noticed that it's not snug fit at the lower back of the

helmet. Is this the case or should they be perfectly fitted even at

that side. I guess i can't expect perfection from this local band, but

at least i'd like to know how they should be like. As for the

space/void for the flatenned side of my child's head, it looks

alright.. When she wears it, i can see the pressure spot on her left

forehead, which is the same side of her flat spot at the back of her

head.

She's getting used to it now on day 2, but her hair is all sweaty

whenever we remove the helmet. Any advice on this?

Told my wife that we should at least try the local band first before

we think of flying to CA (and be there for months) if we're not satisfied.

I'll put up a pic of our non-branded band soon.

Chris

[Guest guest]

- Thanks for the update - I've been wondering about you guys!

Bands will hold in the prominant spots and be void in the flat spots. My dd had right plagio and the band held her right forehead and back left of her head while it had room to grow in the back right. Hope that makes sense.

With out seing pics I can't understand what you are saying about the back.

If you can post pics - we'd love to see the them.

Will you go for adjustments?

What did they tell you for cleaning? Here the standard instruction is to clean with 91% rubbing alcohol - because it evaporates and kills bacteria.

As far as sweatin - my dd wore hers in the summer time and so we dressed her very lightly. Usually just a onsie or shirt and diaper.

Hope this helps!!!

Jen and Luli - 29 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

16 month with local helmet

Hi everyone,

I'm back with some updates on my (now) 16-month old daughter with

plagio. http://katejustine.blogspot.com. I mentioned before that we

were referred to a local orthotist/prosthetist here in Singapore and

they fabricated a helmet after they did a plaster cast of her head.

Now i just have questions on how the DOC or Starband users with the

fit of their helmet. The reason i'm asking is now that we've got the

helmet, we noticed that it's not snug fit at the lower back of the

helmet. Is this the case or should they be perfectly fitted even at

that side. I guess i can't expect perfection from this local band, but

at least i'd like to know how they should be like. As for the

space/void for the flatenned side of my child's head, it looks

alright.. When she wears it, i can see the pressure spot on her left

forehead, which is the same side of her flat spot at the back of her

head.

She's getting used to it now on day 2, but her hair is all sweaty

whenever we remove the helmet. Any advice on this?

Told my wife that we should at least try the local band first before

we think of flying to CA (and be there for months) if we're not satisfied.

I'll put up a pic of our non-branded band soon.

Chris

Stay informed, get connected and more with AOL on your phone.

[Guest guest]

Hi Jen,

The orthotist said we can clean the inside of the helmet with alcohol

or baby wipes which has alcohol. We'll be having a visit with the

orthotist every 3 weeks. Neurosurgeon/specialist.. i still don't know.

Pics of the helmet, i've posted in on our blog

http://katejustine.blogpsot.com

I highlighted there that i'll be asking with the orthotist regarding

the slant at the back of the helmet.

Though i haven't taken a pic of my daughter while she's wearing it.

As for the sweating, we're in a part of the world where temperature

ranges from 24 to 33C on average. And dressing lightly is something we

do everyday. So despite that, she still sweats with the helmet.

Chris

>

> - Thanks for the update - I've been wondering about you guys!

> Bands will hold in the prominant spots and be void in the flat

spots.? My dd had right plagio and the band held her right forehead

and back left of her head while it had room to grow in the ?back

right.? Hope that makes sense.

> With out seing pics I can't understand what you are saying about the

back.

> If you can post pics - we'd love to see the them.

>

> Will you go for adjustments?

>

> What?did they tell you for cleaning?? Here the standard instruction

is to clean with 91% rubbing alcohol - because it evaporates and kills

bacteria.

>

> As far as sweatin - my dd wore hers in the summer time and so we

dressed her very lightly.? Usually just a onsie or shirt and diaper.

>

> Hope this helps!!!

>

>

> ?Jen and Luli - 29 months

> Left tort - Right Plagio - Hanger Band Grad - CA

> http://www.babiesonline.com/babies/j/jens5th/

>

>

> 16 month with local helmet

>

>

>

>

>

>

> Hi everyone,

>

> I'm back with some updates on my (now) 16-month old daughter with

> plagio. http://katejustine.blogspot.com. I mentioned before that we

> were referred to a local orthotist/prosthetist here in Singapore and

> they fabricated a helmet after they did a plaster cast of her head.

> Now i just have questions on how the DOC or Starband users with the

> fit of their helmet. The reason i'm asking is now that we've got the

> helmet, we noticed that it's not snug fit at the lower back of the

> helmet. Is this the case or should they be perfectly fitted even at

> that side. I guess i can't expect perfection from this local band, but

> at least i'd like to know how they should be like. As for the

> space/void for the flatenned side of my child's head, it looks

> alright.. When she wears it, i can see the pressure spot on her left

> forehead, which is the same side of her flat spot at the back of her

> head.

>

> She's getting used to it now on day 2, but her hair is all sweaty

> whenever we remove the helmet. Any advice on this?

>

> Told my wife that we should at least try the local band first before

> we think of flying to CA (and be there for months) if we're not

satisfied.

>

> I'll put up a pic of our non-branded band soon.

>

> Chris

>

[Guest guest]

Hi Chris-

Glad to hear from you. I tried looking at your links in both of your

posts, but it's not working for some reason (the first post took me

to a generic blog site that said there were problems with the blog,

this post's link took me to something called biblecollege.com, so

I'm not sure what's going on there).

I'm also unsure of exactly what you mean by not a snug fit in the

back. My son's DOCBand comes all the way down to the base of his

neck and seems to sit very closely to the skin (not sure how much

pressure is going on down that low, but there are definitely no gaps

that I can see).

As for the sweating, it should get better after about a week or so.

Since she just started wearing it, it will take her body a little

while to adjust. However, since she's older and more active, like my

son, chances are there will periodically still be sweating. For

instance, my son isn't sweaty when he wakes up in the morning, but

usually (lately) when I take it off at bath time each night, his

hair is a little wet because he's been running around the house,

etc. You can take off the helmet every once and a while and wipe the

inside with a dry towel to dry it, and wipe your daughter's head

down as well. I do that sometimes when I know my son's overheated

and leave it off for 10 or 15 minutes till he cools off and the

sweat dries up (like in the carride home from preschool after he's

been playing hard).

Hope that helps. I would also suggest taking photos of her head

every week to help you chart her progress visually, so you can keep

track of whether the helmet is working effectively.

Good luck!

Jake-20m (tort resolved/rt plagio/DOCBand 15 weeks)

Jordan-4

> >

> > - Thanks for the update - I've been wondering about you

guys!

> > Bands will hold in the prominant spots and be void in the flat

> spots.? My dd had right plagio and the band held her right forehead

> and back left of her head while it had room to grow in the ?back

> right.? Hope that makes sense.

> > With out seing pics I can't understand what you are saying about

the

> back.

> > If you can post pics - we'd love to see the them.

> >

> > Will you go for adjustments?

> >

> > What?did they tell you for cleaning?? Here the standard

instruction

> is to clean with 91% rubbing alcohol - because it evaporates and

kills

> bacteria.

> >

> > As far as sweatin - my dd wore hers in the summer time and so we

> dressed her very lightly.? Usually just a onsie or shirt and

diaper.

> >

> > Hope this helps!!!

> >

> >

> > ?Jen and Luli - 29 months

> > Left tort - Right Plagio - Hanger Band Grad - CA

> > http://www.babiesonline.com/babies/j/jens5th/

> >

> >

> > 16 month with local helmet

> >

> >

> >

> >

> >

> >

> > Hi everyone,

> >

> > I'm back with some updates on my (now) 16-month old daughter with

> > plagio. http://katejustine.blogspot.com. I mentioned before that

we

> > were referred to a local orthotist/prosthetist here in Singapore

and

> > they fabricated a helmet after they did a plaster cast of her

head.

> > Now i just have questions on how the DOC or Starband users with

the

> > fit of their helmet. The reason i'm asking is now that we've got

the

> > helmet, we noticed that it's not snug fit at the lower back of

the

> > helmet. Is this the case or should they be perfectly fitted even

at

> > that side. I guess i can't expect perfection from this local

band, but

> > at least i'd like to know how they should be like. As for the

> > space/void for the flatenned side of my child's head, it looks

> > alright.. When she wears it, i can see the pressure spot on her

left

> > forehead, which is the same side of her flat spot at the back of

her

> > head.

> >

> > She's getting used to it now on day 2, but her hair is all sweaty

> > whenever we remove the helmet. Any advice on this?

> >

> > Told my wife that we should at least try the local band first

before

> > we think of flying to CA (and be there for months) if we're not

> satisfied.

> >

> > I'll put up a pic of our non-branded band soon.

> >

> > Chris

> >

>