Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 Hi Cathy, Does he eat yogurt? Definitely see if you can get acidophilus into him - Culturelle is a strong lactobacillus (if you are interested I can e-mail you where to get it from). Also, I've read for infants with oral thrush, people have used " Gentian Violet " in the mouth - here's a link I found for it's usage: www.erols.com/cindryn/6.htm I'm sorry I can't tell you more about it since I've never had to use it, but I've heard about it being used a lot for oral thrush in infants. A local LLL leader would be able to help you with how to use it probably, or other ideas. If you need one I can help you find one. I feel for you. My son is 7, autistic & non verbal. When anything happens it's so difficult. I hope this has helped somewhat. Please e-mail whenever you want. Blessings, Michele (, ASD, 7yrs, Logan, 3.5 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 I don't know how to tactfully say this, since I am not a doctor, just a mom...but I see a problem or two with the treatment your son is on. If it is true that children with autism often have problems with opiates (just a theory, but one that I personally believe) then I wouldn't use codeine. If they have problems with sulfation (less theory, more proven, also something I believe) then I wouldn't use Tylenol. As for what he has in his mouth, I have no idea what it is but I would one or more alternative treatments (in conjunction with your doctor) on the won't hurt/might help theory. If it is viral or fungal, there are anti-virals (lauric acid) and anti-fungals (caprylic acid) in coconut fat and coconut milk. You could make coconut ice cream, or some other dish that uses lots, but get a brand that is sulphite-free (like Thai Kitchen or Trader Joe's.) Monolaurin, Primal Defense and IP6, echinecea with goldenseal: all of these are in the arsenal I use for my family, and I would be using all of them for my son if he were sick like yours is. I once had mononucleosis that hurt so bad when I swallowed, I prefered spitting in the toilet, so I empathize with your son. Someone suggested you use yogurt..umm, this is the GFCF list, so the only yogurt you might try would be a gfcf soy one. There are milk-free acidophilus brands at the local health food store and on-line. Poor guy, hope something works, and soon. Lorilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2001 Report Share Posted November 2, 2001 I also used gentian violet, you can get it at any pharmacy without a prescription. It tasted awful and stains like you would not believe, when I used it on myself I immediately spit into the sink and it stained it for a long time, so take care. But it gave me relief instantly. Good luck, > I am having such a terrible time with my son 7 yrs. He has what I think is > thrush in the mouth small patch on his tip of tough. He is nonverbal and so > miserable. The dr. who said it might not be that but just an irritated patch > put him on nystatin oral suspension. There is a lot of junk in this but I > decided to use it because of the severe pain he is in. he is drooling rivers > of salvia that he wont swallow. The patch opened up and bled which made him > more crazy. Then the dr. prescribed codeine with Tylenol. This had an > adverse affect on him and kept him up until 10 PM at night instead of his > usual 7:30 to bed. He is banging his head and attacking us every time he > feels pain. i don't know what to do,. Please help. Cathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2001 Report Share Posted November 3, 2001 Cathy maybe you could ask your dr. to call a compounding pharmacy to get pure form of nystatin our Dr. orders thru pathway and it is prepared in a stevia base instead of sugar and other additives. i have pathways 800 # is you want is....hang in there! Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2001 Report Share Posted November 14, 2001 Gail I believe they are both GFCF. I could be mistaken, but sure I saw them both listed. Maybe someone will correct me if I'm wrong Hope he feels better soon. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Is there anyone in the uk who's child has rss? I am finding it hard at the moment, the doctors can't decide if my daughter has rss or not. I was told 6years ago she had it but now they are not sure. is anyone else going through the same thing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi I am from Hertfordshire, my 9 month old daugher was diagnosed with RSS 3 months ago, please feel free to e mail me if you have any questions or need someone to chat to. Brigitte Please help Is there anyone in the uk who's child has rss? I am finding it hard at the moment, the doctors can't decide if my daughter has rss or not. I was told 6years ago she had it but now they are not sure. is anyone else going through the same thing? Quote Link to comment Share on other sites More sharing options...
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