Re: If you were, currently, or may go on Imuran in the future and are on SCD I h

[Guest guest]

I was on 75 mg 6mp (mercaptopurine) similar to Imuran for 6 months or more when

I started SCD. I was originally at 50 mg but had no real improvement so my Dr.

moved me to 75. I still had no improvement at 75 and knew that the next move

would be to " biologics " since that is what my Dr. said is the progression.

I was pretty depressed at the thought of another med failure. Asacol previously

for many years also had no real effect on bleeding or the other common symptoms.

Long story short, I stopped gluten first and had more improvement than meds gave

in over 9 years. Then stopped dairy and other grains. Then decided to try SCD

again. I tried it 5 years earlier with no improvement.

This time around I modified SCD. When I felt a food caused problems I removed

it. Yogurt-out. Fruit and juices-out.

I thought long and hard about stopping 6mp. Asked the question on another forum

about it and was told that unlike steroids it did not need to be tapered. So

first I went back to 50 mg and about 1 month in to SCD stopped it.

I also take Balsalazide and have continued that.

I am now 3 months into SCD and am better than the last 10 years.

I don't feel deprived on this diet even though it is more restrictive than SCD.

Your frustration is understandable. Been there done that 5 years ago, failed

with the diet.

I would ask: have you had NO improvement with SCD? Could it be that you need to

" gut check " and see if there are foods that bother you, even in SCD?

There are many people that respond to Imuran. Don't fear it, it could help. I

believe in throwing everything against this beast UC. Food, meds, everything.

Just get liver tests to make sure it isn't hurting you.

Best wishes.

>

>

> Might come down to me taking Imuran to get this flare under control.

Originally when I started this diet I told myself that Imuran was the cutoff. If

I was on the diet and this disease progressed to the point I was going to have

to be on Imuran that I was going to stop it, and just live my life.

>

> Now, i'm obviously reconsidering. So my question is this.

>

> If you were on Imuran, did you go off it by being on the diet?

>

> If you were not on Imuran but had to go on it after being on the diet, why do

you stay on the diet?

>

> Thanks in advance.

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> _________________________________________________________________

> Hotmail is redefining busy with tools for the New Busy. Get more from your

inbox.

>

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_2

>

[Guest guest]

Hey ,

I am sorry you are having such a bad time

I guess I see the diet as being a good thing, with or without meds,...as

synergistic in helping you get better. I also see these meds as not being

forever.... I hear that they don't always work forever.

SCD is the only thing I know that changes bacterial flora and hence positively

effects the immune system. Meds only modify it as long as you are on them.

I also think SCD works with LDN, and I know you have thought about that.

But whatever you do, I think SCD helps. I know you are just tired of dealing

with the whole thing, especially being a single guy stuck in the kitchen (I have

kids- I am " stuck " in the kitchen no matter what LOL), and you want to go out

with your buddies, eat what you want, and also eat a basket of chocolate eggs

right now..

But you would feel sick doing all that and that would take the fun out of it. I

hope you go out with your buddies, get a legal glass of wine, and eat legal SCD

goodies instead. You have already put in a lot of time and hard work into the

diet.

I hope you stick to SCD no matter what meds you go on....And feel better,

PJ

> >

> >

> > Might come down to me taking Imuran to get this flare under control.

Originally when I started this diet I told myself that Imuran was the cutoff. If

I was on the diet and this disease progressed to the point I was going to have

to be on Imuran that I was going to stop it, and just live my life.

> >

> > Now, i'm obviously reconsidering. So my question is this.

> >

> > If you were on Imuran, did you go off it by being on the diet?

> >

> > If you were not on Imuran but had to go on it after being on the diet, why

do you stay on the diet?

> >

> > Thanks in advance.

> >

> > -

> > UC - 1+ years

> > SCD - 8 months 100% strict and 4 months restricted diet.

> > Asacol - 12 pills a day

> > Prednisone 40mg

> > entocort With vit E mixed in

> > Back to intro/stage 1 for now.

> >

> >

> >

> >

> >

> > _________________________________________________________________

> > Hotmail is redefining busy with tools for the New Busy. Get more from your

inbox.

> >

http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\

-US:WM_HMP:042010_2

> >

>

[Guest guest]

If you're not eating yogurt and no fruit juices, how do you get your carbs? Do you eat alot of squash and cooked veggies?-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: imagardener2@...Date: Mon, 5 Apr 2010 00:05:21 +0000Subject: Re: If you were, currently, or may go on Imuran in the future and are on SCD I h

I was on 75 mg 6mp (mercaptopurine) similar to Imuran for 6 months or more when I started SCD. I was originally at 50 mg but had no real improvement so my Dr. moved me to 75. I still had no improvement at 75 and knew that the next move would be to "biologics" since that is what my Dr. said is the progression.

I was pretty depressed at the thought of another med failure. Asacol previously for many years also had no real effect on bleeding or the other common symptoms.

Long story short, I stopped gluten first and had more improvement than meds gave in over 9 years. Then stopped dairy and other grains. Then decided to try SCD again. I tried it 5 years earlier with no improvement.

This time around I modified SCD. When I felt a food caused problems I removed it. Yogurt-out. Fruit and juices-out.

I thought long and hard about stopping 6mp. Asked the question on another forum about it and was told that unlike steroids it did not need to be tapered. So first I went back to 50 mg and about 1 month in to SCD stopped it.

I also take Balsalazide and have continued that.

I am now 3 months into SCD and am better than the last 10 years.

I don't feel deprived on this diet even though it is more restrictive than SCD.

Your frustration is understandable. Been there done that 5 years ago, failed with the diet.

I would ask: have you had NO improvement with SCD? Could it be that you need to "gut check" and see if there are foods that bother you, even in SCD?

There are many people that respond to Imuran. Don't fear it, it could help. I believe in throwing everything against this beast UC. Food, meds, everything. Just get liver tests to make sure it isn't hurting you.

Best wishes.

>

>

> Might come down to me taking Imuran to get this flare under control. Originally when I started this diet I told myself that Imuran was the cutoff. If I was on the diet and this disease progressed to the point I was going to have to be on Imuran that I was going to stop it, and just live my life.

>

> Now, i'm obviously reconsidering. So my question is this.

>

> If you were on Imuran, did you go off it by being on the diet?

>

> If you were not on Imuran but had to go on it after being on the diet, why do you stay on the diet?

>

> Thanks in advance.

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>

>

>

>

>

> __________________________________________________________

> Hotmail is redefining busy with tools for the New Busy. Get more from your inbox.

> http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en-US:WM_HMP:042010_2

>

The New Busy is not the too busy. Combine all your e-mail accounts with Hotmail. Get busy.

[Guest guest]

I think carbs (the wrong kind) were a big part of my problem. I have a lot more

energy since SCD (play tennis competitively). Yes I eat veggies, squash,

avocados, carrots. Protein is the backbone of my day: eggs, meat, some hard

cheese in omelets, nut flour muffins.

The SCD diet is similar to the Paleo Diet and Atkins diet. Low carb-high

protein.

I don't miss yogurt or juice at all. I admit in the beginning missing fruit

because I ate a lot of it before UC. But now that I know it causes upset it's

easy to not eat it. Blueberries seem OK though and I added them at about the 2.5

month mark.

I'm also starting to drink veggie juices. Yum.

This disease is hard to get a grip on. Took me 10 years and I'm not dumb or

undisciplined.

Do what you need to do, do the diet or stop. Have you read the book " Life

Without Bread " ? I highly recommend it.

>

>

> If you're not eating yogurt and no fruit juices, how do you get your carbs? Do

you eat alot of squash and cooked veggies?

>

> -

> UC - 1+ years

> SCD - 8 months 100% strict and 4 months restricted diet.

> Asacol - 12 pills a day

> Prednisone 40mg

> entocort With vit E mixed in

> Back to intro/stage 1 for now.

>