Re: 28 year old female with RSS--Thank you Jodie!!

[Guest guest]

Hi Jodie,

Thank you for the welcome!! I agree this seems to be a wonderful group of

people. I have found the adult group and also joined the magic foundation. I

will hope to attend the convention in July. I'd love to hear more about

.

-RSS-age 28

Jodie wrote:

hey rebecca!!

welcome to our wonderful group!! its always nice to have annother

rss adult join the list and give us more insight into how their life

was and is!! there a couple of adults on this list and there is

also a list for just adults (sharon are you there, kim, hilary? they

can give you the info) do you belong to Magic? their website is

www.magicfoundation.org they could help you with networking with

others with rss as well, plus they have a convention in chicago

every july that is just awesome!! you can meet people from all over

the country and world even that have rss or children with rss!! you

should look into attending, you would have a great time!! where do

you live? let us know more about yourself as a child!! thanks,

looking forward to hearing more from you!!

jodie c. (one of 4 jodi's on the site)

(nicholas-6 1/2 nonrss, christopher-4 rss 27lbs 6oz 36 1/4 "

periactin 4.5, ght genotropin .5, assmentry(left side 1cm), ADHD/OCD

possible), johnathon-19m nonrss(just a terror lately, must be

terrible 2's early!!!!)

>

>

>

> Hi everyone!

> My name is . I am a twenty -eight year old female who was

> diagnosed with Silver Syndrom at age one and a half. I

have

> had very little opportunity to network or visit with other persons

> and families affected by RSS.

> As I look over the different messages and photos you all have

posted

> I am amazed at the similarities of my own life. There are many

> struggles with RSS as a child, adolescent, and as an adult. I am

so

> thankful there is now a support system in place for children and

> familes.

> I am now four feet 9 and a half inches tall and weigh about 75

> pounds. I am small but mighty! I have a college degree in

> psychology, and spend my days doing counseling and case management

> for children and families.

> I would love to visit with other adults with RSS, but also would

> love to visit with parents or children. I would like to answer

any

> questions or help in any way I can. I will try and post my

pictures

> soon!

> Hope to hear from you all soon!!

>

---------------------------------

[Guest guest]

heu rebecca!!

that is great!! we will be at the convention again this year so we

will definitely have to meet up!!! christopher is now 4yrs. he is

27lbs 6oz and 36 1/4 " . we just restarted hi ght and he is on

periactin. he is more on the " mild " end of the spectrum for rss.

he doesnt have any of the gut issues. he goes to preschool 5x a

week and gets some slight OT there. he is a very healthy, happy

little boy!! he is possibly ADHD and OCD. you can check out his

pic its under christopher. i still have to download his new school

pic but his christmas one is there and so is one with his brothers,

nicholas-6 1/2 and johnathon-19m. take care!! fell free to email

me if you would like at jlcals2003@ yahoo .com (no space after @)

and tell me a little more about yourself as a child and now!! look

forward to meeting you in the summer!!

jodie c

> >

> >

> >

> > Hi everyone!

> > My name is . I am a twenty -eight year old female who

was

> > diagnosed with Silver Syndrom at age one and a half. I

> have

> > had very little opportunity to network or visit with other

persons

> > and families affected by RSS.

> > As I look over the different messages and photos you all have

> posted

> > I am amazed at the similarities of my own life. There are many

> > struggles with RSS as a child, adolescent, and as an adult. I

am

> so

> > thankful there is now a support system in place for children and

> > familes.

> > I am now four feet 9 and a half inches tall and weigh about 75

> > pounds. I am small but mighty! I have a college degree in

> > psychology, and spend my days doing counseling and case

management

> > for children and families.

> > I would love to visit with other adults with RSS, but also would

> > love to visit with parents or children. I would like to answer

> any

> > questions or help in any way I can. I will try and post my

> pictures

> > soon!

> > Hope to hear from you all soon!!

> >

>

>

>

>

>

> ---------------------------------

>