Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 , I am so sorry to hear about your brother, and you are certainly feeling the physical as well as the mental pressures of this disease. Yes, I do take 10 MG. prednasone daily, which is down from a high of 40 Mg. shortly after diagnosis a little over 5 years ago. I try very hard through exercise and diet to keep osteoperosis and high blood sugar to a minimum. Thus far at the 10 Mg. dose, the known side effects for me have been practically none. I have wondered how I might have fared at a higher does. Possibly it is the stress of this disease, but I do have to deal daily with the stress-related issues of PF. Prednasone could be contributing to this keyed-up feeling. No matter your pulmonologist, it seems inevitable that he/she will either prescribe prednasone as one of the drugs of choice, or revert to it if pulmonary function deteriates. Prednasone may be more helpful for those with connective tissue disease. I have psoriasis, which my pulmonologist suspects could be the culpret, though you won't find many rheumatologists, dermatologists, or most pulmonologists who would agree. To answer you directly, I would not discourage at least a low dose Prednasone regimine in your case, based on my own experience. With caution and attention to possible associated health issues, I do think prednasone has its place. To answer your question about my having lived with this diagnosis for a bit more than 4 years, if it can be said of one diagnosed with PF, my young age was actually a blessing. At 50 I was young enough to begin rigorous exercise while on oxygen, and I changed my eating habits and was able to loose 50 pounds, enough to get off of oxygen therapy for the time being. At present, I can ride a bicycle as far as I ever did, but not up hills well at all. So far, my heart has remained fit. There is just so much that we can do on our own, but I believe there will be newer treatments in the near future, and so I am willing to struggle along with what we have in hopes of a more promising future. Do what you can to minimize inflammation while at the same time minimizing side effects. That is one of the really tough keys to living with this disease. All my best to you, and take care. Jerry/Mississippi/54/IPF/dx April 05 > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease. > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant--the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > I would like to survive as long as you have. Are you using prednizone? > If possible, how much per day and how long have you used it? How do you feel about side effects? > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies. > > Burns > > Burns > > > > > ________________________________ > > To: Breathe-Support > Sent: Tuesday, September 8, 2009 11:54:18 PM > Subject: Beverley Joy > > > Hello Beverley Joy, > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think? > Jerry?Mississippi/ 54/IPF/dx April 05 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 Thanks Jerry: I do not need oxygen yet. I have lost over thirty pounds and I can not balance a bike. My brother lost some of his balance also. I am waiting for perfindone (sp). It can be used in Japan, Tiawan and Korea. You can find it on the internet. It might be available in Jan. 2010. To: Breathe-Support Sent: Monday, September 14, 2009 12:28:03 AMSubject: Re: Beverley Joy , I am so sorry to hear about your brother, and you are certainly feeling the physical as well as the mental pressures of this disease. Yes, I do take 10 MG. prednasone daily, which is down from a high of 40 Mg. shortly after diagnosis a little over 5 years ago. I try very hard through exercise and diet to keep osteoperosis and high blood sugar to a minimum. Thus far at the 10 Mg. dose, the known side effects for me have been practically none. I have wondered how I might have fared at a higher does. Possibly it is the stress of this disease, but I do have to deal daily with the stress-related issues of PF. Prednasone could be contributing to this keyed-up feeling.No matter your pulmonologist, it seems inevitable that he/she will either prescribe prednasone as one of the drugs of choice, or revert to it if pulmonary function deteriates. Prednasone may be more helpful for those with connective tissue disease. I have psoriasis, which my pulmonologist suspects could be the culpret, though you won't find many rheumatologists, dermatologists, or most pulmonologists who would agree. To answer you directly, I would not discourage at least a low dose Prednasone regimine in your case, based on my own experience. With caution and attention to possible associated health issues, I do think prednasone has its place.To answer your question about my having lived with this diagnosis for a bit more than 4 years, if it can be said of one diagnosed with PF, my young age was actually a blessing. At 50 I was young enough to begin rigorous exercise while on oxygen, and I changed my eating habits and was able to loose 50 pounds, enough to get off of oxygen therapy for the time being. At present, I can ride a bicycle as far as I ever did, but not up hills well at all. So far, my heart has remained fit. There is just so much that we can do on our own, but I believe there will be newer treatments in the near future, and so I am willing to struggle along with what we have in hopes of a more promising future. Do what you can to minimize inflammation while at the same time minimizing side effects. That is one of the really tough keys to living with this disease. All my best to you, and take care.Jerry/Mississippi/ 54/IPF/dx April 05 >> Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > I would like to survive as long as you have. Are you using prednizone?> If possible, how much per day and how long have you used it? How do you feel about side effects?> > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > Burns> > Burns> > > > > ____________ _________ _________ __> From: jerryb888 <jerryb888@. ..>> To: Breathe-Support@ yahoogroups. com> Sent: Tuesday, September 8, 2009 11:54:18 PM> Subject: Beverley Joy> > > Hello Beverley Joy,> Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> Jerry?Mississippi/ 54/IPF/dx April 05> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/54/IPF/dx April 05 > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease. > > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone? > > If possible, how much per day and how long have you used it? How do you feel about side effects? > > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful > > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies. > > > > Burns > > > > Burns > > > > > > > > > > ____________ _________ _________ __ > > From: jerryb888 <jerryb888@ ..> > > To: Breathe-Support@ yahoogroups. com > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > Subject: Beverley Joy > > > > > > Hello Beverley Joy, > > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think? > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 Jerry/ I wish Pirfenidone was an answer but the trials were a great disappointment and the post trial data collected even more so. I'm sure, if it's approved, there will be doctors promoting it, but I know the doctors I've talked to locally say there is no interest in prescribing it. > > > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease. > > > > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > > > I would like to survive as long as you have. Are you using prednizone? > > > If possible, how much per day and how long have you used it? How do you feel about side effects? > > > > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful > > > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies. > > > > > > Burns > > > > > > Burns > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > From: jerryb888 <jerryb888@ ..> > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > > Subject: Beverley Joy > > > > > > > > > Hello Beverley Joy, > > > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think? > > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2009 Report Share Posted September 14, 2009 Bruce/, InterMune is really banking on Pirfenidone to make it profitable. As you know, Intermune is trying to market Pirfenidone and treatments for cancer. They really need for it to succeed. Today its stock price was up over 9% after an announcement by InterMune of a presentation concerning the safety and analysis of Pirfendone in IPF patients to a European respiratory conference. InterMune stock price was a bit over $17, while their 2nd quarter loss was 81 cents per share. It is very obvious that they need to start selling, so irreguardless of what the true benefit may be, it will be pushed if approved. The combined studies did show a 7.2% reate of IPF-related deaths ( those taking placebo) drop to 3.5% (those taking Pirfendone). This 3.7% difference can be translated by a statistitian to a 50% reduction in mortality related to IPF. So even if the research doesn't show significant results, numbers can be used to promote the drug. InterMune can also point out that Pirfendone has been shown to be relatively safe thus far. And in taking Forced Vital Capacity (FVC) into account in one 72 week study, there was a rate of reduction decline of 3.1% (9.6% for placebo vs 6.5% taking Pirfendone). Looking at this more closely, there was slightly less decline in those taking Pirfendone. I wrote all this to say Bruce that I really don't want to agree with you, but I do. However, InterMune will certainly promote Pirfendone at every chance to those of us looking for hope. And even on an occasional individual basis, it may truly make a difference, though how can we know for sure in each case. And if, for instance, I could not tollerate prednasone, then Pirfendone would have more appeal. I don't think I will be too disappointed if Pirfendone is out of reach for me at present, but during a sudden decline, I will look much closer at all the options. Day by day, we hope. Jerry/Mississippi/54/IPF/dx April 95 > > > > > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother > died from IPF 7-2008 at age 70. It must be our families disease. > > > > > > > > My brother was an MD who had much faith in steroids. I saw what > effect prednizone had on him. He only lasted 22 months even with a lung > transplant-- the lung was no good match for him. He developed severe > osteoporosis and aged about 15 years in two years. > > > > > > > > I would like to survive as long as you have. Are you using > prednizone? > > > > If possible, how much per day and how long have you used it? How > do you feel about side effects? > > > > > > > > I takes me four to six hours each day to clear my lungs. I was > put on 60 mg of prednizone and I reduced it to zero. I have had a very > stressful > > > > summer and so I am taking 20 mg per day. This is not enough to > clear my lungs. I am now fighting with a full load of allergies. > > > > > > > > Burns > > > > > > > > Burns > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > From: jerryb888 <jerryb888@ ..> > > > > To: Breathe-Support@ yahoogroups. com > > > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > > > Subject: Beverley Joy > > > > > > > > > > > > Hello Beverley Joy, > > > > Am I right thinking you have an appointment with your new > pulmonologist tomorrow the 9th? I hope all goes well with your first > visit and that you will find a friendly, knowledgeable lung man. But you > know if you aren't happy, there are other qualified doctors near you. > Take care of yourself and I'll be looking to hear some news. As i'll be > traveling down to tomorrow for the Celtic Fest, I may not have > access to a computer link as often as here, but I'll check in when I can > and see if you have posted. Take care. Oh yes, notice I typed in blue > like Mamasher? Since we are going to use blue for our color, I may start > emailing to everyone in blue all the time. What do you think? > > > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 Jerry Intermune is a company with zero credibility. Yes, they are banking on it because they have nothing else and they've made so many promises. As to combined results of the trials, the Japanese trials were not conducted consistent with US standards and were criticized for having the wrong primary measurement and being terminated prematurely. Now the premature termination importance might have been arguable until the US trials. In the US trials it was shown that there seemed to be some initial benefit but it was soon reversed and in the extended period it turned out the death rate of the two groups was basically the same. Also understand the trials covered a narrow group of participants that most of us wouldn't fit. The average age was very high, the demographics was disproportionately male, and the average condition of the participant was very good and better than many of us were the day we were diagnosed. Also, although unlike their previous product, Actimmune, Pirfenidone did not appear to cause death, the side effects from Pirfenidone were quite prevalent. Ultimately, if it is approved (and note that you've not been hearing stuff on that since the May release, quite uncharacteristic for Intermune), then many will have to make the choice. All I would say is don't make the choice based on Intermune's information and promotion. When I say that I include not making it based on what you read from the Coalition for Pulmonary Fibrosis either as Intermune was involved with them from birth and provided the vast majority of their funding for years. I'm not saying there is any impropriety, but I am saying if I received 85% of my income from a single company then nature says I will lean favorably in their direction. Similarly, I would prefer getting the information from the doctors who have not been involved directly with Intermune in receiving consulting fees, speaking fees or other monetary stipends. These are the same doctors who were involved in the prescribing of Actimmune off label prior to its clinical trials being abruptly halted. I think one also must note that there have been tests and trials involving Pirfenidone for various purposes for over ten years and so far has not been approved for any. PF seems to be their best chance yet but we'll see. Right now the logic in taking Pirfenidone is pretty much to say I have IPF (note its only IPF it has been through trials for, not other forms of PF), there is not treatment, so I'll try this as a long shot and accept the side effects. I'm not saying that logic is right or wrong. I just really hope people trying any medication research and get a full understanding. Last, there are quite a few drugs in clinical trials for Pulmonary Fibrosis. Some of these are newer drugs while many are drugs already approved by the FDA and used widely for other conditions such as Pulmonary Hypertension or Autoimmune Diseases or Cancer. You don't hear so much about the hundreds of other trials because the pharmaceutical companies do not issue voluminous press releases or spend large amounts promoting drugs not yet through trials and approved. No one knows which of these might be found to have benefit and then being approved for PF. The advantage is to that for many of them the side effects are already well known and documented through history of being used for other conditions. > > > > > > > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother > > died from IPF 7-2008 at age 70. It must be our families disease. > > > > > > > > > > My brother was an MD who had much faith in steroids. I saw what > > effect prednizone had on him. He only lasted 22 months even with a lung > > transplant-- the lung was no good match for him. He developed severe > > osteoporosis and aged about 15 years in two years. > > > > > > > > > > I would like to survive as long as you have. Are you using > > prednizone? > > > > > If possible, how much per day and how long have you used it? How > > do you feel about side effects? > > > > > > > > > > I takes me four to six hours each day to clear my lungs. I was > > put on 60 mg of prednizone and I reduced it to zero. I have had a very > > stressful > > > > > summer and so I am taking 20 mg per day. This is not enough to > > clear my lungs. I am now fighting with a full load of allergies. > > > > > > > > > > Burns > > > > > > > > > > Burns > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > From: jerryb888 <jerryb888@ ..> > > > > > To: Breathe-Support@ yahoogroups. com > > > > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > > > > Subject: Beverley Joy > > > > > > > > > > > > > > > Hello Beverley Joy, > > > > > Am I right thinking you have an appointment with your new > > pulmonologist tomorrow the 9th? I hope all goes well with your first > > visit and that you will find a friendly, knowledgeable lung man. But you > > know if you aren't happy, there are other qualified doctors near you. > > Take care of yourself and I'll be looking to hear some news. As i'll be > > traveling down to tomorrow for the Celtic Fest, I may not have > > access to a computer link as often as here, but I'll check in when I can > > and see if you have posted. Take care. Oh yes, notice I typed in blue > > like Mamasher? Since we are going to use blue for our color, I may start > > emailing to everyone in blue all the time. What do you think? > > > > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 Bruce, Thank you for your insight. Here is a case in point which just happened beginning starting in early August: My Psoriasis, for what ever reason, became very inflamed and began spreading rapidly, causing severe swelling of feet and legs. The plaques also became infected. My dermatologist gave me a steroid injection and asked if I would check insurance to see if they would pay for a biologic drug such as Enbrel or Humira. In the mean time, he wanted to start topical steroids as well. I suggested trying colchicine or alopurinol, which I knew had been studied for psoriasis. He agreed to try the colchicine. Now a little more than a month later, my skin is almost free of plaque. Now my dermatologist is trying it for some of his other patients who have moderate to severe psoriasis. Colchicine, or its parent plant, has been used sucessfully for hundreds of years, especially for gout, though it has other off-label uses such as psoriasis. It can be a very effective antiinflammatory in other areas, but drug companies arent't going to send a drug rep around to let them know. Newer certainly doesn't mean better in this case, and it would be much more expensive. I take imipramine for depression. It gets very little billing now that the newer antidepressants have come on the market. There is little money to be made with imipramine now, so naturally the newer ones will come to mind first when a doctor gets out his pen and pad. Newer doesn't mean better in every case. When I go to Tulane next month, I will be curious to see what my doctor says about my taking colchicine. I am pretty sure he will approve. Thank you for sharing what you know about Intermune. They really do need to sell Pirfendone, and I look for more press conferences like yesterday to boost interest. Jerry/Mississippi/54/IPF/dx April 05 > > > > > > > > > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My > brother > > > died from IPF 7-2008 at age 70. It must be our families disease. > > > > > > > > > > > > My brother was an MD who had much faith in steroids. I saw > what > > > effect prednizone had on him. He only lasted 22 months even with a > lung > > > transplant-- the lung was no good match for him. He developed severe > > > osteoporosis and aged about 15 years in two years. > > > > > > > > > > > > I would like to survive as long as you have. Are you using > > > prednizone? > > > > > > If possible, how much per day and how long have you used it? > How > > > do you feel about side effects? > > > > > > > > > > > > I takes me four to six hours each day to clear my lungs. I > was > > > put on 60 mg of prednizone and I reduced it to zero. I have had a > very > > > stressful > > > > > > summer and so I am taking 20 mg per day. This is not enough to > > > clear my lungs. I am now fighting with a full load of allergies. > > > > > > > > > > > > Burns > > > > > > > > > > > > Burns > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > > > From: jerryb888 <jerryb888@ ..> > > > > > > To: Breathe-Support@ yahoogroups. com > > > > > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > > > > > Subject: Beverley Joy > > > > > > > > > > > > > > > > > > Hello Beverley Joy, > > > > > > Am I right thinking you have an appointment with your new > > > pulmonologist tomorrow the 9th? I hope all goes well with your first > > > visit and that you will find a friendly, knowledgeable lung man. But > you > > > know if you aren't happy, there are other qualified doctors near > you. > > > Take care of yourself and I'll be looking to hear some news. As i'll > be > > > traveling down to tomorrow for the Celtic Fest, I may not > have > > > access to a computer link as often as here, but I'll check in when I > can > > > and see if you have posted. Take care. Oh yes, notice I typed in > blue > > > like Mamasher? Since we are going to use blue for our color, I may > start > > > emailing to everyone in blue all the time. What do you think? > > > > > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 To all, I think I lost weight to not eating right. My wife died two years ago, so I am alone and a rotten cook. I exercize a lot and I hope that is good for my oxygen level. You can raise your O/2 level by drinking water in small amounts often. Pursed-lip breathing will also bring your O/2 level during stress or exercise. I have an "oxymeter" that I need to replace batteries in. It gives me hope that I might be holding my own. Burns To: Breathe-Support Sent: Monday, September 14, 2009 10:52:34 PMSubject: Re: Beverley Joy Jerry/I wish Pirfenidone was an answer but the trials were a greatdisappointment and the post trial data collected even more so. I'm sure,if it's approved, there will be doctors promoting it, but I know thedoctors I've talked to locally say there is no interest in prescribingit.> > >> > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brotherdied from IPF 7-2008 at age 70. It must be our families disease.> > >> > > My brother was an MD who had much faith in steroids. I saw whateffect prednizone had on him. He only lasted 22 months even with a lungtransplant-- the lung was no good match for him. He developed severeosteoporosis and aged about 15 years in two years.> > >> > > I would like to survive as long as you have. Are you usingprednizone?> > > If possible, how much per day and how long have you used it? Howdo you feel about side effects?> > >> > > I takes me four to six hours each day to clear my lungs. I wasput on 60 mg of prednizone and I reduced it to zero. I have had a verystressful> > > summer and so I am taking 20 mg per day. This is not enough toclear my lungs. I am now fighting with a full load of allergies.> > >> > > Burns> > >> > > Burns> > >> > >> > >> > >> > > ____________ _________ _________ __> > > From: jerryb888 <jerryb888@ ..>> > > To: Breathe-Support@ yahoogroups. com> > > Sent: Tuesday, September 8, 2009 11:54:18 PM> > > Subject: Beverley Joy> > >> > >> > > Hello Beverley Joy,> > > Am I right thinking you have an appointment with your newpulmonologist tomorrow the 9th? I hope all goes well with your firstvisit and that you will find a friendly, knowledgeable lung man. But youknow if you aren't happy, there are other qualified doctors near you.Take care of yourself and I'll be looking to hear some news. As i'll betraveling down to tomorrow for the Celtic Fest, I may not haveaccess to a computer link as often as here, but I'll check in when I canand see if you have posted. Take care. Oh yes, notice I typed in bluelike Mamasher? Since we are going to use blue for our color, I may startemailing to everyone in blue all the time. What do you think?> > > Jerry?Mississippi/ 54/IPF/dx April 05> > >> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 I tried to answer this. I am not taking NAC Each day is a pressure day for me. I am slowing getting rid of the things that made two people happy. I have hired help every day for the last three months to rescue my house from mold and chemicals. I have much more to throw out and shed. Other than NAC I am doing what you say in your first paragraph. I hope to try NAC when I feel relaxed again. Burns To: Breathe-Support Sent: Monday, September 14, 2009 10:41:06 PMSubject: Re: Beverley Joy , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/ 54/IPF/dx April 05 > >> > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone?> > If possible, how much per day and how long have you used it? How do you feel about side effects?> > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > > > Burns> > > > Burns> > > > > > > > > > ____________ _________ _________ __> > From: jerryb888 <jerryb888@ ..>> > To: Breathe-Support@ yahoogroups. com> > Sent: Tuesday, September 8, 2009 11:54:18 PM> > Subject: Beverley Joy> > > > > > Hello Beverley Joy,> > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> > Jerry?Mississippi/ 54/IPF/dx April 05> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2009 Report Share Posted September 15, 2009 , You must be doing the right things, and it sounds like it too. Yes I learned early on the value of a few good sips of cold water when a little out of sorts and needing an oxygen boost. Along with that, it could be sitting back and getting the needed respite from activity that I needed. NAC is one of those things I do because it is thought to help. Because I take it every day, I don't know what I would be like without it. As long as I am holding my own, as you are, I'll not stop doing anything for now. In a sharp decline, I'll have to change something. But like you, prednasone at high levels long term isn't an option. We'll have to seek other options. It does sound as though your loss of weight has helped. My family may feel that I go to extremes by not eating breads and desserts, but I love too many other good foods to go hungry. I don't know if they deliver where you live, but Swans, www.swans.com has some really good prepaired food. It is a wonderful service for those who either can't cook much or who can't get to town easily. Jerry/Mississippi/54/IPF/dx April 05 > > > > > > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother > died from IPF 7-2008 at age 70. It must be our families disease. > > > > > > > > My brother was an MD who had much faith in steroids. I saw what > effect prednizone had on him. He only lasted 22 months even with a lung > transplant-- the lung was no good match for him. He developed severe > osteoporosis and aged about 15 years in two years. > > > > > > > > I would like to survive as long as you have. Are you using > prednizone? > > > > If possible, how much per day and how long have you used it? How > do you feel about side effects? > > > > > > > > I takes me four to six hours each day to clear my lungs. I was > put on 60 mg of prednizone and I reduced it to zero. I have had a very > stressful > > > > summer and so I am taking 20 mg per day. This is not enough to > clear my lungs. I am now fighting with a full load of allergies. > > > > > > > > Burns > > > > > > > > Burns > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ __ > > > > From: jerryb888 <jerryb888@ ..> > > > > To: Breathe-Support@ yahoogroups. com > > > > Sent: Tuesday, September 8, 2009 11:54:18 PM > > > > Subject: Beverley Joy > > > > > > > > > > > > Hello Beverley Joy, > > > > Am I right thinking you have an appointment with your new > pulmonologist tomorrow the 9th? I hope all goes well with your first > visit and that you will find a friendly, knowledgeable lung man. But you > know if you aren't happy, there are other qualified doctors near you. > Take care of yourself and I'll be looking to hear some news. As i'll be > traveling down to tomorrow for the Celtic Fest, I may not have > access to a computer link as often as here, but I'll check in when I can > and see if you have posted. Take care. Oh yes, notice I typed in blue > like Mamasher? Since we are going to use blue for our color, I may start > emailing to everyone in blue all the time. What do you think? > > > > Jerry?Mississippi/ 54/IPF/dx April 05 > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 john talk to your doc about NAC in retrospect, i think it is what helped clear out my lungs of gook Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Re: Beverley JoyTo: Breathe-Support Date: Tuesday, September 15, 2009, 8:44 PM I tried to answer this. I am not taking NAC Each day is a pressure day for me. I am slowing getting rid of the things that made two people happy. I have hired help every day for the last three months to rescue my house from mold and chemicals. I have much more to throw out and shed. Other than NAC I am doing what you say in your first paragraph. I hope to try NAC when I feel relaxed again. Burns From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, September 14, 2009 10:41:06 PMSubject: Re: Beverley Joy , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/ 54/IPF/dx April 05 > >> > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone?> > If possible, how much per day and how long have you used it? How do you feel about side effects?> > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > > > Burns> > > > Burns> > > > > > > > > > ____________ _________ _________ __> > From: jerryb888 <jerryb888@ ..>> > To: Breathe-Support@ yahoogroups. com> > Sent: Tuesday, September 8, 2009 11:54:18 PM> > Subject: Beverley Joy> > > > > > Hello Beverley Joy,> > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> > Jerry?Mississippi/ 54/IPF/dx April 05> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 in some cities there are things like Meals on Wheels, Cook for a Friend contact you local agency on aging, or your place of worship, or a senior center for more information some senior centers serve a hot lunch daily for a minimum fee [sometimes the fee is really a donation and not mandatory] the senior center that i worked in several years ago, also provided transportation of course the issue with us, is the exposure to germs Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Beverley JoyTo: Breathe-Support Date: Tuesday, September 15, 2009, 9:32 PM , You must be doing the right things, and it sounds like it too. Yes I learned early on the value of a few good sips of cold water when a little out of sorts and needing an oxygen boost. Along with that, it could be sitting back and getting the needed respite from activity that I needed. NAC is one of those things I do because it is thought to help. Because I take it every day, I don't know what I would be like without it. As long as I am holding my own, as you are, I'll not stop doing anything for now. In a sharp decline, I'll have to change something. But like you, prednasone at high levels long term isn't an option. We'll have to seek other options. It does sound as though your loss of weight has helped. My family may feel that I go to extremes by not eating breads and desserts, but I love too many other good foods to go hungry. I don't know if they deliver where you live, but Swans, www.swans.com has some really good prepaired food. It is a wonderful service for those who either can't cook much or who can't get to town easily. Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother> died from IPF 7-2008 at age 70. It must be our families disease.> > > >> > > > My brother was an MD who had much faith in steroids. I saw what> effect prednizone had on him. He only lasted 22 months even with a lung> transplant-- the lung was no good match for him. He developed severe> osteoporosis and aged about 15 years in two years.> > > >> > > > I would like to survive as long as you have. Are you using> prednizone?> > > > If possible, how much per day and how long have you used it? How> do you feel about side effects?> > > >> > > > I takes me four to six hours each day to clear my lungs. I was> put on 60 mg of prednizone and I reduced it to zero. I have had a very> stressful> > > > summer and so I am taking 20 mg per day. This is not enough to> clear my lungs. I am now fighting with a full load of allergies.> > > >> > > > Burns> > > >> > > > Burns> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ __> > > > From: jerryb888 <jerryb888@ ..>> > > > To: Breathe-Support@ yahoogroups. com> > > > Sent: Tuesday, September 8, 2009 11:54:18 PM> > > > Subject: Beverley Joy> > > >> > > >> > > > Hello Beverley Joy,> > > > Am I right thinking you have an appointment with your new> pulmonologist tomorrow the 9th? I hope all goes well with your first> visit and that you will find a friendly, knowledgeable lung man. But you> know if you aren't happy, there are other qualified doctors near you.> Take care of yourself and I'll be looking to hear some news. As i'll be> traveling down to tomorrow for the Celtic Fest, I may not have> access to a computer link as often as here, but I'll check in when I can> and see if you have posted. Take care. Oh yes, notice I typed in blue> like Mamasher? Since we are going to use blue for our color, I may start> emailing to everyone in blue all the time. What do you think?> > > > Jerry?Mississippi/ 54/IPF/dx April 05> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Thanks. I hope to do better in the future. I do not understand my problems with asthma or something similar and with allergys. IPF consumes me--an hour per day of walking and a stationary bike, 30 minutes using a Hillrom vest, 30 minutes to keep up with my meds and four to six hours to clear my lungs by scrapping my throat and spiting up. I need time to pay the bills, repair my house and if I have time for pleasure, I need to remember that this time must be cut short. To: Breathe-Support Sent: Wednesday, September 16, 2009 9:22:05 AMSubject: Re: Re: Beverley Joy in some cities there are things like Meals on Wheels, Cook for a Friend contact you local agency on aging, or your place of worship, or a senior center for more information some senior centers serve a hot lunch daily for a minimum fee [sometimes the fee is really a donation and not mandatory] the senior center that i worked in several years ago, also provided transportation of course the issue with us, is the exposure to germs Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>Subject: Re: Beverley JoyTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 15, 2009, 9:32 PM , You must be doing the right things, and it sounds like it too. Yes I learned early on the value of a few good sips of cold water when a little out of sorts and needing an oxygen boost. Along with that, it could be sitting back and getting the needed respite from activity that I needed. NAC is one of those things I do because it is thought to help. Because I take it every day, I don't know what I would be like without it. As long as I am holding my own, as you are, I'll not stop doing anything for now. In a sharp decline, I'll have to change something. But like you, prednasone at high levels long term isn't an option. We'll have to seek other options. It does sound as though your loss of weight has helped. My family may feel that I go to extremes by not eating breads and desserts, but I love too many other good foods to go hungry. I don't know if they deliver where you live, but Swans, www.swans.com has some really good prepaired food. It is a wonderful service for those who either can't cook much or who can't get to town easily. Jerry/Mississippi/ 54/IPF/dx April 05 > > > >> > > > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother> died from IPF 7-2008 at age 70. It must be our families disease.> > > >> > > > My brother was an MD who had much faith in steroids. I saw what> effect prednizone had on him. He only lasted 22 months even with a lung> transplant-- the lung was no good match for him. He developed severe> osteoporosis and aged about 15 years in two years.> > > >> > > > I would like to survive as long as you have. Are you using> prednizone?> > > > If possible, how much per day and how long have you used it? How> do you feel about side effects?> > > >> > > > I takes me four to six hours each day to clear my lungs. I was> put on 60 mg of prednizone and I reduced it to zero. I have had a very> stressful> > > > summer and so I am taking 20 mg per day. This is not enough to> clear my lungs. I am now fighting with a full load of allergies.> > > >> > > > Burns> > > >> > > > Burns> > > >> > > >> > > >> > > >> > > > ____________ _________ _________ __> > > > From: jerryb888 <jerryb888@ ..>> > > > To: Breathe-Support@ yahoogroups. com> > > > Sent: Tuesday, September 8, 2009 11:54:18 PM> > > > Subject: Beverley Joy> > > >> > > >> > > > Hello Beverley Joy,> > > > Am I right thinking you have an appointment with your new> pulmonologist tomorrow the 9th? I hope all goes well with your first> visit and that you will find a friendly, knowledgeable lung man. But you> know if you aren't happy, there are other qualified doctors near you.> Take care of yourself and I'll be looking to hear some news. As i'll be> traveling down to tomorrow for the Celtic Fest, I may not have> access to a computer link as often as here, but I'll check in when I can> and see if you have posted. Take care. Oh yes, notice I typed in blue> like Mamasher? Since we are going to use blue for our color, I may start> emailing to everyone in blue all the time. What do you think?> > > > Jerry?Mississippi/ 54/IPF/dx April 05> > > >> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Thanks, My pulmonary Doctor told me to forget NAC. I researchedNAC and found that it needs to be supported by vitamins and minerals. I will try NAC and hope it helps clear my lungs. To: Breathe-Support Sent: Wednesday, September 16, 2009 9:16:02 AMSubject: Re: Re: Beverley Joy john talk to your doc about NAC in retrospect, i think it is what helped clear out my lungs of gook Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Burns <johnburns999@ att.net>Subject: Re: Re: Beverley JoyTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 15, 2009, 8:44 PM I tried to answer this. I am not taking NAC Each day is a pressure day for me. I am slowing getting rid of the things that made two people happy. I have hired help every day for the last three months to rescue my house from mold and chemicals. I have much more to throw out and shed. Other than NAC I am doing what you say in your first paragraph. I hope to try NAC when I feel relaxed again. Burns From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, September 14, 2009 10:41:06 PMSubject: Re: Beverley Joy , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/ 54/IPF/dx April 05 > >> > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone?> > If possible, how much per day and how long have you used it? How do you feel about side effects?> > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > > > Burns> > > > Burns> > > > > > > > > > ____________ _________ _________ __> > From: jerryb888 <jerryb888@ ..>> > To: Breathe-Support@ yahoogroups. com> > Sent: Tuesday, September 8, 2009 11:54:18 PM> > Subject: Beverley Joy> > > > > > Hello Beverley Joy,> > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> > Jerry?Mississippi/ 54/IPF/dx April 05> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Probably not. I need to learn a lot more more and will asked my VA PD how he feels about this. JOHN To: Breathe-Support Sent: Thursday, September 17, 2009 8:43:31 AMSubject: Re: Re: Beverley Joy be sure your doctor knows that you are doing this don't take anything unless you clear it with your doc are you seeing a doc who specializes in interstitial lung diseases? Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: Burns <johnburns999@ att.net>Subject: Re: Re: Beverley JoyTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 15, 2009, 8:44 PM I tried to answer this. I am not taking NAC Each day is a pressure day for me. I am slowing getting rid of the things that made two people happy. I have hired help every day for the last three months to rescue my house from mold and chemicals. I have much more to throw out and shed. Other than NAC I am doing what you say in your first paragraph. I hope to try NAC when I feel relaxed again. Burns From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Monday, September 14, 2009 10:41:06 PMSubject: Re: Beverley Joy , are you also taking NAC daily? I do and it seems to help. I do a lot of clearing up while walking. Drinking lots of water also helps. Though I don't use a nebulizer, you may fine one useful. Also I have proped my front bed posts up two bricks high, mostly to help with acid reflux, though you may find this helps with congestion. Even with all I do, there is still congestion. Yes I am looking forward to perfindone being available for us. I am interested to find out how much improvement is associated with different diagnoses we all have. I know we will have questions about availability, insurance coverage and who may benefit most. Did loosing 30 pounds make the difference in your not needing O2 so far? Jerry/Mississippi/ 54/IPF/dx April 05 > >> > Hello Jerry, My IPF was diagnosed in 10-2008. I am 73. My brother died from IPF 7-2008 at age 70. It must be our families disease.> > > > My brother was an MD who had much faith in steroids. I saw what effect prednizone had on him. He only lasted 22 months even with a lung transplant-- the lung was no good match for him. He developed severe osteoporosis and aged about 15 years in two years. > > > > I would like to survive as long as you have. Are you using prednizone?> > If possible, how much per day and how long have you used it? How do you feel about side effects?> > > > I takes me four to six hours each day to clear my lungs. I was put on 60 mg of prednizone and I reduced it to zero. I have had a very stressful> > summer and so I am taking 20 mg per day. This is not enough to clear my lungs. I am now fighting with a full load of allergies.> > > > Burns> > > > Burns> > > > > > > > > > ____________ _________ _________ __> > From: jerryb888 <jerryb888@ ..>> > To: Breathe-Support@ yahoogroups. com> > Sent: Tuesday, September 8, 2009 11:54:18 PM> > Subject: Beverley Joy> > > > > > Hello Beverley Joy,> > Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?> > Jerry?Mississippi/ 54/IPF/dx April 05> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2009 Report Share Posted October 6, 2009 i like blue and it seems a little easier to read, so, i'm going to try it. thanks ken To: Breathe-Support Sent: Wed, September 9, 2009 4:04:47 PMSubject: Re: Beverley Joy Please make it dark blue , easier on the eyes, thanks Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: jerryb888 <jerryb888 (AT) yahoo (DOT) com>Subject: Beverley JoyTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 8, 2009, 11:54 PM Hello Beverley Joy, Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think? Jerry?Mississippi/ 54/IPF/dx April 05 Quote Link to comment Share on other sites More sharing options...
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