Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 hey victoria!! i will keep jillie in my thought and prayers for a speedy recovery!!! good luck and let me know how she makes out!! ((HUGS)) to you guys!!! jodie c > > Hi Y'all, > Jillie goes in to the hospital in a wee few hours for her tonsils > and adenoids out, a bronchoscopy, an endoscopy and a liver biopsy. > She will be in the PICU afterwards. I am nauseous, Errol (hubbie) > hasn't slept and poor Jillie is oblivious. Wish us luck and a better > recovery than what I'm anticipating! > (Mom to Ethan (non RSS)age 5 and Jillie (RSS)33 months - > 24lbs 4 oz, 34.75 inches, nissen, GT, chronic lung disease, oxygen > dependant, zantac, periactin, singulair, primodophilus, vitamins, > growth hormone, miralax, atrovent neb, pulmicort neb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Good luck and prayers coming your way. Hang in there! Jillie Hi Y'all, Jillie goes in to the hospital in a wee few hours for her tonsils and adenoids out, a bronchoscopy, an endoscopy and a liver biopsy. She will be in the PICU afterwards. I am nauseous, Errol (hubbie) hasn't slept and poor Jillie is oblivious. Wish us luck and a better recovery than what I'm anticipating! (Mom to Ethan (non RSS)age 5 and Jillie (RSS)33 months - 24lbs 4 oz, 34.75 inches, nissen, GT, chronic lung disease, oxygen dependant, zantac, periactin, singulair, primodophilus, vitamins, growth hormone, miralax, atrovent neb, pulmicort neb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Dear I will be thinking about you all! If it's any help...Finlay went through a similar procedure last Oct and recovered very very well. He had Tonsils and Adenoids out, an upper GI biopsy (via endoscopy) a muscle biopsy and a lumber puncture. He was 4 at the time. I was very very worried about how his recovery would be (especially because he gets hypoglycaemia at the drop of a hat!) and was amazed at how quickly he bounced back. And I do understand that no matter how many emails you get from friends telling you that you are doing the right thing and that Jillie will be OK - you will still be worried sick! Good Luck and do let us all know how she gets on...once you get through the next couple of days I'm sure you will ALL feel much much better Take Care (hope you are going to the hospital armed with glossy magazines and lots of chocolate!) (in New Zealand, Finlay 5yrs RSS, g-tube, GH and Logan 2yrs 10mths) In RSS-Support , " nightnuse4babies " <nightnuse4babies@y...> wrote: > > Hi Y'all, > Jillie goes in to the hospital in a wee few hours for her tonsils > and adenoids out, a bronchoscopy, an endoscopy and a liver biopsy. > She will be in the PICU afterwards. I am nauseous, Errol (hubbie) > hasn't slept and poor Jillie is oblivious. Wish us luck and a better > recovery than what I'm anticipating! > (Mom to Ethan (non RSS)age 5 and Jillie (RSS)33 months - > 24lbs 4 oz, 34.75 inches, nissen, GT, chronic lung disease, oxygen > dependant, zantac, periactin, singulair, primodophilus, vitamins, > growth hormone, miralax, atrovent neb, pulmicort neb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 , I really hope that all goes well with Jillian. I will be thinking of you guys and I hope that she recovers quickly and better than you think. Prayers your way and take care. I know this is such a stressful time when our kids are going through these things. Try to take it as easy as possible though. Hugs to you, Jodi R. > > Hi Y'all, > Jillie goes in to the hospital in a wee few hours for her tonsils > and adenoids out, a bronchoscopy, an endoscopy and a liver biopsy. > She will be in the PICU afterwards. I am nauseous, Errol (hubbie) > hasn't slept and poor Jillie is oblivious. Wish us luck and a better > recovery than what I'm anticipating! > (Mom to Ethan (non RSS)age 5 and Jillie (RSS)33 months - > 24lbs 4 oz, 34.75 inches, nissen, GT, chronic lung disease, oxygen > dependant, zantac, periactin, singulair, primodophilus, vitamins, > growth hormone, miralax, atrovent neb, pulmicort neb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2005 Report Share Posted February 15, 2005 Hi , Hopefully this time will be easier. I can be free this weekend though if you need anything/errands run etc - only 45 minutes away! , mom to , 5 and Emerence, 2, SGA poss mild RSS soon to be weighed and checked... > > Hi Y'all, > Jillie goes in to the hospital in a wee few hours for her tonsils > and adenoids out, a bronchoscopy, an endoscopy and a liver biopsy. > She will be in the PICU afterwards. I am nauseous, Errol (hubbie) > hasn't slept and poor Jillie is oblivious. Wish us luck and a better > recovery than what I'm anticipating! > (Mom to Ethan (non RSS)age 5 and Jillie (RSS)33 months - > 24lbs 4 oz, 34.75 inches, nissen, GT, chronic lung disease, oxygen > dependant, zantac, periactin, singulair, primodophilus, vitamins, > growth hormone, miralax, atrovent neb, pulmicort neb. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Hi , Here's hoping the rest of the recovery is a lot easier to handle. Was she is your own PICU...if so it hopefully made is easier because you know the nurses who would take care of her. Sorry she is still reacting to the fear of shots - some nurse in Childrens' lab screwed up Emerence's blood draw last spring and she threw up at the sight of anyone in a white lab coat for months (including the photo lab person at Walmart!) It did go away though after 3 months. As far a hitting, I have found that is part of the terrible twos, mabye just coincidental timing? I hate to admit it but I am a bribing parent for some things (go back to sleep in your own bed, you get a sticker type thing!) I HOPE it gets better soon! > > Hi Guys, > > Thanks for emailing support to us for Jillie to get through her > various surgeries. She is now 10 days post a tonsillectomy, ear > tubes, a liver biopsy and an endoscopy. > > As per the luck of an ICU nurse with a child in the hospital, things > did not go as planned. I was allowed to be with her until she was > unconscious which was awesome and a first in this the 5th time under > anesthesia. She was in the OR for 5 hrs! Apparently she could not be > intubated by anesthesia and the attending in ORL had to do it. She > has a very small unusual airway and is known to be problemmatic but > this inability to easily intubate whilst unconscious is scary. In an > emergency - unless in a phenomenal hospital, she might not make it. > The docs were nervous about pulling out the breathing tube but did > after giving her a hefty dose of steroids. She was sent to the PICU > with one IV line in and 13 failed attempts which were thankfully done > under anesthesia! Unfortunately, they had to do several blood draws > in the remaining time of our stay. That was another 8 sticks. 21 > sticks in all in 24 hrs. I know how crazy it makes you all having > your child stuck for IV's. Imagine what is like for me - an expert in > IV's and blood draws to deal with this. I was fit to be tied. > > Eventually we go home. Jillie eventually falls asleep and starts with > the noisy obstructive breathing. Then she starts having apneas (long > pauses in breathing) that require constant repositionning and a lot > of oxygen to keep her oxygen level up. This went on for 3 nights > before the swelling in her airway started to go down. > > However, she is refusing to eat of drink, is constantly covering up > her arms and legs (probably in case she gets stuck again) and is > hitting me (this is new). And she is no longer the calm for her > growth hormone shots. Tonight, she was still crying 15 minutes after > her shot. Anyone any ideas on how to deal with all this. I was so > happy to get out of the house tonight and come to work! I think she > blames me for everything and I don't know if she'll ever forgive me. > I feel so bad for her and guilty for putting her through this. > > Anyhow, hope you all are well and staying warm. In New England we > remain sick of the snow! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Oh (((HUGS))). Don't feel guilty! It needed to be done. I am glad to see news of Jillie today. I have been hoping all went well. As she feels better I am sure she will be back to her old self. Take care, Jillie Hi Guys, Thanks for emailing support to us for Jillie to get through her various surgeries. She is now 10 days post a tonsillectomy, ear tubes, a liver biopsy and an endoscopy. As per the luck of an ICU nurse with a child in the hospital, things did not go as planned. I was allowed to be with her until she was unconscious which was awesome and a first in this the 5th time under anesthesia. She was in the OR for 5 hrs! Apparently she could not be intubated by anesthesia and the attending in ORL had to do it. She has a very small unusual airway and is known to be problemmatic but this inability to easily intubate whilst unconscious is scary. In an emergency - unless in a phenomenal hospital, she might not make it. The docs were nervous about pulling out the breathing tube but did after giving her a hefty dose of steroids. She was sent to the PICU with one IV line in and 13 failed attempts which were thankfully done under anesthesia! Unfortunately, they had to do several blood draws in the remaining time of our stay. That was another 8 sticks. 21 sticks in all in 24 hrs. I know how crazy it makes you all having your child stuck for IV's. Imagine what is like for me - an expert in IV's and blood draws to deal with this. I was fit to be tied. Eventually we go home. Jillie eventually falls asleep and starts with the noisy obstructive breathing. Then she starts having apneas (long pauses in breathing) that require constant repositionning and a lot of oxygen to keep her oxygen level up. This went on for 3 nights before the swelling in her airway started to go down. However, she is refusing to eat of drink, is constantly covering up her arms and legs (probably in case she gets stuck again) and is hitting me (this is new). And she is no longer the calm for her growth hormone shots. Tonight, she was still crying 15 minutes after her shot. Anyone any ideas on how to deal with all this. I was so happy to get out of the house tonight and come to work! I think she blames me for everything and I don't know if she'll ever forgive me. I feel so bad for her and guilty for putting her through this. Anyhow, hope you all are well and staying warm. In New England we remain sick of the snow! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2005 Report Share Posted February 28, 2005 , Janelle got very upset after a long hospital stay where she was stuck several times and many of them went on a fishing expidition once they stuck her. She was just beside herself from then on about shots, blood draws, anyone who stuck her (I memory like an elephant) Maybe your husband can do the shots now or just wait till she is asleep. I am so sorry, I understand what you go through. I still tell the story as to how I stood in the way of the residants in NY and told them she had had enough and that they could wait a while for the blood draw. They agreed that goodness. Take care, Jovanovich Ciao, Joe Jovanovich ---------- JP Studios, Inc. On line portfolio>> http:www.jpearlstudios.com > > > Hi Guys, > > Thanks for emailing support to us for Jillie to get through her > various surgeries. She is now 10 days post a tonsillectomy, ear > tubes, a liver biopsy and an endoscopy. > > As per the luck of an ICU nurse with a child in the hospital, things > did not go as planned. I was allowed to be with her until she was > unconscious which was awesome and a first in this the 5th time under > anesthesia. She was in the OR for 5 hrs! Apparently she could not be > intubated by anesthesia and the attending in ORL had to do it. She > has a very small unusual airway and is known to be problemmatic but > this inability to easily intubate whilst unconscious is scary. In an > emergency - unless in a phenomenal hospital, she might not make it. > The docs were nervous about pulling out the breathing tube but did > after giving her a hefty dose of steroids. She was sent to the PICU > with one IV line in and 13 failed attempts which were thankfully done > under anesthesia! Unfortunately, they had to do several blood draws > in the remaining time of our stay. That was another 8 sticks. 21 > sticks in all in 24 hrs. I know how crazy it makes you all having > your child stuck for IV's. Imagine what is like for me - an expert in > IV's and blood draws to deal with this. I was fit to be tied. > > Eventually we go home. Jillie eventually falls asleep and starts with > the noisy obstructive breathing. Then she starts having apneas (long > pauses in breathing) that require constant repositionning and a lot > of oxygen to keep her oxygen level up. This went on for 3 nights > before the swelling in her airway started to go down. > > However, she is refusing to eat of drink, is constantly covering up > her arms and legs (probably in case she gets stuck again) and is > hitting me (this is new). And she is no longer the calm for her > growth hormone shots. Tonight, she was still crying 15 minutes after > her shot. Anyone any ideas on how to deal with all this. I was so > happy to get out of the house tonight and come to work! I think she > blames me for everything and I don't know if she'll ever forgive me. > I feel so bad for her and guilty for putting her through this. > > Anyhow, hope you all are well and staying warm. In New England we > remain sick of the snow! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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