Re: sacral dimples/ neurology appt. tomorrow

[Guest guest]

Hi ,

My son Coby is 28 months old. He has a sacral dimple as well. He

has one very deep one at midline and then a very small one just off

to the side. He had an MRI done when he was young to make sure that

there was no connection between the dimple and the spinal cord. In

our case the dimple was not tethered so there was nothing to be done

at that time.

If it is tethered then they will have to do surgery to cut the

connection. I think there is another mother on here that her child

had the surgery and everything went wonderfully. Hopefully she will

respond.

Hang in there, I remember how scared I was while going through this,

but everything will be ok.

Take care and pls keep us updated.

le, mom to:

Shye 10, Brock 8, and Coby(rss) & Carlee 2

[Guest guest]

hey stacy!!!

that is so great that he is done with his catch up growth too!! we

restarted christopher's ght on jan 29th!! he is now 27lbs 6oz and

36 1/4 " . good luck at your appt tomorrow. christopher and

johnathon all have that really bad cough and cold!! and nicholas

had a stomach bug last thurs.!! ((HUGS)) email me and let me know

how you make out!!

jodie c.

[Guest guest]

Hi Stacey!

How are the boys! My daughter Emerence and I sat with you all at

Bingo...but my son had the sacral dimple! He eventually had an MRI

to determine whethere there was a tether because he wasn't walking

(he had severe hypotonia and didn't walk until 26 months). My

understanding was that if there was a tether it would be unlikely my

son would walk until the tether was cut. So, Christian may not have

a tether? Anyway, potty trained late and about 6 months

after he trained, he started having accidents - lots of them! My dr.

determined it was because he was constipated and he takes Miralax off

and on as needed.

GOOD LUCK!

, mom to , 5 and Emerence 2, SGA, poss mild RSS and dr.

appt tomorrow for checkup and weigh in!

>

> Hello everyone!! I hope everyone had a great valentine's day.

> Christian and I are both down with a nasty chest cold, so it wasn't

> spectacular here. Anyway, tomorrow I am taking Christian to a

> pediatric neurologist for an appt. Dr. H had suggested he be

> examined b/c he has these sacral dimples and she suggested a

possible

> problem with the coccyx. I was wondering if anyone else's child

has

> this and has been examined. I'd like to be prepared for what I'm

> dealing with. I hate to be blind-sided by information. I've been

> trying to do some research on it today, but the information that

I'm

> finding is very vague. One site that I was looking at asked if

there

> was any change in bladder control. Well, Christian's been potty-

> trained for 4-5 months and goes in his underwear at least once a

> day. Usually twice. The other day he went poop in his underwear.

> Now, my house isn't large so he is never far from a bathroom and

when

> he has gone in his underwear he hasn't even made an attempt to

reach

> the toilet. He just stands there and goes. Now it could be that

> he's just still " learning " the feeling or it could be associated

with

> these dimples. But if anyone could share with me their experiences

I

> would be grateful.

> On another note, Christian is now on the charts!!!! His

growth

> spurt is over and we're trying to get into the endo to start the

> shots. Yippee!!! He weighs 30lbs. and is 36 in. tall. I'm so

> happy.

>

> Thank you,

>

> mom to , 7, non-RSS and Christian, 4, RSS, Periactin and Zantac

[Guest guest]

Hi ,

I hope you get to check this before going to your appt. My son

Caleb has a sacral dimple, no coccyx (tailbone), and tethered spinal

cord that was surgically fixed back in July '03! I'm sorry you are

having to go thru this. I know from experience that this is so

scary. Please feel free to email me personally. We could even talk

in person if you need.

The genetesist refered us to a ped neurologist to rule out a

tethered cord. Caleb had just turned 3. He wasn't potty trained

(partly cuz of my laziness as he is my 3rd boy), has a sacral

dimple, scoliosis that had gotten worse since last xray 6 mos

earlier, leg limb difference which was also getting worse, his feet

had begun hurting when wearing shoes, and had severe constipation

(he was sitting down grunting in the dr office, which was normal for

him). The neurologist ordered an MRI, which did show the tethered

cord. The cord is connected to the bones & as the child grows, it

stretches & can cause many problems. That's why the sight was

asking about the change in bladder control. Try not to get too

scared. The earlier it is caught & fixed, the better. And it

doesn't sound like you are seeing too many problems. Typically

sacral dimples & tethered cord occurs in spina-bifida kids, so you

can get a lot of info from those groups.

Caleb is now 4 & doing great! He is potty-trained! (Praise God!)

He gets constipated easily, but nothing that we can't handle. His

feet don't hurt anymore. The scoliosis has stayed where it was.

I hope this helps. Sorry it's so long!

LAURA, 37 mom to 3 boys w/depression & allergies; Lexapro & Dexadrine

Trevor, 12 w/ADHD, BP, OCD, seasonal allergies, & asthma; Lamictal &

Abilify

, 9 (typical middle child & add to it brothers w/special

needs!)

Caleb, 4 w/scoliosis, small stature, allergies, asthma, 3rd set of

PE Tubes, & xtra thumbs taken off at 4 mos. of age

, dh, 43 w/ADD & depression, asthma, & allergies; Lexapro &

Dexadrine

Family spending too much on meds!!