Re: Re: Disabilty andGood News

[Guest guest]

thanks bruce

couldn't do that last fall -- was in worse shape at that point

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Disabilty andGood NewsTo: Breathe-Support Date: Thursday, September 17, 2009, 10:37 AM

PinkThats incredible. 6 Minute Walk without 02 and 96%. I have never donethat in my life. Of course first six minute walk was with the disease.>>> Subject: Disabilty andGood News> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, September 16, 2009, 10:56 PM>>>>>>> I don't post to often but I wanted to tell everyone the good news Igot today. I had been diagnosed with IPF in 07 . They found out I hadILD from Scleroderma and that I have Sjogrens and Raynauds and they areattacking all my organs. I was on Cytoxan for 5mo and got deathly sickat

New Years . I was put on 02 24/7 and felt terrible for months. I hada ct scan done in June and the fibrosis is worse but I started Cellceptand several other meds for my heart. I was able to do the 6 min walktoday slowly without 02 and my sat never went below 92, so I am hopingif I can lose some weight maybe it will improve my situation. On thehome front my daughter, my son in law and then my son lost their jobsdue to the economy. My son got a call from his old boss and he said hehas been wanting him to work for him since he left . He is meeting himtomorrow for an interview to see if the job is something he would like.So please say a little prayer for all of them to> get a jobs . Now about SS I wasn't going to apply because here in thegreat state of Illinois it is routine for everyone to get turned down.My friends would nag me non stop so I finally went . It took about 2 hrswith all of my papers and

they said I would know in Sept or Oct . Thiswas the end of May . Well I will get my 1st check next month . Therewere some glitches in getting hospital records to them but it wentrather smoothly . So I say try it . I'm sorry about the rambling but Iam excited and exhausted. Welcome to all the newbies. I hope to make itto Chattanooga .> ipf 2/07 IL>