Tired-- Hi

[Guest guest]

Yes, I do need to "wake up" and start contributing instead of lurking all the time. I seem to be tired and want to quit exercising and mentally I just want to stop and do nothing for a while. I don't know if that makes sense or not, but I feel like I could just stare at a bug on the wall all day long and not get bored.

Thank God for my dog (Dakota), he will only lay around so long and then he gets up and comes over and stares at me until I take him for a walk to the park, so he keeps me from laying around. I still try to stay on the go all day with exercising, walking the dog, go to the store, B.S. a few neighbors, etc but it is getting harder.

I seem to be a little more short of breath and have to work harder to maintain my exercise routine than before. When I sit in front of the computer for more than 30 minutes I can feel the S.O.B. and a little pressure on the lower part of my lungs. I wil be going back to the Dr. in about a month for the good 'ol PFTs and I expect it to be on the decline, but it seems to be a very slow progression at this point. Still not on oxygen yet but I think I will talk to the Doc about using it during exercise--we'll see.

I'm still recieving my posts in the digest form and it makes it harder for me to respond to topics that I can contribute to because I end up reading about 20-25 Emails at a time then I forget to post on topics when I feel I can contribute. The End

G. UIP/IPF 5/07 AZ.

[Guest guest]

,

I could have written exactly the same thing. I have the further complication of

a short supply of will power. J

I can find any excuse in the world to just sit rather than get out and

exercise. I too am going to ask my pulmonologist about using oxygen when

I exercise even though my tests don’t seem to indicate a need. However,

the six minute walk just doesn’t seem to show what is really happening.

My primary form of exercise is biking and I’ve noticed that my O2 levels

are dropping down to 89% with a heart rate of 125 or higher whereas they never

dropped below 93% a year ago. Also when using a push mower or lifting things, I’m

dropping into the mid-80’s & really start huffing & puffing.

I

have learned this past couple of weeks that all pulmo offices are not created

equal. Because I am now a Florida resident, I needed to get established in the

medical system down here. Part of that was a new pulmologist visit. Their PFT

testing was nothing like that at MUSC in ton, and the guy monitoring the

six minute walk actually told me to slow down as mu O2 dropped to 90%!

Discovered that I can continue to be seen at MUSC, so will be back up there

next month.

[Guest guest]

,It's okay to feel tired. Having a chronic condition

can drain your energy. Whatever we do demands more energy. When a chronic illness is present, the body is less

efficient in its use of the energy reserved for every day activities. This

is because some of our energy is used to help the body heal itself. Consider yourself on sabbatical or vacation. It's okay to take a period of time away from your normal routine. Sometimes we just need to slow down and rest. I'm ready for a season like that. It's okay to be a lurker too, sometimes we need to sit back and soak up knowledge and just listen to others. Other times we need to participate and encourage. My dog (Toby) keeps me going too. I would be very tempted to give up my walks if it wasn't for him nipping at my feet to go. One day I was so tired I came home from work and went to bed. Usually, I'll just lay on the couch but I wanted to lay in my bed for an hour or so. My dog was confused cuz it wasn't bedtime, he didn't bother me but he kept coming into the room and just looking at me like he knew something was

wrong, but was being very patient with me. I'm looking forward to going to the UWMC support group. I hope you find a support group you like.Take care,

C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Thursday, September 17, 2009 9:05:25 PMSubject: Tired-- Hi

Yes, I do need to "wake up" and start contributing instead of lurking all the time. I seem to be tired and want to quit exercising and mentally I just want to stop and do nothing for a while. I don't know if that makes sense or not, but I feel like I could just stare at a bug on the wall all day long and not get bored.

Thank God for my dog (Dakota), he will only lay around so long and then he gets up and comes over and stares at me until I take him for a walk to the park, so he keeps me from laying around. I still try to stay on the go all day with exercising, walking the dog, go to the store, B.S. a few neighbors, etc but it is getting harder.

I seem to be a little more short of breath and have to work harder to maintain my exercise routine than before. When I sit in front of the computer for more than 30 minutes I can feel the S.O.B. and a little pressure on the lower part of my lungs. I wil be going back to the Dr. in about a month for the good 'ol PFTs and I expect it to be on the decline, but it seems to be a very slow progression at this point. Still not on oxygen yet but I think I will talk to the Doc about using it during exercise--we' ll see.

I'm still recieving my posts in the digest form and it makes it harder for me to respond to topics that I can contribute to because I end up reading about 20-25 Emails at a time then I forget to post on topics when I feel I can contribute. The End

G. UIP/IPF 5/07 AZ.

[Guest guest]

hi ,

When I feel that way, I tell everybody I'm vegging leave me alone. They know that I need time to process what is going on in my life. we all feel that way sometimes..We need to take the day and stay in bed, read watch tv. I believe that for me it is a time that I can grieve for what I might be losing if and when my life gets cut short by this disease. I,like everyone else may miss the grands graduation from school, their marriage, great grands.etc.I want to cry it's not fair. My sweet mother just passed away in march of this year at the age of 91. I will never be that old. But each day is a blessing I can truly treasure. I just need time to remind myself of that. God Keep You in The Palms of HIS Hands.

A 60yrs PF HP COPD (on and on and on) 6/05 TN

Subject: Re: Tired-- Hi To: Breathe-Support Date: Friday, September 18, 2009, 10:27 PM

,

It's okay to feel tired. Having a chronic condition can drain your energy. Whatever we do demands more energy. When a chronic illness is present, the body is less efficient in its use of the energy reserved for every day activities. This is because some of our energy is used to help the body heal itself.

Consider yourself on sabbatical or vacation. It's okay to take a period of time away from your normal routine. Sometimes we just need to slow down and rest. I'm ready for a season like that. It's okay to be a lurker too, sometimes we need to sit back and soak up knowledge and just listen to others. Other times we need to participate and encourage.

My dog (Toby) keeps me going too. I would be very tempted to give up my walks if it wasn't for him nipping at my feet to go. One day I was so tired I came home from work and went to bed. Usually, I'll just lay on the couch but I wanted to lay in my bed for an hour or so. My dog was confused cuz it wasn't bedtime, he didn't bother me but he kept coming into the room and just looking at me like he knew something was wrong, but was being very patient with me.

I'm looking forward to going to the UWMC support group. I hope you find a support group you like.

Take care,

C_53_Familial IPF_5/09Washington

From: Godfrey <sngodfrey46@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thursday, September 17, 2009 9:05:25 PMSubject: Tired-- Hi

Yes, I do need to "wake up" and start contributing instead of lurking all the time. I seem to be tired and want to quit exercising and mentally I just want to stop and do nothing for a while. I don't know if that makes sense or not, but I feel like I could just stare at a bug on the wall all day long and not get bored.

Thank God for my dog (Dakota), he will only lay around so long and then he gets up and comes over and stares at me until I take him for a walk to the park, so he keeps me from laying around. I still try to stay on the go all day with exercising, walking the dog, go to the store, B.S. a few neighbors, etc but it is getting harder.

I seem to be a little more short of breath and have to work harder to maintain my exercise routine than before. When I sit in front of the computer for more than 30 minutes I can feel the S.O.B. and a little pressure on the lower part of my lungs. I wil be going back to the Dr. in about a month for the good 'ol PFTs and I expect it to be on the decline, but it seems to be a very slow progression at this point. Still not on oxygen yet but I think I will talk to the Doc about using it during exercise--we' ll see.

I'm still recieving my posts in the digest form and it makes it harder for me to respond to topics that I can contribute to because I end up reading about 20-25 Emails at a time then I forget to post on topics when I feel I can contribute. The End

G. UIP/IPF 5/07 AZ.

[Guest guest]

... every now and then I pop in to check on the board. I'm sad to hear you are feeling the 'blahs'... goodness knows I've felt this way many of times.

Having met you personally and through the many emails, I think you are usually upbeat and on the move with Dakota...

I'm wondering if 'something' has happened in your life to change your attitude.

Whatever it is I'm sorry you have the blahs. Good ole' Dakota will pull you up and out. Our Lola does the same for us. Potty time cannot be ignored!

Right now I'm pretty well down myself... I'm reacting to the antibiotic I'm taking for the bladder infection....Saw the doc and he says he doesn't think it's the 'Cipro' so I continue to hurt. My legs, knees and joints hurt hurt hurt. Hard for me to walk. Have one more day of the antibiotic so I hope I will begin to feel better soon. Print out with med states that side effects can last up to months after stopping the med. Geeze.

The O2 isn't so bad, actually I breathe better with it and feel better.

Do take care of you. I know you will take good care of Dakota!

Hugs,

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

Tired-- Hi

Yes, I do need to "wake up" and start contributing instead of lurking all the time. I seem to be tired and want to quit exercising and mentally I just want to stop and do nothing for a while. I don't know if that makes sense or not, but I feel like I could just stare at a bug on the wall all day long and not get bored.

Thank God for my dog (Dakota), he will only lay around so long and then he gets up and comes over and stares at me until I take him for a walk to the park, so he keeps me from laying around. I still try to stay on the go all day with exercising, walking the dog, go to the store, B.S. a few neighbors, etc but it is getting harder.

I seem to be a little more short of breath and have to work harder to maintain my exercise routine than before. When I sit in front of the computer for more than 30 minutes I can feel the S.O.B. and a little pressure on the lower part of my lungs. I wil be going back to the Dr. in about a month for the good 'ol PFTs and I expect it to be on the decline, but it seems to be a very slow progression at this point. Still not on oxygen yet but I think I will talk to the Doc about using it during exercise--we'll see.

I'm still recieving my posts in the digest form and it makes it harder for me to respond to topics that I can contribute to because I end up reading about 20-25 Emails at a time then I forget to post on topics when I feel I can contribute. The End

G. UIP/IPF 5/07 AZ.

[Guest guest]

Sher

Oh I always love it when they say they don't think its the Cipro or

Levaquin. has great joint pain from Levaquin. Cipro causes it in

some people too. Hope that is it and when you complete the antibiotics

you find it goes away.

>

> ... every now and then I pop in to check on the board. I'm sad

to hear you are feeling the 'blahs'... goodness knows I've felt this way

many of times.

> Having met you personally and through the many emails, I think you are

usually upbeat and on the move with Dakota...

> I'm wondering if 'something' has happened in your life to change your

attitude.

> Whatever it is I'm sorry you have the blahs. Good ole' Dakota will

pull you up and out. Our Lola does the same for us. Potty time cannot

be ignored!

>

> Right now I'm pretty well down myself... I'm reacting to the

antibiotic I'm taking for the bladder infection....Saw the doc and he

says he doesn't think it's the 'Cipro' so I continue to hurt. My legs,

knees and joints hurt hurt hurt. Hard for me to walk. Have one more day

of the antibiotic so I hope I will begin to feel better soon. Print out

with med states that side effects can last up to months after stopping

the med. Geeze.

>

> The O2 isn't so bad, actually I breathe better with it and feel

better.

>

> Do take care of you. I know you will take good care of Dakota!

> Hugs,

>

> MamaSher; 71, IPF 3-2006, OR.

> Don't fret about tomorrow, God is already there!

> Tired-- Hi

>

>

> Yes, I do need to " wake up " and start contributing instead of

lurking all the time. I seem to be tired and want to quit exercising

and mentally I just want to stop and do nothing for a while. I don't

know if that makes sense or not, but I feel like I could just stare at a

bug on the wall all day long and not get bored.

> Thank God for my dog (Dakota), he will only lay around so

long and then he gets up and comes over and stares at me until I take

him for a walk to the park, so he keeps me from laying around. I still

try to stay on the go all day with exercising, walking the dog, go to

the store, B.S. a few neighbors, etc but it is getting harder.

> I seem to be a little more short of breath and have to

work harder to maintain my exercise routine than before. When I sit in

front of the computer for more than 30 minutes I can feel the S.O.B. and

a little pressure on the lower part of my lungs. I wil be going back to

the Dr. in about a month for the good 'ol PFTs and I expect it to be on

the decline, but it seems to be a very slow progression at this point.

Still not on oxygen yet but I think I will talk to the Doc about using

it during exercise--we'll see.

> I'm still recieving my posts in the digest form and it

makes it harder for me to respond to topics that I can contribute to

because I end up reading about 20-25 Emails at a time then I forget to

post on topics when I feel I can contribute. The End

> G. UIP/IPF 5/07 AZ.

>

[Guest guest]

Hi ,I think we all need to just take a nap and get refreshed, then get at the business of living again. I make myself lists of things to do (no matter what it is that needs to be done). I've been in a blue funk myself lately. It seems like my energy is gone at a certain time of day. So I take a nap. Then I wake up and feel slightly guilty because I've been napping in the middle of the day LOL.I try to get the short (easier jobs) list done then work on the long (harder jobs) list.I wonder if this blankness, blahness I'm feeling is due to the uncertain nature of this disease. Ya know, so many questions, so few awnsers.Hope your having a better day!PJ in OH,54,IPF09,Sjogren's95 Tired-- Hi Yes, I do need to "wake up" and start contributing instead of lurking all the time. I seem to be tired and want to quit exercising and mentally I just want to stop and do nothing for a while. I don't know if that makes sense or not, but I feel like I could just stare at a bug on the wall all day long and not get bored. Thank God for my dog (Dakota), he will only lay around so long and then he gets up and comes over and stares at me until I take him for a walk to the park, so he keeps me from laying around. I still try to stay on the go all day with exercising, walking the dog, go to the store, B.S. a few neighbors, etc but it is getting harder. I seem to be a little more short of breath and have to work harder to maintain my exercise routine than before. When I sit in front of the computer for more than 30 minutes I can feel the S.O.B. and a little pressure on the lower part of my lungs. I wil be going back to the Dr. in about a month for the good 'ol PFTs and I expect it to be on the decline, but it seems to be a very slow progression at this point. Still not on oxygen yet but I think I will talk to the Doc about using it during exercise--we' ll see. I'm still recieving my posts in the digest form and it makes it harder for me to respond to topics that I can contribute to because I end up reading about 20-25 Emails at a time then I forget to post on topics when I feel I can contribute. The End G. UIP/IPF 5/07 AZ.