Re: Disabilty andGood News

[Guest guest]

-- cellcept is working for me too -- last week's 6 min walk without o2 was amazing -- lowest SAT was 96%

of course it was in a controlled environment -- hallway -- flat surface -- air conditioned -- room temperature -- no wind --

no talking -- no bending --

none of the stuff that makes the SAT go down

none of the stuff that makes me cough

walked at a steady pace -- didn't rush

good luck to your family in their job searches

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Disabilty andGood NewsTo: Breathe-Support Date: Wednesday, September 16, 2009, 10:56 PM

I don't post to often but I wanted to tell everyone the good news I got today. I had been diagnosed with IPF in 07 . They found out I had ILD from Scleroderma and that I have Sjogrens and Raynauds and they are attacking all my organs. I was on Cytoxan for 5mo and got deathly sick at New Years . I was put on 02 24/7 and felt terrible for months. I had a ct scan done in June and the fibrosis is worse but I started Cellcept and several other meds for my heart. I was able to do the 6 min walk today slowly without 02 and my sat never went below 92, so I am hoping if I can lose some weight maybe it will improve my situation. On the home front my daughter, my son in law and then my son lost their jobs due to the economy. My son got a call from his old boss and he said he has been wanting him to work for him since he left . He is meeting him tomorrow for an interview to see if the job is something he would like. So please say a little prayer for all of them

toget a jobs . Now about SS I wasn't going to apply because here in the great state of Illinois it is routine for everyone to get turned down. My friends would nag me non stop so I finally went . It took about 2 hrs with all of my papers and they said I would know in Sept or Oct . This was the end of May . Well I will get my 1st check next month . There were some glitches in getting hospital records to them but it went rather smoothly . So I say try it . I'm sorry about the rambling but I am excited and exhausted. Welcome to all the newbies. I hope to make it to Chattanooga . ipf 2/07 IL

[Guest guest]

, so glad to hear your good news! Good for you doing the 6 min walk without O2! It looks like the treatment is working. I feel happy for you. How are your other internal organs doing? Joyce Rudy AZ birds

Disabilty andGood News

I don't post to often but I wanted to tell everyone the good news I got today. I had been diagnosed with IPF in 07 . They found out I had ILD from Scleroderma and that I have Sjogrens and Raynauds and they are attacking all my organs. I was on Cytoxan for 5mo and got deathly sick at New Years . I was put on 02 24/7 and felt terrible for months. I had a ct scan done in June and the fibrosis is worse but I started Cellcept and several other meds for my heart. I was able to do the 6 min walk today slowly without 02 and my sat never went below 92, so I am hoping if I can lose some weight maybe it will improve my situation. On the home front my daughter, my son in law and then my son lost their jobs due to the economy. My son got a call from his old boss and he said he has been wanting him to work for him since he left . He is meeting him tomorrow for an interview to see if the job is something he would like. So please say a little prayer for all of them toget a jobs . Now about SS I wasn't going to apply because here in the great state of Illinois it is routine for everyone to get turned down. My friends would nag me non stop so I finally went . It took about 2 hrs with all of my papers and they said I would know in Sept or Oct . This was the end of May . Well I will get my 1st check next month . There were some glitches in getting hospital records to them but it went rather smoothly . So I say try it . I'm sorry about the rambling but I am excited and exhausted. Welcome to all the newbies. I hope to make it to Chattanooga . ipf 2/07 IL

[Guest guest]

Hi karen ,

Congrats on all 3 pieces of 'good news'

Geeta

- In Breathe-Support , kiki boettin wrote:

>

> I don't post to often but I wanted to tell everyone the good news I got today.

I had been diagnosed with IPF in 07 . They found out I had ILD from Scleroderma

and that I have Sjogrens and Raynauds and they are attacking all my organs. I

was on Cytoxan for 5mo and got deathly sick at New Years . I was put on 02 24/7

and felt terrible for months. I had a ct scan done in June and the fibrosis is

worse but I started Cellcept and several other meds for my heart. I was able to

do the 6 min walk today slowly without 02 and my sat never went below 92, so I

am hoping if I can lose some weight maybe it will improve my situation. On the

home front my daughter, my son in law and then my son lost their jobs due to the

economy. My son got a call from his old boss and he said he has been wanting him

to work for him since he left . He is meeting him tomorrow for an interview to

see if the job is something he would like. So please say a little prayer for

all of them to

> get a jobs . Now about SS I wasn't going to apply because here in the great

state of Illinois it is routine for everyone to get turned down. My friends

would nag me non stop so I finally went . It took about 2 hrs with all of my

papers and they said I would know in Sept or Oct . This was the end of May .

Well I will get my 1st check next month . There were some glitches in getting

hospital records to them but it went rather smoothly . So I say try it . I'm

sorry about the rambling but I am excited and exhausted. Welcome to all the

newbies. I hope to make it to Chattanooga .

> ipf 2/07 IL

>