Re: LDN

[Guest guest]

> hi>> I would like to start ldn for my mum could our family GP perscribe it or > if not where could we obtain it from and how much dose should be enough > if somebody can point us in the right direction we would be thankfull. > we live in calgary canada>> thank you> kuljit mann>HI Kuljit,Yes, GPs can prescribe LDN -- but not all of them will.A normal adult dose (the highest dose anyone generally takes) is 4.5 mg.   (I take 4 mg for Crohn's, but I'm fairly drug-sensitive; my husband takes 4.5 mg for post-polio syndrome.If you were to join the Yahoo LDN list there's a person there who keeps a list of LDN-prescribing doctors. I'm pretty sure there's somebody from Calgary on that LDN list.You might ask on the list if there is. And ask about the list of doctors. Someone will point you to where you need to go to get that list.n -- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

I live in Edmonton. My doctor prescribed LDN for me last year. It was his suggestion. Now I'll be starting it again. I had it in pill form last year from a regular pharmacy. This time I'm getting it at a compounding pharmacy. He's a GP but works in the field of preventive/natural medicine. He may know of a doctor in Calgary. If you have difficulty, let me know. I might be able to get a number for you to call.

DarleneIntestinal Dysbiosis/CFSSCD 6 weeks

To: BTVC-SCD Sent: Tue, April 6, 2010 6:04:18 PMSubject: LDN

hiI would like to start ldn for my mum could our family GP perscribe it or if not where could we obtain it from and how much dose should be enough if somebody can point us in the right direction we would be thankfull. we live in calgary canada thank youkuljit mann

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[Guest guest]

Crystal keeps a list of LDN prescribing doctors by location. Here's her email:

angelindisguiseldn@...

Tamra in Gilroy

SCD day 33

LDN day 208

>

> hi

>

> I would like to start ldn for my mum could our family GP perscribe it or if

not where could we obtain it from and how much dose should be enough if

somebody can point us in the right direction we would be thankfull. we live in

calgary canada

>

> thank you

> kuljit mann

>

[Guest guest]

she has never responded to me. I've emailed her twice.

Misty

> >

> > hi

> >

> > I would like to start ldn for my mum could our family GP perscribe it or if

not where could we obtain it from and how much dose should be enough if

somebody can point us in the right direction we would be thankfull. we live in

calgary canada

> >

> > thank you

> > kuljit mann

> >

>

[Guest guest]

The clinical study at Penn State was using 4.5mg right from the start. Where is

the recommendation for the slow introduction coming from? Is it to check for

side effects or to find if a lower dosage does the work?

http://clinicaltrials.gov/ct2/show/NCT00663117

The results of the study are to be published early May.

Thanks,

>

>

> >I would like to start ldn for my mum could our

> >family GP perscribe it or if not where could we

> >obtain it from and how much dose should be

> >enough if somebody can point us in the right

> >direction we would be thankfull. we live in calgary canada

>

> LDN can be ordered from Skip's Pharmacy -- it has to be compounded.

>

> My understanding is that the recommended prescription is:

>

>

> 1.5 mg po X 30 days, (po= by mouth)

> 3.0 mg po X 30 days ,

> then 4.5 po thereafter with PRN in the refill space.

>

> The shipping is approx $5 no matter how many

> month supply you get. 3 months of 4.5mg w/ shipping runs around $60.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

At 07:23 AM 4/8/2010, you wrote:

The clinical study at Penn State

was using 4.5mg right from the start. Where is the recommendation for the

slow introduction coming from? Is it to check for side effects or to find

if a lower dosage does the work?

Some people get very vivid dreams as a result of regulating their systems

with the LDN. Others find that they have a bit of trouble sleeping

initially.

By starting with the 1.5, you give the system a chance to accustom

itself.

Plus, if you take it for a week, and don't have the dreams or sleep

issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0

for 4.5, and not have wasted meds.

It's a classic " start low and slow, " kind of like the way we

introduce yogurt or even new foods, and generally works well for most

people.

Mind you, some can dive into the 4.5 right away.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

> The clinical study at Penn State was using 4.5mg right from the start. > Where is the recommendation for the slow introduction coming from? It's been advised a number of times on the Yahoo LDN list, based on people's experience. BUT that advice is almost exclusively for people with MS, who seem to do better starting at a lower dose and working up. It doesn't generally apply to people with IBDs. That said, I do better on 4 mg than 4.5 because I'm generally drug sensitive. But I started at 4.5 mg, and later cut back to 4 mg. n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

> Can anyone comment on exactly what happens if one takes LDN and has an > unknown yeast issue?>> Amelia>Nothing "bad," as such. Yeast simply makes the LDN much less effective; or -- depending on how bad your yeast infestation is -- not effective at all.Which is why you need to get rid of the yeast problem first.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

Can anyone comment on exactly what happens if one takes LDN and has an unknown yeast issue?AmeliaTo: BTVC-SCD Sent: Thu, April 8, 2010 5:21:19 PMSubject: Re: Re: LDN

At 07:23 AM 4/8/2010, you wrote:

The clinical study at Penn State

was using 4.5mg right from the start. Where is the recommendation for the

slow introduction coming from? Is it to check for side effects or to find

if a lower dosage does the work?

Some people get very vivid dreams as a result of regulating their systems

with the LDN. Others find that they have a bit of trouble sleeping

initially.

By starting with the 1.5, you give the system a chance to accustom

itself.

Plus, if you take it for a week, and don't have the dreams or sleep

issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0

for 4.5, and not have wasted meds.

It's a classic "start low and slow," kind of like the way we

introduce yogurt or even new foods, and generally works well for most

people.

Mind you, some can dive into the 4.5 right away.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

, I started LDN very low because I always have to sneak into meds as

I have so many problems with them. Not sure it was absolutely necessary

with the LDN but it seemed safer, so I will continue to sneak it up to

4.5 or whatever turns out to be my dose.

The clinical study at Penn State was using 4.5mg right from the

start. Where is the recommendation for the slow introduction coming from?

Is it to check for side effects or to find if a lower dosage does the

work?

[Guest guest]

As usual, not everyone is the same.  I have been taking it almost exactly a month.  I am now back down to .2 ml (if .5 is 1.5 mg-I dropped it back to .2 on the syringe and yes, math is my strong point ha ha).

 

I did not do well except I stopped having lucid/nightmares/sweats and sleep well for the most part.  If I don't, it's because of some other reason.  I do have gallstones and other issues that start acting up pretty bad and at the much lower dose, they don't bother me.  I also have a lot of fatigue over 2.25mg.

 

Any unknown issue seems to pop up in my one month experience.

 

Debbie 40 cd

 

Can anyone comment on exactly what happens if one takes LDN and has an unknown yeast issue?Amelia

To: BTVC-SCD Sent: Thu, April 8, 2010 5:21:19 PM

Subject: Re: Re: LDN

 

At 07:23 AM 4/8/2010, you wrote:

The clinical study at Penn State was using 4.5mg right from the start. Where is the recommendation for the slow introduction coming from? Is it to check for side effects or to find if a lower dosage does the work?

Some people get very vivid dreams as a result of regulating their systems with the LDN. Others find that they have a bit of trouble sleeping initially.By starting with the 1.5, you give the system a chance to accustom itself.

Plus, if you take it for a week, and don't have the dreams or sleep issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0 for 4.5, and not have wasted meds. It's a classic " start low and slow, " kind of like the way we introduce yogurt or even new foods, and generally works well for most people.

Mind you, some can dive into the 4.5 right away.

— Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook

    No Human Children    Shadow & Sunny Longhair Dachshund     Babette the Foundling Beagle       

[Guest guest]

n,DH isn't convinced that he has a yeast problem but he has had this 'rash' with irritated, flaky, red/purple skin around his eyes and very flaky scalp on the sides of his head. The dr. gave him steroid and anti-fungal cream which helped up to a point and he is managing o.k. with just a moisturizer now. He has some bum itching too as well as a very big sweet tooth. He eats at least 1-2 banana a day and likes to add honey to most snacks. He stopped the s. boulardii because he thought it contributed to the rash on his face. He is now taking acidolphilus caps and recently stopped the LDN and says his face is looking slightly better. Just wondered if LDN could cause yeast to flare in the skin this way. I just got the results of some of his blood tests

and his neutrophils were abnormally low. In fact, if he had been on 6MP they would have told him to stop until they came up a bit. Very confusing because I thought the LDN was supposed to help the immune system and he has been taking it since late December (3 mg) and recently upped his dose to 4.5mg.Any insight?AmeliaTo: BTVC-SCD Sent: Thu, April 8, 2010 7:18:12 PMSubject: Re: Re: LDN

> Can anyone comment on exactly what happens if one takes LDN and has an > unknown yeast issue?>> Amelia>Nothing "bad," as such. Yeast simply makes the LDN much less effective; or -- depending on how bad your yeast infestation is -- not effective at all.Which is why you need to get rid of the yeast problem first.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

> As usual, not everyone is the same. I have been taking it almost > exactly a month. I am now back down to .2 ml (if .5 is 1.5 mg-I dropped it back  > to .2 on the syringe and yes, math is my strong point ha ha).>> I did not do well except I stopped having lucid/nightmares/sweats and > sleep well for the most part. If I don't, it's because of some other reason.  > I do have gallstones and other issues that start acting up pretty bad and  > at the much lower dose, they don't bother me. I also have a lot of fatigue> over 2.25mg.>> Any unknown issue seems to pop up in my one month experience.>> Debbie 40 cdUnderlying issues with one's immune system will come to the surface when you start LDN. For some people that gets sorted out very quickly. For others it can take quite a while; and of course it depends on how much the immune system has been compromised. One month, of course, isn't a long time, and for most people it takes far longer to get to a "maintaining" level.  I'm surprised that you can even feel .2 ml at all.Interesting about your fatigue. ON the 5th day I took LDN my fatigue just simply vanished and I felt a surge of energy like I've almost never felt in my life. That was 14 months ago, and while I've had moments of serious tiredness since then, my terrible fatigue has never returned.n-- Now available. A fine gift for cat lovers:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; signed copies; free shipping in U.S., reduced shipping elsewhere

[Guest guest]

> n,>> DH isn't convinced that he has a yeast problem but he has had this > 'rash' with irritated, flaky, red/purple skin around his eyes and very > flaky scalp on the sides of his head. The dr. gave him steroid and > anti-fungal cream which helped up to a point and he is managing o.k. > with just a moisturizer now. He has some bum itching too as well as a > very big sweet tooth. He eats at least 1-2 banana a day and likes to > add honey to most snacks. He stopped the s. boulardii because he > thought it contributed to the rash on his face. He is now taking > acidolphilus caps and recently stopped the LDN and says his face is > looking slightly better. Just wondered if LDN could cause yeast to > flare in the skin this way. I just got the results of some of his blood > tests and his neutrophils were abnormally low. In fact, if he had been > on 6MP they would have told him to stop until they came up a bit. Very > confusing because I thought the LDN was supposed to help the immune> system and he has been taking it since late December (3 mg) and > recently upped his dose to 4.5mg.>> Any insight?>> AmeliaI don't think it's the LDN, as such, that's causing the rash, etc. It's the readjusting of the immune system -- which of course LDN initiates.I had something similar a few months into taking LDN. Mine was mostly on my face and itched like the blazes; also had the dry, scaly, peeling skin, and slight swelling under my eyes. I did a lot of inquiring about it on several LDN lists and finally decided, based on what people told me, and other people's experience, that what was happening was my body wanted to get rid of toxins -- spurred by the LDN -- but couldn't excrete them fast enough via urine and BMS, so they started coming out my skin, and they'll come out often where the skin is relatively thin and tender.I had another bout of it, on a much milder scale, just recently. Interestingly, I knew I hadn't been drinking enough water. I could feel it. And that's what happened.I bought umpteen medicated creams, got steroid cream from my doctor, and none of it worked very well at all. What did/does work amazingly is pure, UNREFINED coconut oil -- the edible kind, not stuff made up for cosmetic use. Just have him slather it on his face, rectum, wherever the rash and/or itchiness is. And do it three or four times a day, or however often is possible. And of course, before bed.If I were he, I'd definitely restart the S. boulardii (though since it does kill some bad yeast and the body has to get rid of that, there may be a bit of die-off from it; but one needs that probiotic, and the body will adjust); and resume taking the LDN too. But drink tons of water at the same time.His body will need some time to adjust to what the LDN is doing. It's not at all uncommon for such things to happen at first as the immune system begins to sort of "reset" itself.It will -- and this WILL pass -- but it's a pain in the b**t in the meantime (possibly literally). :-) n> ________________________________> > To: BTVC-SCD > Sent: Thu, April 8, 2010 7:18:12 PM> Subject: Re: Re: LDN>>> >>> Can anyone comment on exactly what happens if one takes LDN and has an>> unknown yeast issue?>>>> Amelia>>>>> Nothing "bad," as such. Yeast simply makes the LDN much less effective; > or -- depending on how bad your yeast infestation is -- not effective at > all.> Which is why you need to get rid of the yeast problem first.>> n>>-- ______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

In my case, when I restarted this November, it justwasn't (as) efficacious as it had been. So I startedbeing effected by more things that previously Iwould not have been effected by or that I would havethrown off quickly. But this no longer happened. But since I was expecting it not to work as well as it had been, and since I was transitioning, ittook me longer than it should have, perhaps, torealize that it wasn't working as well and thatyeast could be a cause. MaraCan anyone comment on exactly what happens if one takes LDN and has an unknown yeast issue?AmeliaTo: BTVC-SCD Sent: Thu, April 8, 2010 5:21:19 PMSubject: Re: Re: LDNAt 07:23 AM 4/8/2010, you wrote:The clinical study at Penn State was using 4.5mg right from the start. Where is the recommendation for the slow introduction coming from? Is it to check for side effects or to find if a lower dosage does the work?Some people get very vivid dreams as a result of regulating their systems with the LDN. Others find that they have a bit of trouble sleeping initially.By starting with the 1.5, you give the system a chance to accustom itself. Plus, if you take it for a week, and don't have the dreams or sleep issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0 for 4.5, and not have wasted meds. It's a classic "start low and slow," kind of like the way we introduce yogurt or even new foods, and generally works well for most people.Mind you, some can dive into the 4.5 right away. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle

[Guest guest]

At 03:23 PM 4/8/2010, you wrote:

it wasn't working as well and

that yeast could be a cause.

Just for curiosity's sake, since s. boulardii is a yeast, does LDN and s.

boulardii argue? Or get along?

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

Babette the Foundling Beagle

[Guest guest]

> As usual, not everyone is the same. I have been taking it almost > exactly a month. I am now back down to .2 ml (if .5 is 1.5 mg-I dropped it back > to .2 on the syringe and yes, math is my strong point ha ha).>> I did not do well except I stopped having lucid/nightmares/sweats and > sleep well for the most part. If I don't, it's because of some other reason. > I do have gallstones and other issues that start acting up pretty bad and > at the much lower dose, they don't bother me. I also have a lot of fatigue> over 2.25mg.>> Any unknown issue seems to pop up in my one month experience.>Didn't you say on the other list that it was also working becausesome pains you've had in your hands just went away, which isprecisely what LDN does first for some people - banish pain.I can take a while for its effects to manifest fully, especially on thelower dose.Mara

[Guest guest]

Yes Mara, my hands, back, bottoms of my feet, etc. do not *lock* up and do not hurt like they were.  I totally forgot until I skipped the three days and it came back.  I keep threatening myself to try to crochet something (maybe later).

 

I do think it's some underlying problems like yeast (I'm positive on that) need to be worked out.  I think the eye problem needs to be addressed.

 

As far as a tiny dose like that--yeah, I chip up phenergan also.  I'm going to keep going with it.  I started S. B(sp?> at the same time.  I stopped it daily since it works pretty well.  I just can't get ahead of myself so it works for now at this dose.

 

It's going to get better.

Debbie 40 cd 

 

Didn't you say on the other list that it was also working because

some pains you've had in your hands just went away, which is

precisely what LDN does first for some people - banish pain.

I can take a while for its effects to manifest fully, especially on the

lower dose.

Mara

[Guest guest]

Hope this helps!

" Some Additional Thoughts from Dr. Jaquelyn McCandless "

" There is a phenomenon that happens to some people that as the immune system is

shifting (usually from T2 to T1) right after starting LDN, the immune system

drops and people get an infection, cold, flu, cold sore, etc. which is usually

short lived. Candida tends to overgrow or a virus will flare up. These

infections are usually short-lived unless something like candida and gut

bacteria needs treatment. "

Half way down this page: http://www.ldn-for-ms.com/expect.html

Tamra in Gilroy

SCD Day 35

LDN Day 210

>

> The clinical study at Penn State

> >was using 4.5mg right from the start. Where is the recommendation for the

> >slow introduction coming from? Is it to check for side effects or to find

> >if a lower dosage does the work?

> Some people get very vivid dreams as a result of regulating their systems

> with the LDN. Others find that they have a bit of trouble sleeping

> initially.

>

> By starting with the 1.5, you give the system a chance to accustom

> itself.

>

> Plus, if you take it for a week, and don't have the dreams or sleep

> issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0

> for 4.5, and not have wasted meds.

>

> It's a classic " start low and slow, " kind of like the way we

> introduce yogurt or even new foods, and generally works well for most

> people.

>

> Mind you, some can dive into the 4.5 right away.

>

>

> †" Marilyn

> New

> Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

On Thu, 08 Apr 2010 17:46:15 -0300, Wizop Marilyn L. Alm wrote:> At 03:23 PM 4/8/2010, you wrote:>> it wasn't working as well and that yeast could be a cause.>> Just for curiosity's sake, since s. boulardii is> a yeast, does LDN and s. boulardii argue? Or get along?>>> — MarilynI take both and they work well together for me. The S. boulardii clearly helps my gut, and the LDN does too, in the process of regulating the immune system. LDN is affected by Candida, but apparently not by all yeasts. There are people on LDN for Crohn's who are not on yeast-free diets (i.e., they eat regular bread) and it helps them as well.n______________________________A funny, touching gift book for cat lovers. Signed copies, free shipping (U.S., reduced elsewhere): Confessions of  a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com  

[Guest guest]

All,Thanks for all the helpful info. I definitely think the yeast is the problem and since he is in the early days of using LDN, it is probably what is causing the skin flare and the dip in his neutrophils. AmeliaTo: BTVC-SCD Sent: Fri, April 9, 2010 4:14:14 PMSubject: Re: LDN

Hope this helps!

"Some Additional Thoughts from Dr. Jaquelyn McCandless"

"There is a phenomenon that happens to some people that as the immune system is shifting (usually from T2 to T1) right after starting LDN, the immune system drops and people get an infection, cold, flu, cold sore, etc. which is usually short lived. Candida tends to overgrow or a virus will flare up. These infections are usually short-lived unless something like candida and gut bacteria needs treatment."

Half way down this page: http://www.ldn-for-ms.com/expect.html

Tamra in Gilroy

SCD Day 35

LDN Day 210

>

> The clinical study at Penn State

> >was using 4.5mg right from the start. Where is the recommendation for the

> >slow introduction coming from? Is it to check for side effects or to find

> >if a lower dosage does the work?

> Some people get very vivid dreams as a result of regulating their systems

> with the LDN. Others find that they have a bit of trouble sleeping

> initially.

>

> By starting with the 1.5, you give the system a chance to accustom

> itself.

>

> Plus, if you take it for a week, and don't have the dreams or sleep

> issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0

> for 4.5, and not have wasted meds.

>

> It's a classic "start low and slow," kind of like the way we

> introduce yogurt or even new foods, and generally works well for most

> people.

>

> Mind you, some can dive into the 4.5 right away.

>

>

> â€" Marilyn

> New

> Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

[Guest guest]

I don't think it's supposed to effect your liver enzymes at such low doses. I

have seen PubMed articles that show it did not raise them, even when people had

hepatitis. I think it only bothers the levels if you are taking the naltrexone

in large amounts, like 300 mg, for addiction or alcoholism.

I hope it doesn't mess the liver enzymes up. That is one of the reasons I want

to start the LDN - for my autoimmune hepatitis (not to mention the Crohn's/UC).

How high are your ast, alt, and alkaline phosphotase? Mine started going sky

high after being on Remicade and TPN for 4 months. After the ultrasound, which

was normal, I got a liver biopsy and they determined it was autoimmune hepatitis

(which may have been drug-induced from Remicade or years of others like 6-MP). I

had to start at 40 mg of prednisone in November 2008, and work my way down to 10

mg now. I was at 5 mg a few months ago but my numbers jumped. I've read that the

LDN can actually be good for hepatis and AI hep.

Let us know...

Caroline

SCD since 1/7/10

UC/Crohns since 1999

AI Hepatitis since 10/2008

Remicade since 6/2008

> I wonder if it can do something to your liver enzymes? After almost 3 months

of LDN, my liver enzymes are sky high. I had to have an abdominal ultrasound,

and my doc has ordered about every liver related blood test known to man.

>

> Holly

> Crohn's

> SCD 12/01/08

[Guest guest]

>

>

>

>> I wonder if it can do something to your liver enzymes? After almost 3 months

of LDN, my liver enzymes are sky high. I had to have an abdominal ultrasound,

and my doc has ordered about every liver related blood test known to man.

That's probably die off - that's what effects your liver enzymes like that.

Didn't you just say you were having a lot of die off?

Mara

[Guest guest]

were you on diflucan? that can do it too -sorry to hear

eileen

> > >

> > > The clinical study at Penn State

> > > >was using 4.5mg right from the start. Where is the recommendation for the

> > > >slow introduction coming from? Is it to check for side effects or to find

> > > >if a lower dosage does the work?

> > > Some people get very vivid dreams as a result of regulating their systems

> > > with the LDN. Others find that they have a bit of trouble sleeping

> > > initially.

> > >

> > > By starting with the 1.5, you give the system a chance to accustom

> > > itself.

> > >

> > > Plus, if you take it for a week, and don't have the dreams or sleep

> > > issues, you can move to 3.0 for a week, lthen combine the 1.5 and the 3.0

> > > for 4.5, and not have wasted meds.

> > >

> > > It's a classic " start low and slow, " kind of like the way we

> > > introduce yogurt or even new foods, and generally works well for most

> > > people.

> > >

> > > Mind you, some can dive into the 4.5 right away.

> > >

> > >

> > > †" Marilyn

> > > New

> > > Orleans, Louisiana, USA

> > > Undiagnosed IBS since 1976, SCD since 2001

> > > Darn Good SCD Cook

> > > No Human Children

> > > Shadow & Sunny Longhair Dachshund

> > > Babette the Foundling Beagle

> > >

> >

>

[Guest guest]

Hi Holly,

What dose of LDN are you taking, 4.5 mg? LDN worked really well for me for

almost 3 months and I felt great. Then it mysteriously stopped working in late

December. A couple weeks ago I took a 5 day break from LDN and then dropped

down to 3.0 mg. Haven't had a response yet, but it took a month to get relief

last time I started taking it. I've read that if the LDN dose is too high it can

cause a buildup in the liver and also won't work as effectively. If lowering the

dose doesn't help some people will skip a night or two each week.

Tamra in Gilroy

SCD Day 36

LDN Day 211

>

> I wonder if it can do something to your liver enzymes? After almost 3 months

of LDN, my liver enzymes are sky high. I had to have an abdominal ultrasound,

and my doc has ordered about every liver related blood test known to man.

>

> Holly

> Crohn's

> SCD 12/01/08

>