Re: LDN

[Guest guest]

That's really interesting Caroline! I just found out my ultrasound was normal

too, and will have more blood work Monday. I've had a lot of immunosuppressants

too, and worry they may have mucked up my liver.

Mara, the blood test was before I dropped my carbs, so it shouldn't have been

effected by die-off (but you never know). I've been having a lot of gut issues

lately, much more so with LDN then I ever had before it. Probably a coincidence,

but I don't know. I no longer tolerate some foods that were fine since day 1 of

the diet, and am having trouble with late evening bloating. Last night, I had my

usual cup of yogurt and cup of tea, but I was barely into the tea when I bloated

up. Usually I glurk and glurk and the bloating goes away, but this time all

bowel sounds stopped and I had pains all night. I even had pains throughout the

whole day, even though I only ate a cup of yogurt. I wonder if a funked up liver

can mess up one's gut? I'm baffled at my gut's decline over the last couple

months, as nothing has really changed (only the addition of milk thistle on and

off the last couple weeks). My GI will blame it on my stopping Humira I'm sure

(she doesn't know that I stopped taking it last September).

Eileen, nope, I don't take diflucan. I used to take some natural yeast killers,

but stopped at around the beginning of March.

Tamra, I take 3 mg of LDN. I tried taking 4.5 mg, but it made me super fatigued.

I've been at 3 mg for about 2.5 months.

Thanks for all your insight!

Holly

Crohn's

SCD 12/01/08

Crohn's

SCD 12

>

> I don't think it's supposed to effect your liver enzymes at such low doses. I

have seen PubMed articles that show it did not raise them, even when people had

hepatitis. I think it only bothers the levels if you are taking the naltrexone

in large amounts, like 300 mg, for addiction or alcoholism.

> I hope it doesn't mess the liver enzymes up. That is one of the reasons I want

to start the LDN - for my autoimmune hepatitis (not to mention the Crohn's/UC).

How high are your ast, alt, and alkaline phosphotase? Mine started going sky

high after being on Remicade and TPN for 4 months. After the ultrasound, which

was normal, I got a liver biopsy and they determined it was autoimmune hepatitis

(which may have been drug-induced from Remicade or years of others like 6-MP). I

had to start at 40 mg of prednisone in November 2008, and work my way down to 10

mg now. I was at 5 mg a few months ago but my numbers jumped. I've read that the

LDN can actually be good for hepatis and AI hep.

> Let us know...

>

> Caroline

> SCD since 1/7/10

> UC/Crohns since 1999

> AI Hepatitis since 10/2008

> Remicade since 6/2008

>

>

> > I wonder if it can do something to your liver enzymes? After almost 3 months

of LDN, my liver enzymes are sky high. I had to have an abdominal ultrasound,

and my doc has ordered about every liver related blood test known to man.

> >

> > Holly

> > Crohn's

> > SCD 12/01/08

>

[Guest guest]

Hi Holly

Glad the ultrasound was good. Read this

http://www.medhelp.org/posts/Gastroenterology/elevated-liver-enzymes/show/233780

It is very unlikely that it is the LDN.

Sky

To: BTVC-SCD Sent: Sun, 11 April, 2010 4:08:47 PMSubject: Re: LDN

That's really interesting Caroline! I just found out my ultrasound was normal too, and will have more blood work Monday. I've had a lot of immunosuppressants too, and worry they may have mucked up my liver.

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[Guest guest]

nThank you so much for that response! It was just what I was looking for. I think the info will reassure him in some respects. Could you tell me about how long it took you to recover from the first rash? This has actually been building since about early Jan. It became pretty bad and then seemed to stabilize to a lesser level and remained fairly constant and mostly manageable since then with only small, mostly short lived increases in severity. It hasn't kept him in the house/away from work, but it has made him feel a bit conspicuous.Amelia" I don't think it's the

LDN, as such, that's causing the rash, etc. It's the readjusting of the immune system -- which of course LDN initiates.I had something similar a few months into taking LDN. Mine was mostly on my face and itched like the blazes; also had the dry, scaly, peeling skin, and slight swelling under my eyes. I did a lot of inquiring about it on several LDN lists and finally decided, based on what people told me, and other people's experience, that what was happening was my body wanted to get rid of toxins -- spurred by the LDN -- but couldn't excrete them fast enough via urine and BMS, so they started coming out my skin, and they'll come out often where the skin is relatively thin and tender.I had another bout of it, on a much milder scale, just recently. Interestingly, I knew I hadn't been drinking enough water. I could feel it. And that's what happened.I

bought umpteen medicated creams, got steroid cream from my doctor, and none of it worked very well at all. What did/does work amazingly is pure, UNREFINED coconut oil -- the edible kind, not stuff made up for cosmetic use. Just have him slather it on his face, rectum, wherever the rash and/or itchiness is. And do it three or four times a day, or however often is possible. And of course, before bed.If I were he, I'd definitely restart the S. boulardii (though since it does kill some bad yeast and the body has to get rid of that, there may be a bit of die-off from it; but one needs that probiotic, and the body will adjust); and resume taking the LDN too. But drink tons of water at the same time.His body will need some time to adjust to what the LDN is doing. It's not at all uncommon for such things to happen at first as the immune system begins to sort of "reset" itself.It will -- and this WILL

pass -- but it's a pain in the b**t in the meantime (possibly literally). :-) n"

[Guest guest]

Hi

I have posted the question of LDN longtime ago i wanted to put my mum on it and tried to persuade my GP to write a prescription but he wouldnt as you mentioned you might be able to get a number for me who can prescribe it in calgary or if your GP is willing to do it for us i dont even mind travelling to edmonton

thank you

kuljit s mann

Subject: Re: LDNTo: BTVC-SCD Received: Wednesday, April 7, 2010, 9:54 AM

I live in Edmonton. My doctor prescribed LDN for me last year. It was his suggestion. Now I'll be starting it again. I had it in pill form last year from a regular pharmacy. This time I'm getting it at a compounding pharmacy. He's a GP but works in the field of preventive/natural medicine. He may know of a doctor in Calgary. If you have difficulty, let me know. I might be able to get a number for you to call.

DarleneIntestinal Dysbiosis/CFSSCD 6 weeks

From: kuljitmann <kuljitmann (AT) yahoo (DOT) ca>To: BTVC-SCD@yahoogroup s.comSent: Tue, April 6, 2010 6:04:18 PMSubject: LDN

hiI would like to start ldn for my mum could our family GP perscribe it or if not where could we obtain it from and how much dose should be enough if somebody can point us in the right direction we would be thankfull. we live in calgary canada thank youkuljit mann

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