Emerence 2 yr appt - so so

[Guest guest]

Hi,

Emerence had her 2 year checkup tonight...I really had a goal of her

hitting 20 lbs by 2 years but she is still 19 lb 11 oz. Her height,

which the dr and I both think could be off (laying down on paper) is

31 " which all of a sudden puts her at 3% for height. HOWEVER, the

weight didn't really move over the past 2 months. DR. H told us last

summer to try and keep her at 15% height for weight but now we are at

3% ht/wt. And she is an eater. We'll confirm at the endo's next

week.

Unfortunately, one of her ear tubes also seems to be coming out

again - she just had an ear infection last week and the dr. thinks it

is extruding. SIGH. We see the ENT in 2 weeks so we will pursue this

then. We might be up for her 3rd set of tubes...

The dr. got her DVDs and actually had a high school student working

with her (who wants to be a dr.) and is taking the dvds home to

study! Wow!

Also, I made 10 copies of the convention info and left them with her

and she has sevearl patients who she can recommend this to and knows

several of the other drs. have kids with other MAGIC syndromes. I

have also emailed the info to Emme's other drs. to have on hand.

Have a good night!

, mom to 5 and Emerence, 2, 19 lb 11 oz, 31 " ?

[Guest guest]

hi megan!!

sorry to hear emerence's appt didnt go as well as you had hoped!!

have you thought about using periactin? maybe this would help her

with her catch up growth, it did wonders for christopher and many

others. glad to see that your dr has taken such an interest in

learning more about rss and magic!! ((HUGS))

jodie c

(nicholas-6 1/2 nonrss, christopher-4 rss 27lbs 6oz 36 1/4 "

periactin 4.5 cc, ght genotropin .5, assmentry(left side 1cm), ADHD

and OCD possible, johnathon-20m nonrss)

[Guest guest]

I know the feeling...Dalia had a checkup a while back where she

hadn't gained anything in like 1.5 months...so then we started

Periactin and it made a huge difference up front. I had to stop it

for a week and then start it up again because it wears off and you

have to give it a break. This was our experience.

Anyway, hang in there, it will get better.

Don't you just look at her though and think how smart and cute she

is. That helps for me with Dalia.

Take Care,

Sheryl

>

> Hi,

>

> Emerence had her 2 year checkup tonight...I really had a goal of

her

> hitting 20 lbs by 2 years but she is still 19 lb 11 oz. Her

height,

> which the dr and I both think could be off (laying down on paper)

is

> 31 " which all of a sudden puts her at 3% for height. HOWEVER,

the

> weight didn't really move over the past 2 months. DR. H told us

last

> summer to try and keep her at 15% height for weight but now we are

at

> 3% ht/wt. And she is an eater. We'll confirm at the endo's next

> week.

>

> Unfortunately, one of her ear tubes also seems to be coming out

> again - she just had an ear infection last week and the dr. thinks

it

> is extruding. SIGH. We see the ENT in 2 weeks so we will pursue

this

> then. We might be up for her 3rd set of tubes...

>

> The dr. got her DVDs and actually had a high school student

working

> with her (who wants to be a dr.) and is taking the dvds home to

> study! Wow!

>

> Also, I made 10 copies of the convention info and left them with

her

> and she has sevearl patients who she can recommend this to and

knows

> several of the other drs. have kids with other MAGIC syndromes. I

> have also emailed the info to Emme's other drs. to have on hand.

>

> Have a good night!

>

> , mom to 5 and Emerence, 2, 19 lb 11 oz, 31 " ?

[Guest guest]

-

So sorry your appt did turn out as expected. I hoped Pippin would be

20lbs by age to but were stuck at 18lbs. I just keep thinking about

how much I'm saving on diapers! I'll never have to buy size 6 or

probably even size 5 I hope your next appt at the endo goes

better. Hang in there!

What a great idea about copying convention info to doctors...I'm

going to do that and send it to Pip's endo. I can't believe that

there isn't another RSS family more local.

Team Lapish

Jenyfer, Dan, Tully, Pippin, and the boy-Ryker

[Guest guest]

I know, I just thought, hoped, prayed, 20 seems like such a big goal

to accomplish! How is Pippin doing on potty training or is she

already done? We sat at the same bingo table so I remember that

Pippin is a bit older.

, mom to 5 and Emerence 2, SGA, poss mild RSS, 19 lb 11

oz, 31 "

>

> -

>

> So sorry your appt did turn out as expected. I hoped Pippin would

be

> 20lbs by age to but were stuck at 18lbs. I just keep thinking

about

> how much I'm saving on diapers! I'll never have to buy size 6 or

> probably even size 5 I hope your next appt at the endo goes

> better. Hang in there!

>

> What a great idea about copying convention info to doctors...I'm

> going to do that and send it to Pip's endo. I can't believe that

> there isn't another RSS family more local.

>

> Team Lapish

> Jenyfer, Dan, Tully, Pippin, and the boy-Ryker

[Guest guest]

- so sorry that you didn't meet the goal. I know I have the same goal as

you - to reach 20# by age 2. I am looking forward to her sitting forwards in

the car seat!

Jane, mom to - 17 months, 16# and 28 " . Periactin and Zantac.