Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 I have found that part of this disease seems to have nothing to do with the physical aspects. There is defiantly a learning curve with this disease. I was DX in 06 and went thru the process of learning all I could and what I was looking at down the road. Three years and two Docs’ later I learned that prednisone was NOT for me I am still trying to get off that #@#P just in the last 2 months I am on the board learning how to deal with o2. This week starts the learning process of trying to figure out Disability and Medical insurance. I wish my doc would read the postings from the last year and get up to speed and learn what is really going on from the people that live with this everyday and not have some ideology out of a book. Just the responses about the real life situations of SSID have helped. I have looked and there seems to be no other place that I can find to get the information about the “real†side of applying for SSID. I am not sure what my next Issue is or will be? but I know will be on the board looking for direction ? So Again thanks to all, for sharing your experiences, thoughts and solutions. Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Quote Link to comment Share on other sites More sharing options...
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