Re: Looking for RSS families in Chicago area and other feedback

[Guest guest]

Hi girl! Email Katy at rss2katy@ hotmail.com. She should be able

to connect you with RSS families in Illinois. Ask her to connect

you with the Holec family who just moved to Washington but used to

live in IL. THere are a handful of others who I am sure have great

feedback. Part of being a member of MAGIC is being able to network

with the other families. I think it is great that you are doing all

the research prior to a move. Jenn

>

> All,

>

> It has been a while since i have posted. I am mom to Deianira; a 9

> year old RSS girl. For those that know us - -she is doing GREAT!

We

> are going to NY to see Dr. H at the end of April and she is

FINALLY

> out of a carseat. In the last 6 months she has gone from a

whopping

> 31 pounds to 47! She looks much better and is doing good in

school.

> She cannot WAIT to go to the convention this year!

>

> As for me, it is a little nuts. I am working full time, in college

> full time (with 9 classes to go until grad!) and taking care of my

> wonderful 5 kids. Needless to say, I mostly have just enough time

to

> check in here and read a few of the latest postings.

>

> We are considering moving to a place around the Chicago area and I

> have some questions about Illinois.

>

> Are there programs in Illinois that assist with the

costs

> for children with disabilities? (in Ohio we have BCMH which pays

for

> anything that my insurance does not cover...this is not the same

as

> the medical card and the income guidelines are different, it is

> issued from the Bureau of Children with Medical Handicaps)

>

> Does anyone have Aetna Health Insurance and does it

cover

> Genetropin?

>

> Are there any other state guidelines that would be

helpful

> for me to know?

>

> Thanks for always being here!

> Sincerely,

> Danita Frizzell

[Guest guest]

hey danita!!

that is such great news about deianira!!!! can't wait to see you at

convention!!

jodie c

[Guest guest]

Danita,

My name is Chavez and I live about 30 mins. outside of Chicago. I

can't really help by answering the questions, but I am more than willing to

try and assist you in some other way. We don't have Aetna, we have a

different insurance carrier, but whatever they didn't cover of our genotropin

the

assistance program did. So we didn't have to pay anything. Sorry I couldn't

be of more help, but let me know if there is something else that i can do.

Chavez

mom to , 7, non-RSS, and Christian, 4, RSS, Zantac and Periactin

[Guest guest]

Thanks for the info ...We are targeting

Bloomington, IL. What assistance program are you

refering to?

--- rssmom2@... wrote:

> Danita,

> My name is Chavez and I live about 30

> mins. outside of Chicago. I

> can't really help by answering the questions,

> but I am more than willing to

> try and assist you in some other way. We don't

> have Aetna, we have a

> different insurance carrier, but whatever they

> didn't cover of our genotropin the

> assistance program did. So we didn't have to

> pay anything. Sorry I couldn't

> be of more help, but let me know if there is

> something else that i can do.

>

> Chavez

> mom to , 7, non-RSS, and Christian, 4,

> RSS, Zantac and Periactin

>

>

> [Non-text portions of this message have been

> removed]

>

>

Bless you,

Danita

Mom of Cory, (11 years, Tourette's Syndrome, Childhood Migraines, non-RSS),

(11 years, non-RSS), Deianira (9 years, IUGR, RSS, 34 lbs), (7

years, Asthma, Corrected Hirschsprung's Disease, non-RSS), Blaine (2 years, HSP

- Henoch-Schoenlein Purpura, Asthma, non-RSS)

__________________________________________________

[Guest guest]

danita,

it is good to hear your daughter is doing well. i also live in illinois. i live

about 30 min outside of st.louis. about 5 hours from chicago. but only about 2

hours from bloomington. i also don't have any knowlage of the other type of

programs you have in your area. but if i can help in any other way. who know's

it looks like you would be about the same distance from st.louis as chicado it

you would like to chat about the doctors there,

cara mom to jacob

Danita Frizzell wrote:

Thanks for the info ...We are targeting

Bloomington, IL. What assistance program are you

refering to?

--- rssmom2@... wrote:

> Danita,

> My name is Chavez and I live about 30

> mins. outside of Chicago. I

> can't really help by answering the questions,

> but I am more than willing to

> try and assist you in some other way. We don't

> have Aetna, we have a

> different insurance carrier, but whatever they

> didn't cover of our genotropin the

> assistance program did. So we didn't have to

> pay anything. Sorry I couldn't

> be of more help, but let me know if there is

> something else that i can do.

>

> Chavez

> mom to , 7, non-RSS, and Christian, 4,

> RSS, Zantac and Periactin

>

>

> [Non-text portions of this message have been

> removed]

>

>

Bless you,

Danita

Mom of Cory, (11 years, Tourette's Syndrome, Childhood Migraines, non-RSS),

(11 years, non-RSS), Deianira (9 years, IUGR, RSS, 34 lbs), (7

years, Asthma, Corrected Hirschsprung's Disease, non-RSS), Blaine (2 years, HSP

- Henoch-Schoenlein Purpura, Asthma, non-RSS)

__________________________________________________