Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 My son with autism has been experiencing pain when urinating we finally seen the urologist yesterday and he is having a test done called a V.C.U.G. where they will squirt a liquid up into my GFCF child and take pictures to see how his urinary track is working. Does anyone know if this liquid is G.F.C.F.or not? The hospital won't tell us and they won't tell us the name either any help will be appreciated. if they don't let us know or let us see the ingredients we will not let this be done. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 I think you should absolutely demand to know what the ingredients are. It is your child after all and you have every right to know!!...I would explain this to them and inform them you will go elsewhere if they are not more cooperative and helpful. Situations like this make me very angry as I remember all the doctors who told us we didn't know what we were talking about and seemed to think we were psycho's...It shouldn't be this way. All we have to go through, we shouldn't have to fight the doctors as well. GRRR...LOL...Good Luck, ot urologist visit My son with autism has been experiencing pain when urinating we finally seen the urologist yesterday and he is having a test done called a V.C.U.G. where they will squirt a liquid up into my GFCF child and take pictures to see how his urinary track is working. Does anyone know if this liquid is G.F.C.F.or not? The hospital won't tell us and they won't tell us the name either any help will be appreciated. if they don't let us know or let us see the ingredients we will not let this be done. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 I missed the OP, but was supposed to have a sedated ABR test yesterday.. I phoned to check GFCF status of the chloral hydrate and the adhesive for the brainstem wires and they had no trouble phoning the pharmacy and having them check for me. I don't see why they can't do that for you. I wish I knew off hand if they were or not, I used to be a xray tech and did VCUGs on kids (among other things). Perhaps asking for the head of radiology would help? Or perhaps this is an instance where '911 allergic' might give them the nudge they require? Good luck ~ Re: ot urologist visit I think you should absolutely demand to know what the ingredients are. It is your child after all and you have every right to know!!...I would explain this to them and inform them you will go elsewhere if they are not more cooperative and helpful. Situations like this make me very angry as I remember all the doctors who told us we didn't know what we were talking about and seemed to think we were psycho's...It shouldn't be this way. All we have to go through, we shouldn't have to fight the doctors as well. GRRR...LOL...Good Luck, ot urologist visit My son with autism has been experiencing pain when urinating we finally seen the urologist yesterday and he is having a test done called a V.C.U.G. where they will squirt a liquid up into my GFCF child and take pictures to see how his urinary track is working. Does anyone know if this liquid is G.F.C.F.or not? The hospital won't tell us and they won't tell us the name either any help will be appreciated. if they don't let us know or let us see the ingredients we will not let this be done. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2001 Report Share Posted October 27, 2001 At the risk of taking an unpopular stand, I must say I think you should reconsider your position. Your child is in pain and needs to have some relief. Who's to say the pain does not indicate a serious problem? My son has been on a strict GFCF diet for four years this month, but if I were in your shoes, I would do this procedure in a heartbeat. I don't want to offend you as I know this must be a difficult time for you. Good luck to you and your son. ot urologist visit My son with autism has been experiencing pain when urinating we finally seen the urologist yesterday and he is having a test done called a V.C.U.G. where they will squirt a liquid up into my GFCF child and take pictures to see how his urinary track is working. Does anyone know if this liquid is G.F.C.F.or not? The hospital won't tell us and they won't tell us the name either any help will be appreciated. if they don't let us know or let us see the ingredients we will not let this be done. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 I have to say I agree with this....It makes me angry when doctors won't help with gfcf needs of their patients. But, if something serious is going on, it may well be worth the risk. I had replied to this e-mail a few days ago and said I would take him somewhere else, but..if he is experiencing pain I would probably go ahead with it....Another doctor may not be any more compliant anyway....Good Luck and let us know how it goes... ot urologist visit My son with autism has been experiencing pain when urinating we finally seen the urologist yesterday and he is having a test done called a V.C.U.G. where they will squirt a liquid up into my GFCF child and take pictures to see how his urinary track is working. Does anyone know if this liquid is G.F.C.F.or not? The hospital won't tell us and they won't tell us the name either any help will be appreciated. if they don't let us know or let us see the ingredients we will not let this be done. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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