Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Steve, Congratulations!! Here's to that ringing phone! Thanks for keeping us up to date and I look forward to following your process here, on Facebook and on Caring Bridge! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, October 19, 2009 10:40:19 AMSubject: I'M ACTIVE!!!!! I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbridge.org/visit/stephenknipstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 congratulations Steve may the call come quickly and a speedy recovery post transplant so exciting!!! don't forget to bring the phone into the bathroom lol Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: I'M ACTIVE!!!!!To: Breathe-Support Date: Monday, October 19, 2009, 10:40 AM I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbr idge.org/ visit/stephenkni pstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Steve....Way to go!!! "Now...Ring Phone Ring! Loads of luck and love being sent your way as you wait for that call! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower s_knip51 wrote: I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire. Visit my website in two easy ways: 1. Visit my CaringBridge website by clicking the link below. http://www.caringbridge.org/visit/stephenknipstein 2. Enter my website name, stephenknipstein, at www.CaringBridge.org. Show your support • Visit and keep up to date. • Leave a message in my guestbook. • Receive e-mail notifications when my journal is updated. Thank you for your kind thoughts, prayers, and support. Steve aka...Knip UIP/IPF 9/09 VATS 12/09 Transplant Listed 10/19/09 57 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Congrats to you Steve! May your call come soon. Ken Baker 67 UIP/IPF 12/05 NH From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of s_knip51 Sent: Monday, October 19, 2009 10:40 AM To: Breathe-Support Subject: I'M ACTIVE!!!!! I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my " air family " here, my " real world " family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire. Visit my website in two easy ways: 1. Visit my CaringBridge website by clicking the link below. http://www.caringbridge.org/visit/stephenknipstein 2. Enter my website name, stephenknipstein, at www.CaringBridge.org. Show your support • Visit and keep up to date. • Leave a message in my guestbook. • Receive e-mail notifications when my journal is updated. Thank you for your kind thoughts, prayers, and support. Steve aka...Knip UIP/IPF 9/09 VATS 12/09 Transplant Listed 10/19/09 57 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Congratulations, Steve. May the call come swiftly, and the proceedure go smoothly. B Barbara McD PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever Beautiful Western NC Attitude is everything. To: Breathe-Support Sent: Mon, October 19, 2009 10:40:19 AMSubject: I'M ACTIVE!!!!! I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbridge.org/visit/stephenknipstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Good news! what a relief that has to be. ken O. To: Breathe-Support Sent: Mon, October 19, 2009 7:40:19 AMSubject: I'M ACTIVE!!!!! I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbridge.org/visit/stephenknipstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Steve...may God be with you and all those who care for you! I think Gwynne was on CaringBridge when she had a transplant. Worked great for all using it! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! I'M ACTIVE!!!!! I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbridge.org/visit/stephenknipstein2. Enter my website name, stephenknipstein, at www.CaringBridge.org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Congratulations Steve! Best wishes and prayers that all goes well pre, during and post transplant. Hopefully the phone will ring soon. Adrienne Subject: I'M ACTIVE!!!!!To: Breathe-Support Date: Monday, October 19, 2009, 10:40 AM I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbr idge.org/ visit/stephenkni pstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2009 Report Share Posted October 19, 2009 Dear Sr. I am really glad that you on the list already. I sure hope the call comes soon. Can i ask you about are you planing to pay for your transplant? i know is quite expensive, I was just told that i am a candidate for a lung transplant, and i saw online it could cost 600,000 in a year's time. I am in need of help trying to figure out how to do this. Subject: I'M ACTIVE!!!!!To: Breathe-Support Date: Monday, October 19, 2009, 9:40 AM I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! Thanks to the support of my "air family" here, my "real world" family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire.Visit my website in two easy ways:1. Visit my CaringBridge website by clicking the link below.http://www.caringbr idge.org/ visit/stephenkni pstein2. Enter my website name, stephenknipstein, at www.CaringBridge. org.Show your support• Visit and keep up to date.• Leave a message in my guestbook.• Receive e-mail notifications when my journal is updated.Thank you for your kind thoughts, prayers, and support.Steve aka...Knip UIP/IPF 9/09 VATS 12/09Transplant Listed 10/19/0957 Plymouth, NH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2009 Report Share Posted October 20, 2009 Hi , The transplant program that I am part of (and I imagine most every other transplant program as well) has an administrative person who is responsible for determining health insurance coverage as part of the pre-transplant evaluation. I must say that at no point during my lengthy evaluation process did anyone bring up the subject of payment for the transplant. As it was, I had to ask about it when they called me to say I was activated. It turns out that in my case, my health insurance covers the whole cost. So, fortunately for me, I don't need to worry about paying for it. I can also tell you that had that not been the case, they do have a financial person who consults with candidates. The binder given to all the candidates at my program, also contains a section on resources, including organizations, foundations, and corporations that provide grants, loans, and other financial assistance. I'd be happy to send along that information if you want. Feel free to email me anytime, with any questions...I'd be happy to help in anyway that I can!! Cheers, Steve aka...Knip UIP/IPF 9/09 VATS 12/09 Transplant Listed 10/19/09 57 Plymouth, NH > > > > Subject: I'M ACTIVE!!!!! > To: Breathe-Support > Date: Monday, October 19, 2009, 9:40 AM > > >  > > > > I got the call from the Transplant Program at Brigham & Women's Hospital at 10am this morning! I am now active on the lung transplant list! > > Thanks to the support of my " air family " here, my " real world " family, and all my friends, I am as fully prepared for this as I can be. I have all the supports I could ask for, I have an incredible medical team, and the most incredible wife in the world!!! > > In order to keep all of you up to date as things progress, Anne and I have created a CaringBridge website. You will be able to follow my progress and show your support there, if you so desire. > > Visit my website in two easy ways: > > 1. Visit my CaringBridge website by clicking the link below. > http://www.caringbr idge.org/ visit/stephenkni pstein > > 2. Enter my website name, stephenknipstein, at www.CaringBridge. org. > > Show your support > • Visit and keep up to date. > • Leave a message in my guestbook. > • Receive e-mail notifications when my journal is updated. > > Thank you for your kind thoughts, prayers, and support. > > Steve aka...Knip UIP/IPF 9/09 VATS 12/09 > Transplant Listed 10/19/09 > 57 Plymouth, NH > Quote Link to comment Share on other sites More sharing options...
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