Re: Re: The Book

[Guest guest]

Thanks, , for your encouragement. I hope many more step forward. How about VOICES FROM THE LUNGS?

By the way, I grew up in Ladonia, TX, a tiny town about 75 miles NE of Dallas. I took my BS in

Jounalism at SMU and my MA in English at Texas A & M - Commerce. I had a fellowship teaching writing there. At various times I have taught writing at the University of Maine and a large and University whose name I no longer remember. I taught at its Madrid, Spain campus. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Sat, October 17, 2009 11:51:32 PMSubject: Re: The Book

What a bold concept!That would take a considerable amount of time and effort. Would any author undertake such a collatorative effort? Would any publishing house actually publish such a book?I would offer to write my story for contribution but I doubt if it would actually be believable in print. It sounds made up even to me and I have lived through it. And with good hair and shoes throughout. I can survive anything with the right shoes!But it is a wonderful idea. People from all over the world contributing survival stories. Maybe we could make the acorn as recognizable as the pink ribbon? Who knows. Nothing is impossible. We prove that every day. S, Lubbock, TXNSIP w/PF 12/2006>>

Thanks, Fay. I would like to see a book, too. Hopefully, in two or three months I will finally be retired> and living in my new house in North Carolina. I would be able to contribute considerable time to a book, although I have one book that needs editing and perhaps a few rewrites before publication and several plays that are in various stages of draft. Still, I could work in a book on IPF. The personal stories would be the spine of the book. I say that because that is what most readers will want to hear, as I do. And so many of them are inspirational. What's needed is for enough group members who will commit to writing their story to make this take off. Also critical to the book is for Beth and Bruce to write the medical story.> > Jack> 79/IPF - UIP/dx06/05 Maine > > > > > ____________ _________ _________

__> From: faybil1 <faybil1@... >> To: Breathe-Support@ yahoogroups. com> Sent: Sat, October 17, 2009 1:29:45 PM> Subject: The Book> > > Hello all. I'm Fay, an inveterate lurker who has gained so much info from this site. I do want to suggest that the group should go ahead with a book. Like my young friend Jack, (I'm 81!), Sher, Cees , Ann, and many others I've had experience in writing and editing--nothing really creative--history text books for 4th traders through college students and teacher prep materials for the National Park Service, various history and social studies orgs, and the Atlantic Council, and European Community. So I know how much work this would be. Still someone should take on the initial draft and lots of us have

editing experience. Who has time and energy? > > A tentative suggestion for conent:> > Part I: What is PF? > Who gets it? smokers and non-smokers, active and sedentary people, old and young, different climates, different occupations, etc.> > Vignettes: examples of our members who represent above plus transplants> > Part II How diagnosed, treatment,transplan ts, commonly used medicines,examples different centers of excellence-- full listing> appendix> > Part III Liv8ing with PF> Keep walking, rehab, living with oxygen> > Part IV When the Battle is Lost Blessings of Hospice and family> members> > Part V Not for sissys movement, humor, being grateful> > This is too long and I left out examples: young mother Kerry, wonderfully zany Peggy and Zena, Good friends from other lands,etc.> > Fay:Mesa, AZ and

Capitola CA, DX IPF 1997 and lately getting craky.>

[Guest guest]

Jack at one time we wrote our stories for Leanne and she had talked about maybe getting a book type thing together. I think itwould be a good idea. love the title. Leanne would probably be a good place to start. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Thanks, , for your encouragement. I hope many more step forward. How about VOICES FROM THE LUNGS? By the way, I grew up in Ladonia, TX, a tiny town about 75 miles NE of Dallas. I took my BS in Jounalism at SMU and my MA in English at Texas A & M - Commerce. I had a fellowship teaching writing there. At various times I have taught writing at the University of Maine and a large and University whose name I no longer remember. I taught at its Madrid, Spain campus. Jack79/IPF - UIP/dx06/05 Maine From: lsmith7892006 <lbsmith789 (AT) sbcglobal (DOT) net>To: Breathe-Support Sent: Sat, October 17, 2009 11:51:32 PMSubject: Re: The Book What a bold concept!That would take a considerable amount of time and effort. Would any author undertake such a collatorative effort? Would any publishing house actually publish such a book?I would offer to write my story for contribution but I doubt if it would actually be believable in print. It sounds made up even to me and I have lived through it. And with good hair and shoes throughout. I can survive anything with the right shoes!But it is a wonderful idea. People from all over the world contributing survival stories. Maybe we could make the acorn as recognizable as the pink ribbon? Who knows. Nothing is impossible. We prove that every day. S, Lubbock, TXNSIP w/PF 12/2006>> Thanks, Fay. I would like to see a book, too. Hopefully, in two or three months I will finally be retired> and living in my new house in North Carolina. I would be able to contribute considerable time to a book, although I have one book that needs editing and perhaps a few rewrites before publication and several plays that are in various stages of draft. Still, I could work in a book on IPF. The personal stories would be the spine of the book. I say that because that is what most readers will want to hear, as I do. And so many of them are inspirational. What's needed is for enough group members who will commit to writing their story to make this take off. Also critical to the book is for Beth and Bruce to write the medical story.> > Jack> 79/IPF - UIP/dx06/05 Maine > > > > > ____________ _________ _________ __> From: faybil1 <faybil1@... >> To: Breathe-Support@ yahoogroups. com> Sent: Sat, October 17, 2009 1:29:45 PM> Subject: The Book> > > Hello all. I'm Fay, an inveterate lurker who has gained so much info from this site. I do want to suggest that the group should go ahead with a book. Like my young friend Jack, (I'm 81!), Sher, Cees , Ann, and many others I've had experience in writing and editing--nothing really creative--history text books for 4th traders through college students and teacher prep materials for the National Park Service, various history and social studies orgs, and the Atlantic Council, and European Community. So I know how much work this would be. Still someone should take on the initial draft and lots of us have editing experience. Who has time and energy? > > A tentative suggestion for conent:> > Part I: What is PF? > Who gets it? smokers and non-smokers, active and sedentary people, old and young, different climates, different occupations, etc.> > Vignettes: examples of our members who represent above plus transplants> > Part II How diagnosed, treatment,transplan ts, commonly used medicines,examples different centers of excellence-- full listing> appendix> > Part III Liv8ing with PF> Keep walking, rehab, living with oxygen> > Part IV When the Battle is Lost Blessings of Hospice and family> members> > Part V Not for sissys movement, humor, being grateful> > This is too long and I left out examples: young mother Kerry, wonderfully zany Peggy and Zena, Good friends from other lands,etc.> > Fay:Mesa, AZ and Capitola CA, DX IPF 1997 and lately getting craky.>

[Guest guest]

S...you tell that 'evil twin' for me that she had better shape-up. We're all depending on her.

Hugs.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

The Book> > > > > > Hello all. I'm Fay, an inveterate lurker who has gained so much info from this site. I do want to suggest that the group should go ahead with a book. Like my young friend Jack, (I'm 81!), Sher, Cees , Ann, and many others I've had experience in writing and editing--nothing really creative--history text books for 4th traders through college students and teacher prep materials for the National Park Service, various history and social studies orgs, and the Atlantic Council, and European Community. So I know how much work this would be. Still someone should take on the initial draft and lots of us have editing experience. Who has time and energy? > > > > A tentative suggestion for conent:> > > > Part I: What is PF? > > Who gets it? smokers and non-smokers, active and sedentary people, old and young, different climates, different occupations, etc.> > > > Vignettes: examples of our members who represent above plus transplants> > > > Part II How diagnosed, treatment,transplan ts, commonly used medicines,examples different centers of excellence-- full listing> > appendix> > > > Part III Liv8ing with PF> > Keep walking, rehab, living with oxygen> > > > Part IV When the Battle is Lost Blessings of Hospice and family> > members> > > > Part V Not for sissys movement, humor, being grateful> > > > This is too long and I left out examples: young mother Kerry, wonderfully zany Peggy and Zena, Good friends from other lands,etc.> > > > Fay:Mesa, AZ and Capitola CA, DX IPF 1997 and lately getting craky.> >>

[Guest guest]

It's true, if those things you mention such as a job or residence in a perhaps 'moldy' house, etc. WOULD have bearing on a story about the illness.

I'm thinking more along the lines that it isn't necessary to write about divorce or addictions or other personal experiences having no bearing on the illness.

Then it would be easy to slip into a 'memoir' of sorts, instead of the focus being on Pulmonary Fibrosis...

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

The Book> > > Hello all. I'm Fay, an inveterate lurker who has gained so much info from this site. I do want to suggest that the group should go ahead with a book. Like my young friend Jack, (I'm 81!), Sher, Cees , Ann, and many others I've had experience in writing and editing--nothing really creative--history text books for 4th traders through college students and teacher prep materials for the National Park Service, various history and social studies orgs, and the Atlantic Council, and European Community. So I know how much work this would be. Still someone should take on the initial draft and lots of us have editing experience. Who has time and energy? > > A tentative suggestion for conent:> > Part I: What is PF? > Who gets it? smokers and non-smokers, active and sedentary people, old and young, different climates, different occupations, etc.> > Vignettes: examples of our members who represent above plus transplants> > Part II How diagnosed, treatment,transplan ts, commonly used medicines,examples different centers of excellence-- full listing> appendix> > Part III Liv8ing with PF> Keep walking, rehab, living with oxygen> > Part IV When the Battle is Lost Blessings of Hospice and family> members> > Part V Not for sissys movement, humor, being grateful> > This is too long and I left out examples: young mother Kerry, wonderfully zany Peggy and Zena, Good friends from other lands,etc.> > Fay:Mesa, AZ and Capitola CA, DX IPF 1997 and lately getting craky.>