Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Beth: From my own experience the process of clearing my lungs though my mouth is causing some GERD each day. I have wondered which comes first--the chicken or the egg. Burns, IPF 10/2008. To: Breathe-Support Sent: Sunday, October 25, 2009 6:40:21 PMSubject: Re: Gerd Bettye, If only we could answer that question.... lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases. There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control. Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bettye Kline <bettyekline24@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sun, October 25, 2009 6:12:33 PMSubject: Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2009 Report Share Posted October 25, 2009 Thanks, Beth. Yes, there is much still to learn by me and the researchers! BSK To: Breathe-Support Sent: Sun, October 25, 2009 5:40:21 PMSubject: Re: Gerd Bettye, If only we could answer that question.... lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases. There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control. Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it? Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bettye Kline <bettyekline24@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Sun, October 25, 2009 6:12:33 PMSubject: Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Sher, I don't know that it's necessary to wean off omeprozole or Nexium or any of the proton pump inhibitors, it's just what my doctor wanted me to do. I've been on it twice a day for three years, I'm now taking it once a day for awhile to make sure I don't have any problems. After that I'll stop and after a month have esophogeal manometry to confirm the absence of reflux. I would say if you have been prescribed the omeprozole, you should be taking it. Just cause you feel fine and have no symptoms doesn't mean you don't have reflux or GERD. It can be symptomless and it can damage your lungs without you even knowing it. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, October 26, 2009 2:52:34 PMSubject: Re: Gerd MB...hmmmm, I didn't know it was necessary to "wean" off of omeprozole.. .prilosec. Thanks for the info. Dr Raghu wants me to take particular care of any gerd problems. I was on the Prilosec and stopped taking it. My 'stomach' problems stopped so I stopped the Prilosec. guess now I will resume. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 MB...thanks for such good info. I'm sure glad you are here. I will take the prilosec again. What is a esophageal manometry? I don't think I've ever had such a test...how do they do it??? MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 My pulmonologist thinks my GERD caused the initial lung inflammation, which was then attacked by an internal form of rheumatoid arthritis (or some other kind of autoimmune disease). Strictly hypothetical so far since apparently nobody has figured out yet if I even have an autoimmune disease. But there is some research to support the theory in general. I definitely had severe GERD long before the lung problems. As a matter of fact, it was so bad that I had surgery for it in 2001, which helped but didn't eliminate the problem. I still take omeprazole daily but not as much as before the surgery. What bothers me is that so many people ( & doctors) don't take GERD all that seriously. My Kaiser doctor at the time literally told me I was being a sissy until I snuck behind her back to get an appt with a specialist, who recommended surgery. I have relatives who just pop a couple antacids & dismiss it as no big deal. That makes me crazy. Cees, S Calif PF 10/08 > > Bettye, > If only we could answer that question....lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases. > There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. > > So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control. > Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it? >  > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 >  >  > > > > > ________________________________ > > To: Breathe-Support > Sent: Sun, October 25, 2009 6:12:33 PM > Subject: Gerd > >  > Hi everyone, > > Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength.  > > My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. > My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. > > Bettye Kline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Cees, You are absolutely correct. GERD is nothing to take lightly. It can be very destructive but is also very treatable. The key is to take it seriously and get treatment! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, October 26, 2009 6:37:13 PMSubject: Re: Gerd My pulmonologist thinks my GERD caused the initial lung inflammation, which was then attacked by an internal form of rheumatoid arthritis (or some other kind of autoimmune disease). Strictly hypothetical so far since apparently nobody has figured out yet if I even have an autoimmune disease. But there is some research to support the theory in general.I definitely had severe GERD long before the lung problems. As a matter of fact, it was so bad that I had surgery for it in 2001, which helped but didn't eliminate the problem. I still take omeprazole daily but not as much as before the surgery.What bothers me is that so many people ( & doctors) don't take GERD all that seriously. My Kaiser doctor at the time literally told me I was being a sissy until I snuck behind her back to get an appt with a specialist, who recommended surgery.I have relatives who just pop a couple antacids & dismiss it as no big deal. That makes me crazy.Cees, S CalifPF 10/08>> Bettye,> If only we could answer that question.... lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases.> There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. > > So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control.> Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it?> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > > > ____________ _________ _________ __> From: Bettye Kline <bettyekline24@ ...>> To: Breathe-Support@ yahoogroups. com> Sent: Sun, October 25, 2009 6:12:33 PM> Subject: Gerd> > > Hi everyone,> > Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. > > My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily.> My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium.> > Bettye Kline> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Cees, I have been treated for GERD since I was 21. Back then they called it Hyperacidity and I actually saw a puddle of acid in my stomach by flouroscope. I was on prescription Tagamet for years when an idiot HMO doctor said you can't take that it will ruin your liver. So for another 10 years I drank a bottle of Maalox everyweek. I know I aspirated acid at times. Then finally got on Prilosec when it was $3.00 a pill. Thank god for generics. I wonder how much damage that did too. Dyane Phoenix ipf 02 > > > > Bettye, > > If only we could answer that question....lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases. > > There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. > > > > So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control. > > Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it? > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > ________________________________ > > From: Bettye Kline bettyekline24@ > > To: Breathe-Support > > Sent: Sun, October 25, 2009 6:12:33 PM > > Subject: Gerd > > > > > > Hi everyone, > > > > Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. > > > > My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. > > My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. > > > > Bettye Kline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Sher, Esophageal manometry is a test where a probe is inserted through your nose, all the way down to your stomach in order to measure the contractions of your esophogus. It shows how well your esophogus moves food through and down to your stomach. This test takes about 45 minutes or so. I will also need to have the 24 hour esophageal Ph test where they insert a probe similarly through my nose down to my lower esophagus. It stays there for 24 hours and measures the acidity in my esophogus to confirm it's at normal levels and doesn't show that acid is backing up from my stomach. The probe is then removed. Assuming it shows all is well I will be able to stay off the proton pump inhibitors. Fingers crossed! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, October 26, 2009 6:34:18 PMSubject: Re: Gerd MB...thanks for such good info. I'm sure glad you are here. I will take the prilosec again. What is a esophageal manometry? I don't think I've ever had such a test...how do they do it??? MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Sher A Manometry is a test where they stick a tube down your esophagus. It may be done to measure pressure or acid or other things. Depending on the purpose, depends on exactly what they do. Mine was through the nose and down the throat all the way to the stomach, but it was not to measure acid. Rather it was to check the pressures and the sphincters. > > MB...thanks for such good info. I'm sure glad you are here. I will take the prilosec again. What is a esophageal manometry? I don't think I've ever had such a test...how do they do it??? > MamaSher; 71, IPF 3-2006, OR. > Don't fret about tomorrow, God is already there! > Gerd > > > > Hi everyone, > > Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. > > My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. > My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. > > Bettye Kline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Cees/ Beth Forgetting fibrosis for a moment, the key identified risk of GERD that must be monitored for is Barrett's Esophagus, which, of itself, is really nothing. However, it is a precursor to esophagus cancer. Once it is detected then monitoring has to be even more frequent with biopsies taken of any nodes. Fortunately, I never had signs of Barrett's. However, my problem at this point is that my esophagus is in such bad condition that the risk of damage by any future testing is worse than the benefit gained through the testing. > > > > Bettye, > > If only we could answer that question.... lol the truth of the matter is that no one really knows which if either is the case. The reality is though we often lump all pulmonary fibrosis together pulmonary fibrosis (lung scarring) is one facet of over 200 different interstitial lung diseases. > > There are doctors (Dr. Raghu in Seattle is one of them) who believe strongly that some IPF is actually caused by uncontrolled or poorly controlled GERD. It is true that most people with pulmonary fibrosis also have at least reflux, if not full fledged GERD. I had reflux and was on Nexium and omeprozole for a couple of years. It turns out that my reflux was likely caused by prednisone and recent tests show that I no longer have any reflux at all and I'm in the process of weaning off the omeprozole. > > > > So the answer is....we don't know. It may be that some pf is caused by GERD though it's not been confirmed. Research is in progress. It is common sense that uncontrolled reflux or GERD could make pulmonary fibrosis worse by having acid inhaled into already compromised lungs. That underscores the importance of keeping reflux under good control. > > Whether some types of interstitial lung disease also cause gerd or other GI problems is also an open question. The truth is there are alot of open questions. Frustrating isn't it? > > > > Beth > > Moderator > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > ____________ _________ _________ __ > > From: Bettye Kline <bettyekline24@ ...> > > To: Breathe-Support@ yahoogroups. com > > Sent: Sun, October 25, 2009 6:12:33 PM > > Subject: Gerd > > > > > > Hi everyone, > > > > Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. > > > > My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. > > My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. > > > > Bettye Kline > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 MB...OMG, is that the test that is so painful??? I hope the test you will have is easily done... God, the indignities of illness! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Sher, As far as I know these tests are not painful at all. Possibly uncomfortable but definitely not painful. I guess I try to take things like this in stride. Having tests done is part of the deal when you have a chronic illness. After my long hospitalization back in 2006...the surgery, the chest tube...the ventilator....honestly not much scares me anymore. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Mon, October 26, 2009 8:22:23 PMSubject: Re: Gerd MB...OMG, is that the test that is so painful??? I hope the test you will have is easily done... God, the indignities of illness! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 I swear...if someone comes near to me with anything in their hand to do any sort of test I think I will come apart. Like Mike did (was it Mike?) I've just reached saturation! MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd>>>> Hi everyone,>> Hope that you are having a wonderful weekend and to those of youwith increasing health burdens, I send my most positive thoughts andprayers for your comfort and strength.>> My question today is about GERD. my ILD is thought to be druginduced from Microdantin. I was diagnosed in June of 09 and discontinuedthe Microdantin immediately of course. My GERD has been under control upuntil the last few days. I take Nexium daily.> My question is...(a chicken or the egg type) Is GERD a symptom ofPF or it is exacerbated by PF? Does PF cause GERD or does GERD cause orexacerbate PF? I read that so many of you are experiencing GERD sothought that I could get some enlightement on this subject. I ampresently on no medication except for the Nexium.>> Bettye Kline> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 MB...I'm glad you feel as you do. I used to be as you describe but somewhere along the way I've just pooped out. Too many years with chronic diseases is about all I can tolerate.... Of course there is no choice is there. We must go onward. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there! Gerd Hi everyone, Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily. My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium. Bettye Kline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 How awful, Dyane! I can't imagine how much suffering you've gone through. Have you been reading the posts by Beth? Hopefully, your doctors have tested you like she explained. That's how my specialist decided I needed surgery. Good luck to you. Cees, S Calif PF 10/08 > > > > > > Bettye, > > > If only we could answer that question....lol the truth of the matter > is that no one really knows which if either is the case. The reality is > though we often lump all pulmonary fibrosis together pulmonary fibrosis > (lung scarring) is one facet of over 200 different interstitial lung > diseases. > > > There are doctors (Dr. Raghu in Seattle is one of them) who believe > strongly that some IPF is actually caused by uncontrolled or poorly > controlled GERD. It is true that most people with pulmonary fibrosis > also have at least reflux, if not full fledged GERD. I had reflux and > was on Nexium and omeprozole for a couple of years. It turns out that my > reflux was likely caused by prednisone and recent tests show that I no > longer have any reflux at all and I'm in the process of weaning off the > omeprozole. > > > > > > So the answer is....we don't know. It may be that some pf is caused > by GERD though it's not been confirmed. Research is in progress. It is > common sense that uncontrolled reflux or GERD could make pulmonary > fibrosis worse by having acid inhaled into already compromised lungs. > That underscores the importance of keeping reflux under good control. > > > Whether some types of interstitial lung disease also cause gerd or > other GI problems is also an open question. The truth is there are alot > of open questions. Frustrating isn't it? > > > > > > Beth > > > Moderator > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > From: Bettye Kline bettyekline24@ > > > To: Breathe-Support > > > Sent: Sun, October 25, 2009 6:12:33 PM > > > Subject: Gerd > > > > > > > > > Hi everyone, > > > > > > Hope that you are having a wonderful weekend and to those of you > with increasing health burdens, I send my most positive thoughts and > prayers for your comfort and strength. > > > > > > My question today is about GERD. my ILD is thought to be drug > induced from Microdantin. I was diagnosed in June of 09 and discontinued > the Microdantin immediately of course. My GERD has been under control up > until the last few days. I take Nexium daily. > > > My question is...(a chicken or the egg type) Is GERD a symptom of PF > or it is exacerbated by PF? Does PF cause GERD or does GERD cause or > exacerbate PF? I read that so many of you are experiencing GERD so > thought that I could get some enlightement on this subject. I am > presently on no medication except for the Nexium. > > > > > > Bettye Kline > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Beth,Just to show how much I hated the intubation, I extubated myself once by pulling it out and then after they tied my hands down I chewed through the tube! I really don't like things in my mouth LOL When I had some teeth straighted, I chewed up 4 or 5 retainers before the dentist gave up LOLDyane phoenix ipf 02>> Sher,> As far as I know these tests are not painful at all. Possibly uncomfortable but definitely not painful.> I guess I try to take things like this in stride. Having tests done is part of the deal when you have a chronic illness. After my long hospitalization back in 2006...the surgery, the chest tube...the ventilator....honestly not much scares me anymore.> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > > > ________________________________> To: Breathe-Support > Sent: Mon, October 26, 2009 8:22:23 PM> Subject: Re: Gerd> > > MB...OMG, is that the test that is so painful???> I hope the test you will have is easily done...> God, the indignities of illness!> MamaSher; 71, IPF 3-2006, OR.> Don't fret about tomorrow, God is already there!> Gerd> >>>> >>> > >>>Hi everyone,> >>>> >>>Hope that you are having a wonderful weekend and to those of you with increasing health burdens, I send my most positive thoughts and prayers for your comfort and strength. > >>>> >>>My question today is about GERD. my ILD is thought to be drug induced from Microdantin. I was diagnosed in June of 09 and discontinued the Microdantin immediately of course. My GERD has been under control up until the last few days. I take Nexium daily.> >>>My question is...(a chicken or the egg type) Is GERD a symptom of PF or it is exacerbated by PF? Does PF cause GERD or does GERD cause or exacerbate PF? I read that so many of you are experiencing GERD so thought that I could get some enlightement on this subject. I am presently on no medication except for the Nexium.> >>>> >>>Bettye Kline> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2009 Report Share Posted October 27, 2009 Cees,One of the things they are doing next week at NJH is the testing for that. No one until I got on this board ever told me that I was doing damage to my lungs when I aspirated and I know of at least 5 times over the years when it happened. I must have the toughest liver considering the drugs I take. LOLDyane phoenix ipf 02> > > >> > > > Bettye,> > > > If only we could answer that question....lol the truth of the matter> > is that no one really knows which if either is the case. The reality is> > though we often lump all pulmonary fibrosis together pulmonary fibrosis> > (lung scarring) is one facet of over 200 different interstitial lung> > diseases.> > > > There are doctors (Dr. Raghu in Seattle is one of them) who believe> > strongly that some IPF is actually caused by uncontrolled or poorly> > controlled GERD. It is true that most people with pulmonary fibrosis> > also have at least reflux, if not full fledged GERD. I had reflux and> > was on Nexium and omeprozole for a couple of years. It turns out that my> > reflux was likely caused by prednisone and recent tests show that I no> > longer have any reflux at all and I'm in the process of weaning off the> > omeprozole.> > > >> > > > So the answer is....we don't know. It may be that some pf is caused> > by GERD though it's not been confirmed. Research is in progress. It is> > common sense that uncontrolled reflux or GERD could make pulmonary> > fibrosis worse by having acid inhaled into already compromised lungs.> > That underscores the importance of keeping reflux under good control.> > > > Whether some types of interstitial lung disease also cause gerd or> > other GI problems is also an open question. The truth is there are alot> > of open questions. Frustrating isn't it?> > > >> > > > Beth> > > > Moderator> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > >> > > >> > > >> > > >> > > >> > > >> > > > ________________________________> > > > From: Bettye Kline bettyekline24@> > > > To: Breathe-Support > > > > Sent: Sun, October 25, 2009 6:12:33 PM> > > > Subject: Gerd> > > >> > > >> > > > Hi everyone,> > > >> > > > Hope that you are having a wonderful weekend and to those of you> > with increasing health burdens, I send my most positive thoughts and> > prayers for your comfort and strength.> > > >> > > > My question today is about GERD. my ILD is thought to be drug> > induced from Microdantin. I was diagnosed in June of 09 and discontinued> > the Microdantin immediately of course. My GERD has been under control up> > until the last few days. I take Nexium daily.> > > > My question is...(a chicken or the egg type) Is GERD a symptom of PF> > or it is exacerbated by PF? Does PF cause GERD or does GERD cause or> > exacerbate PF? I read that so many of you are experiencing GERD so> > thought that I could get some enlightement on this subject. I am> > presently on no medication except for the Nexium.> > > >> > > > Bettye Kline> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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