Re: Is this my kid?

November 9, 2001

Does anyone know if LActaid would work like the pepcid AC?

November 9, 2001

We only use olive oil for cooking eggs. We use Fleischmann's unsalted marg

instead of butter. We try to only bring gfcf food into the house... makes it

much easier.

Dona Vickrey

November 9, 2001

> I am writing for several reasons. To introduce myself, to unload, to

rejoice

> and to ask a question. Obviously until we get really good at this,

there are

> going to be slips such as the one this morning. When such things

happen, how

> do you deal with the reaction. Do you just sit and watch, try to

control it,

> wait it out, or use some of the therapy techniques, like brushing or

> swinging? Or does it really make any difference?

I use enzymes for my child, from this url

http://www.houstonni.com/

You can also use enzymes from this url

http://www.kirkmanlabs.com/

> We are

homeschooling,

I homeschool also, here is my family's story, if you are interested.

My son no longer qualifies as autistic.

http://home.pacbell.net/cscomp/myson.htm

Here is my homeschool section

http://home.pacbell.net/cscomp/parentin.htm#homeschool

Here is my therapy section

http://home.pacbell.net/cscomp/parentin.htm#therapies

If you go to my main parent information page, I have a lot of other

topics that might interest you also.

http://home.pacbell.net/cscomp/dmain.htm

Dana

November 9, 2001

Sherrie,

You could try enzmes with his meals in case he eats something he shouldnt. go

to www.kirkmanlabs.com and read about Enzyme Complete with DPP-IV. everyone

makes mistakes. it happens and luckily its just a short setback and then we

get our kids back.

Best of luck to you from another adoptive mom of a beautiful almost 5 yr old

boy.

karen

November 9, 2001

Sherrie -

Welcome to the list. You are doing a great thing for your boy - it is

hard work, but it will pay off.

It sounds like your husband is very much on board with you regarding

the diet - that is great. I am lucky to have an extremely supportive

husband who is totally in this battle against Autism with me. It

makes a big difference. I know how it feels to feed your

kid " poisons " - early on I bought the wrong kind of ricemilk that had

wheat in it - it said " wheat protein " right on the ingredient list,

and I missed it. I felt like banging my head against the wall! But,

thanks to a supportive husband, we just used it as a lesson to be

more diligent. Sounds like you guys have the same strength. Use this

as an inspiration to know that all your hard work is worth it. You

should feel really good about that. Some folks don't always see an

immediate reaction and it makes it really hard to continue to be so

diligent with the diet.

Also, don't beat yourself up about time lost. I sometimes go down

that road too and it is a waste of energy. I once heard somebody

say, " If you fall down when you are walking down the street, do you

just stay there on the ground? NO! You get up and start walking

again. " So - keep walking.

We are all in this together, we will all make mistakes, we will share

our setbacks and triumphs - just know that we are all still moving

forward.

One thing we did to make the diet easier for us was to make the

entire house GFCF. My husband and I eat what we want outside of the

house, but at home, everything is " safe " for my son. It just makes it

a user friendly environment and reduces stress. I remember going to a

family wedding early in this journey and there was an entire banquet

table set up for the buffet - it was filled with rolls and breads....

It scared the s**t out of me. I viewed it as a table full of poisons

that would take my son away from me. It was very stressful, but we

survived that wedding without any accidents. So - having our home be

a place that is safe takes away a lot of stress for us. Also, my

hubby and I discovered that he is severely lactose intollerant and I

have allergic reactions to milk. So it is good that we don't have it

at home.

Anyway - a long winded welcome to you and yours.

Moira

mom to Vico (4.5 ASD) and Culzean (18 months)

> Can this be a whole new world that is opening up to me? Am I about

to be

> introduced to my son for the first time since his adoption 5 years

ago?

> Please let it be so. I'm new here. My name is Sherrie. My little

boy,

> was 5 in June. He was diagnosed (rather skeptically) at the

age of 3

> with PDD. Because the diagnosis was half-hearted I tended to rock

along a

> bit longer than my nature usually allows me. I did not pursue

answers.

> Instead I waited to see if thy were right. He is now 5 and I cry

when I

> think that I " wasted " so much time. When I read about the

hallucinogenic

> effect of dairy and gluten on these little guys, my heart breaks to

think of

> the " treats " I offered my son that were turning his world into a

whirling

> tornado of confusion. Every cookie, granola bar, and milkshake have

haunted

> me. One week ago yesterday my husband and I read Karyn Seroussi's

book and

> one week ago today we removed dairy and subsequently gluten from

his diet.

>

> The first five days: from bad to worse. Sleep walking every night

(urinating

> on walls and doors, thinking he was in the bathroom) ; Scooting his

forehead

> on the floor (something he has never done) ; Extreme stimming.

>

> BUT, interspersed throughout the last two of those days were other

things we

> have never seen; getting up in the morning quietly (he usually

stomps from

> the time he gets out of bed) listening to a story being read even

while

> other children are playing in the same room; showing remorse for

spilling a

> drink; noticing and commenting on the clothes I was wearing; less

wandering

> and darting; more cooperative.

>

> Yesterday was a wonderful day. (No sleepwalking the night before)

He played

> in the Mcs playground without once creating a need for us to

apologize

> to the other parents there. (A big thing!) When it came time to go

home he

> came when he was called, the first time! Wow.

>

> Today, the scene: Breakfast. Mom and Dad looking hopefully at one

another

> that we are getting our precious little boy back. Big brother and

little

> brother munching away. Suddenly throws his arms into the air

and

> screams, jumps out of his chair and crashes to the floor with

squeals. My

> husband and I look on with horror (remember that one week ago this

was

> common behavior) We look quickly at his plate, minds racing to

determine the

> culprit. It didn't take long, I asked, " Did you cook his egg in

butter? "

> Ohhh, how I wish I had been the one to make this slip. My poor

husband

> looked as if he had unknowingly slipped his son poison. It brought

him to

> tears. He scooped up the little guy who was thrashing about and

carried him

> to the sofa and held him tightly, asking him for forgiveness. It

has been 2

> hours now and we see him coming `back down " He is playing fairly

quietly

> with only an occasional outburst.

>

> I am writing for several reasons. To introduce myself, to unload,

to rejoice

> and to ask a question. Obviously until we get really good at this,

there are

> going to be slips such as the one this morning. When such things

happen, how

> do you deal with the reaction. Do you just sit and watch, try to

control it,

> wait it out, or use some of the therapy techniques, like brushing or

> swinging? Or does it really make any difference? We are

homeschooling, and I

> can see the potential of losing a whole day of school if a little

butter

> slips into his diet during breakfast. Is there some way to

counteract the

> effects so that they are minimal and not as distracting to the

whole family'

> s schedule?

>

> I know I'll have loads more questions and I am very glad to find

this list,

> but for now I just need to know, like the old song in

Camelot, " What do you

> do while they're doing it? "

>

> Sherrie

> " The name of the Lord is a strong tower, the

> righteous runs into it and is safe. " Proverbs 18:10

>