idiopathic pulmonary fibrosis

[Guest guest]

Hello to you all, I am a 50 year old mother of 2 adult boys and was diagnosed with this horrible disease in the middle of July. They started me on 40 mg. of predinzone. Boy was that a trip. I am completely off of it and will not ever go back on it too many side effects. Was on it for about 3 months. I am also doing Chinese medicine. Had seen my chinese medicine doctor 3 weeks ago and thought things were just a little bit better. But saw my pulmonologist Wednesday and my diffusion tests are down to 21 now dropped 7 points in 6 weeks. That is how they are measuring my progression. All I know is that I went in a tail spin because now they want to try Immuran 50 mg daily for 2 weeks and then 100 mgs daily then on. What does anyone think. I am going to continue the Chinese medicine as there isn't much that Western Medicine has to offer you know what I mean. also looking into maybe stem cell therapy