any adults with RSS coming to the convention?

[Guest guest]

hello everyone,

We have decided to bring Ada to the Magic convention next month (yeah, very

excited). She just graduated from High School last Friday which was an

enormously stressful and emotional occasion for us all.

It is unbelievable to me how much we've been through with her since birth - and

now she is done with school. She was certainly the smallest graduate there but I

think also the one that has worked the hardest to complete school.

I was wondering if any adults with RSS would be attending this year. It's been

years since we've been and I would love to meet some of you all and to find out

how life has been for you since completing h.s.

Signe

Mom to Ada 19 year old with RSS

[Guest guest]

I won't be able to attend this year, but I am planning on going next year. I am

22 with RSS, I graduated highschool back in 2002. good luck = )

Signe Newcomb wrote:hello everyone,

We have decided to bring Ada to the Magic convention next month (yeah, very

excited). She just graduated from High School last Friday which was an

enormously stressful and emotional occasion for us all.

It is unbelievable to me how much we've been through with her since birth - and

now she is done with school. She was certainly the smallest graduate there but I

think also the one that has worked the hardest to complete school.

I was wondering if any adults with RSS would be attending this year. It's been

years since we've been and I would love to meet some of you all and to find out

how life has been for you since completing h.s.

Signe

Mom to Ada 19 year old with RSS

[Guest guest]

If any adults do decide to come, even though there aren't officially

any " adult only presentations " -- TWO THINGS (can someone forward

this to the Adult listserve).

Dr. Czernichow is flying in from Paris and will be presenting on the

prior and ongoing studies that examine the longterm health

consequences that children born SGA are at a higher risk for

developing. I think that this is important for RSS adults to listen

to as well!!!! (We will videotape it.)

If any group of RSS adults attend, no matter how small, we can try

and arrange a small meeting area where you guys could hang out on

Friday morning, network, etc. Just let me know ASAP.

P.S. I am working with Stanhope in England on some possible

studies; we are using some of our walkathon monies to fly in

his " fellow " to conduct some questionnaires.

I know the RSS Adults had some serious questions that they would

like investigated about gynecological stuff, etc. If the adults

wanted to try and drum up some people to attend the convention,

maybe we could put a questionnaire together and try to write

something later....

> hello everyone,

> We have decided to bring Ada to the Magic convention next month

(yeah, very excited). She just graduated from High School last

Friday which was an enormously stressful and emotional occasion for

us all.

>

> It is unbelievable to me how much we've been through with her

since birth - and now she is done with school. She was certainly the

smallest graduate there but I think also the one that has worked

the hardest to complete school.

>

> I was wondering if any adults with RSS would be attending this

year. It's been years since we've been and I would love to meet some

of you all and to find out how life has been for you since

completing h.s.

>

> Signe

> Mom to Ada 19 year old with RSS

>

>