Re: Re: New to List and would like information on fundraising for convention

[Guest guest]

,

Thanks for the information. I will make the calls tomorrow. I hope to see you

there.

Tammy

Brock wrote:

Tammy -

First, please contact Dayna at daycarney@... to apply for

a scholarship for the conventoin, which would pay your hotel and

reg. fees. We have more than 10+ scholarships for NEW families

still remaining!!!

Then contact MAGIC 800-3MAGIC3 and ask for whatever quantity of

RSS/SGA Conv. Scholarship pamphlets. These have tear off donation

forms. You can write in your family's name on it and the donations

will be held at MAGIC for your family. ALSO, ask MAGIC to mail you

a copy of the RSS/SGA Fundraising GUide -- this is a step-by-step

guide that explains how you can fundraise through MAGIC (so the

donations are tax deductible to the donor but go towards YOUR

expenses).

MAGIC will send you that stuff same day, so make the call. And

email Dayna. And in 6 weeks, we'll see you in Chicago!!!

> Hi, everyone!

>

> I'm new to posting to this list, however I have been reading all

the

> messages and love all the support.

>

> My daughter, was born 8 weeks early with IUGR weighing

only

> 1lb 13 oz and was 13 inches long. She was in the hospital for 3

> months because of the reflux. Before she came home she had a

> fundoplication and a feeding tube inserted. When I got her home I

> started noticing that there were other things going on the

hospital

> didn't catch. I got really lucky with our home health nurse.

She

> knew something was not quite right with either because of

> her not eating, reflux about 6 times a day, not gaining weight and

> the assymetry of her head, legs and jaw. We researched and she

> finally found the information on RSS. Of course, I went with it

and

> got an almost immediate diagnosis when was only 6 months

> old. We've been to two different genetics doctors,

endocrinolists,

> gastro doctors and now go to shriners for her leg assymetry.

>

> I'm very lucky that I have had so good luck with the doctors who

> treat her, but as every one of you probably already knows, you

have

> to do all the legwork and research in order to get the care that

> your RSS child needs. Hardly anyone in my area has even heard of

> RSS.

>

> I am interested in going to the convention in July and would like

to

> know what others are doing to raise money.

>

> Tammy Mayeaux

> Mom to - 19 months, RSS starts growth hormone June 9,2005

and

> 6 years ADHD, idiopathic short stature and soon to be

starting

> growth hormone.

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