Re: New to List and would like information on fundraising for convention

[Guest guest]

Hi Tammy!

We have always gotten into Chicago on Wed, so that we have some " down " time

to adjust before the whole thing starts. We feel it's worth the extra

expense. We put aside approximately $120 per night for the hotel bill. Until

this year, we've always taken a cooler and snacks to see us through for most

meals. This year we're flying in for the first time, so no cooler/snacks,

and I'm really not sure how much to take.

MAGIC puts out a fund raising pamphlet that you can give out to family,

friends, or local businesses. There is a section of the pamphlet that you

can fill in with your child's name, etc... If they choose to donate in this

way, the funds would then be kept in an account in your child's name, and I

think, you can get reimbursed for convention expenses from this account??

Jenn or Katy, is that how this works???

Some people do small things like garage sales, yard sales, or bake sales at

small local events. These ideas can be put together with minimal hours of

prep time, but they can generate a good amount of money to defray the costs.

Jodie Cals is helping other list serve families raise funds through

Tupperware!! You can reach her at jlcals2003@... She can better

explain how it all works!

Some people have published articles in their local newspaper's " human

interest " section. The article give a short bio on the child and family,

might mention any fund raising plans you have, and lets the community know

that you're trying to get to the convention so that you can learn more about

your daughter's disability, and are willing to accept donations to get you

there. Lots of people have been surprised at how supportive their

communities can be!

Some people have done, or are doing, larger benefit dinners, breakfasts,

etc.... These are probably best left for next year at this late date, but

that all depends on how much help you have available to you!

I hope some of this helps. I'm sure that other will chime in with the ideas

they've used!

HUGS!!

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

[Guest guest]

Pat,

Thank you so much for the information. I have contacted Jodi and she is sending

me the tupperware package. I did not know about the MAGIC fund raising

pamphlet so I will definitely contact them.

I hope I can get enough money to go and hope to meet you.

Thanks,

Tammy

pcpets wrote:

Hi Tammy!

We have always gotten into Chicago on Wed, so that we have some " down " time

to adjust before the whole thing starts. We feel it's worth the extra

expense. We put aside approximately $120 per night for the hotel bill. Until

this year, we've always taken a cooler and snacks to see us through for most

meals. This year we're flying in for the first time, so no cooler/snacks,

and I'm really not sure how much to take.

MAGIC puts out a fund raising pamphlet that you can give out to family,

friends, or local businesses. There is a section of the pamphlet that you

can fill in with your child's name, etc... If they choose to donate in this

way, the funds would then be kept in an account in your child's name, and I

think, you can get reimbursed for convention expenses from this account??

Jenn or Katy, is that how this works???

Some people do small things like garage sales, yard sales, or bake sales at

small local events. These ideas can be put together with minimal hours of

prep time, but they can generate a good amount of money to defray the costs.

Jodie Cals is helping other list serve families raise funds through

Tupperware!! You can reach her at jlcals2003@... She can better

explain how it all works!

Some people have published articles in their local newspaper's " human

interest " section. The article give a short bio on the child and family,

might mention any fund raising plans you have, and lets the community know

that you're trying to get to the convention so that you can learn more about

your daughter's disability, and are willing to accept donations to get you

there. Lots of people have been surprised at how supportive their

communities can be!

Some people have done, or are doing, larger benefit dinners, breakfasts,

etc.... These are probably best left for next year at this late date, but

that all depends on how much help you have available to you!

I hope some of this helps. I'm sure that other will chime in with the ideas

they've used!

HUGS!!

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

---------------------------------

[Guest guest]

Hey Tammy!!

Looking forward to meeting you too! It's an experience you will NEVER

forget!! I can't imagine our summers without the convention now!

And don't forget to contact Dayna Carney. Her email address is

daycarney@... and she's in charge of the MAGIC scholarships. That

will help out too!

HUGS!!

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

[Guest guest]

Tammy -

First, please contact Dayna at daycarney@... to apply for

a scholarship for the conventoin, which would pay your hotel and

reg. fees. We have more than 10+ scholarships for NEW families

still remaining!!!

Then contact MAGIC 800-3MAGIC3 and ask for whatever quantity of

RSS/SGA Conv. Scholarship pamphlets. These have tear off donation

forms. You can write in your family's name on it and the donations

will be held at MAGIC for your family. ALSO, ask MAGIC to mail you

a copy of the RSS/SGA Fundraising GUide -- this is a step-by-step

guide that explains how you can fundraise through MAGIC (so the

donations are tax deductible to the donor but go towards YOUR

expenses).

MAGIC will send you that stuff same day, so make the call. And

email Dayna. And in 6 weeks, we'll see you in Chicago!!!

> Hi, everyone!

>

> I'm new to posting to this list, however I have been reading all

the

> messages and love all the support.

>

> My daughter, was born 8 weeks early with IUGR weighing

only

> 1lb 13 oz and was 13 inches long. She was in the hospital for 3

> months because of the reflux. Before she came home she had a

> fundoplication and a feeding tube inserted. When I got her home I

> started noticing that there were other things going on the

hospital

> didn't catch. I got really lucky with our home health nurse.

She

> knew something was not quite right with either because of

> her not eating, reflux about 6 times a day, not gaining weight and

> the assymetry of her head, legs and jaw. We researched and she

> finally found the information on RSS. Of course, I went with it

and

> got an almost immediate diagnosis when was only 6 months

> old. We've been to two different genetics doctors,

endocrinolists,

> gastro doctors and now go to shriners for her leg assymetry.

>

> I'm very lucky that I have had so good luck with the doctors who

> treat her, but as every one of you probably already knows, you

have

> to do all the legwork and research in order to get the care that

> your RSS child needs. Hardly anyone in my area has even heard of

> RSS.

>

> I am interested in going to the convention in July and would like

to

> know what others are doing to raise money.

>

> Tammy Mayeaux

> Mom to - 19 months, RSS starts growth hormone June 9,2005

and

> 6 years ADHD, idiopathic short stature and soon to be

starting

> growth hormone.

[Guest guest]

Tammy,

Last year my husband and I sat outside a Wal-Mart on a warm Saturday

and raised nearly $500 for us and Magic! It was great! We had

brochures from MAGIC and other information on the table as well. We

sold Root Beer floats. Since we were outside Wal-Mart, we just bought

the ice cream one gallon at a time as we needed it. That way they kept

it frozen for us. Some Wal-Mart stores will even match what you raise!

It can't be for just you though, Wal-Mart will not let you raise money

for just one person, you have to share, so we gave some of what we

raised to MAGIC and used the rest for our trip. Hope this helps.

Carmen Snyder, Mom to Storm, age 9, RSS, 49.5 " , 58.5 pounds. And a

slew of other kids including our newest 2 at ages 10 months and 2.5

years.