Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Are you still a member of healing crow? If so, I would ask for some advice there. Mara > Does anyone know where doxycycline/tetracycline falls in these categories? > > My son has severe acne and of course the dermatologist wants to > prescribe Accutane, claiming the IBD connection is just so the lawyers > can make money. (His theory is that IBD and acne both strike young > people, so it's all coincidence; and Accutane is " just " vitamin A, so > why aren't IBD patients cautioned not to take vitamin A supplements? - > talk about arrogance) > But there's no way I would risk that given all my son has been through > with the IBD. > > Their next recommendation is doxycycline, which is in the tetracycline > family. > My guess is the risk is that it wipes out good bacteria as well, leaving > things open to C-diff, which has been a problem my son has also had, and > again I don't want to risk that. > We'll be talking with the GI, who fortunately is very cautious, but does > anyone have any insight on this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 I took different antibiotics for five years for my acne and was dx'd p with Crohn's a few years after. One of the antibiotics was doxycycline. I'm not sure there is a direct correlation between antibiotics and Crohn's , but I suspect it. Antibiotics never did much for me acne-wise and I would never take Accutane now. One doctor recommended Accutane and I didn't take it. Thank goodness, my problems might be worse. Yes, I still have some acne. I take 2 grams of cod liver oil daily (it has Vitamin A) and do some other topical things that keep it fairly in check.I also had a bad experience with Spironolactone for acne, but that's only for women, as it blocks androgen. I'd rather have some acne than a bad gut.Hope this perspective helps some.-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 One more thing. The GI's I talked to wanted me off the antibiotics for acne and my current GP is careful not to prescribe any unneeded antibiotics as well.-- I took different antibiotics for five years for my acne and was dx'd p with Crohn's a few years after. One of the antibiotics was doxycycline. I'm not sure there is a direct correlation between antibiotics and Crohn's , but I suspect it. Antibiotics never did much for me acne-wise and I would never take Accutane now. One doctor recommended Accutane and I didn't take it. Thank goodness, my problems might be worse. Yes, I still have some acne. I take 2 grams of cod liver oil daily (it has Vitamin A) and do some other topical things that keep it fairly in check.I also had a bad experience with Spironolactone for acne, but that's only for women, as it blocks androgen. I'd rather have some acne than a bad gut.Hope this perspective helps some.-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Sally,I have read several places that acne is actually a side-effect of an underlying yeast overgrowth problem. Do you know if your son has a problem with yeast? Also, if he uses antibiotics for a long term treatment, he will encourage any yeast he does have to overgrow more and will not have the beneficial bacteria to counter it. AmeliaTo: BTVC-SCD Sent: Wed, May 12, 2010 3:02:18 PMSubject: Re: List of "better" antibiotics? Does anyone know where doxycycline/ tetracycline falls in these categories? My son has severe acne and of course the dermatologist wants to prescribe Accutane, claiming the IBD connection is just so the lawyers can make money. (His theory is that IBD and acne both strike young people, so it's all coincidence; and Accutane is "just" vitamin A, so why aren't IBD patients cautioned not to take vitamin A supplements? - talk about arrogance) But there's no way I would risk that given all my son has been through with the IBD. Their next recommendation is doxycycline, which is in the tetracycline family. My guess is the risk is that it wipes out good bacteria as well, leaving things open to C-diff, which has been a problem my son has also had, and again I don't want to risk that. We'll be talking with the GI, who fortunately is very cautious, but does anyone have any insight on this? Thanks Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Sally,"One of things he's dealing with are some "weird" (that was the dermatologist' s word - doesn't exactly inspire confidence) spots on the sides of his face that no one thinks is acne. Developed at the same time as the acne (after prednisone treatment back in 2007), but the facial acne is much improved, but these spots persist."I would definitely suspect yeast as prednisone encourages yeast. It can do this because prednisone raises the levels of circulating blood sugars (not table sugar), so there is more for the yeast to use especially outside the gut (where he has been starving it by way of lack of grain and table sugar). Regarding the spots, what do they look like? My husband is battling 'rashes' around his eyes and scalp. It is doing better, but at it's worst it was red/purple, inflammed looking, and the skin flaked unbelievably. It flared worse everytime he regularly took something known to kill/fight yeast -- s. boulardii, LDN, coconut oil, oil of oregano, acidolphilus capsules. He now understands what is happening and so is addressing it, but it really was a source of alarm for him at the beginning. Is he taking SCD yogurt or a legal probiotic?AmeliaTo: BTVC-SCD Sent: Wed, May 12, 2010 7:55:07 PMSubject: Re: List of "better" antibiotics? Thanks to all for responding. Mara - yes, I posted this to Healing Crow as well. My instinct is to say no to the doxyclycline. My son is finally doing pretty well bathroom-wise and I sure don't want to upset things. He's got a colonoscopy checkup on June 4, and I am praying that healing has actually occurred. I think the GI is very focused on preventing any C-diff recurrence and likely won't allow the doxy either. Amelia- I don't know if there is a yeast issue. That could something to look into. One of things he's dealing with are some "weird" (that was the dermatologist' s word - doesn't exactly inspire confidence) spots on the sides of his face that no one thinks is acne. Developed at the same time as the acne (after prednisone treatment back in 2007), but the facial acne is much improved, but these spots persist. They did a biopsy yesterday to try to determine if it might be "cutaneous Crohns". And yes, I agree that I'd rather have some acne than a bad gut, but that is more difficult for an 18 year old boy to put into perspective, esp when I've seen little kids stare and point at him. Breaks my heart. And of course the social issues at that age are very important. Thanks again. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 Sure, I didn't mean that what your son is experiencing isn't traumatic, I just wanted to share my experiences with different acne treatments. Best of luck in finding out what those spots are.-- Thanks to all for responding. Mara - yes, I posted this to Healing Crow as well. My instinct is to say no to the doxyclycline. My son is finally doing pretty well bathroom-wise and I sure don't want to upset things. He's got a colonoscopy checkup on June 4, and I am praying that healing has actually occurred. I think the GI is very focused on preventing any C-diff recurrence and likely won't allow the doxy either. Amelia- I don't know if there is a yeast issue. That could something to look into. One of things he's dealing with are some " weird " (that was the dermatologist's word - doesn't exactly inspire confidence) spots on the sides of his face that no one thinks is acne. Developed at the same time as the acne (after prednisone treatment back in 2007), but the facial acne is much improved, but these spots persist. They did a biopsy yesterday to try to determine if it might be " cutaneous Crohns " . And yes, I agree that I'd rather have some acne than a bad gut, but that is more difficult for an 18 year old boy to put into perspective, esp when I've seen little kids stare and point at him. Breaks my heart. And of course the social issues at that age are very important. Thanks again. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2010 Report Share Posted May 12, 2010 One resource that might be helpful to you is http://www.acne.org/A wide variety of people have posted their experiences with different treatments.-- Sure, I didn't mean that what your son is experiencing isn't traumatic, I just wanted to share my experiences with different acne treatments. Best of luck in finding out what those spots are.-- Thanks to all for responding. Mara - yes, I posted this to Healing Crow as well. My instinct is to say no to the doxyclycline. My son is finally doing pretty well bathroom-wise and I sure don't want to upset things. He's got a colonoscopy checkup on June 4, and I am praying that healing has actually occurred. I think the GI is very focused on preventing any C-diff recurrence and likely won't allow the doxy either. Amelia- I don't know if there is a yeast issue. That could something to look into. One of things he's dealing with are some " weird " (that was the dermatologist's word - doesn't exactly inspire confidence) spots on the sides of his face that no one thinks is acne. Developed at the same time as the acne (after prednisone treatment back in 2007), but the facial acne is much improved, but these spots persist. They did a biopsy yesterday to try to determine if it might be " cutaneous Crohns " . And yes, I agree that I'd rather have some acne than a bad gut, but that is more difficult for an 18 year old boy to put into perspective, esp when I've seen little kids stare and point at him. Breaks my heart. And of course the social issues at that age are very important. Thanks again. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2010 Report Share Posted May 13, 2010 I've been cured of Crohn's for over ten years now so I really don't remember.THAT'S SO COOL!! I can't wait until I can say that about my UC =) Did you do it with the SCD, or something else? I'm pretty sure I'm staying SCD anyways, but I'm just curious. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Les,"I also mentioned olive leaf extract. It is anti-oxidant, anti-microbial (kills Staph), anti-fungal, anti-malarial, anti-herpes, anti-cholesterol, anti-diabetic, anti-parasitic and anti-hypertensive. Google it as I did. Don't take my word for it."I would like to know if you know of any studies to show that olive leaf extract is an anti-malarial. We are moving to India soon and I want to protect the 5 of us as safely and naturally as possible.AmeliaTo: BTVC-SCD Sent: Thu, May 13, 2010 11:08:21 PMSubject: Re: List of "better" antibiotics? > > > FWIW. My favorite antibiotics are olive leaf extract, astragalus and > > Manuka Honey. > > > What's your experience with Manuka honey? I just started taking it, > and I can't tell yet if there's a difference. I'm on too many meds to > be really in tune with my body. I'd be interested to know more about > it and others' experiences, though! > > Peace =) > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 30 mg 1x per day > I probably mis-spoke when I mentioned Astragalus as an antibiotic. It's really an immune system enhancer and adaptogen. In other countries it is given along with Chemo to keep the chemo from tanking the immune system. Seems to me it should help those who are taking steroids for the same reason. I think it was considered illegal since it was from a root. I've been cured of Crohn's for over ten years now so I really don't remember. My veterinarian daughter wrote her senior paper on Manuka Honey. After she went to work, she introduced it to the clinic where she practiced. It wasn't long before they were bringing her all the trauma cases and even infected trauma cases from other clinics. It was by far the best antibiotic they had ever used. Severe burns were healed with minimum scarring and furred-over to look like new. If you're interested you can go to <manukahoneyusa. com> and read the testimonials and look at some of the pictures. Some say that they have cured Crohn's and colitis with the honey alone. I am very skeptical about that, but maybe it does help a limited number of folks. I also mentioned olive leaf extract. It is anti-oxidant, anti-microbial (kills Staph), anti-fungal, anti-malarial, anti-herpes, anti-cholesterol, anti-diabetic, anti-parasitic and anti-hypertensive. Google it as I did. Don't take my word for it. Some Bible scholars are convinced that God was speaking of the olive tree when He told Ezekiel that the fruit would be their food and the leaves their medicine. Since I am no longer a crohn's patient, I can't test it on myself, but if I was I would try Reishi mushroom extract. It is an excellent adaptogen. I other words it tweaks the bodily functions to make them operate properly. I gave some to a systemic lupus patient and it erased some of his symptoms. It didn't completely tame his immune system,but it made it a little less damaging. It might not work with Crohn's at all, but I think I would give it a shot, with the strongest extract I could get. I don't have any idea as to its legality. It may not be, since it's fungus based. Les Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 My objective was to attack the culprit bacteria in any way I could. It seems I got 'em.Yay =) SCD rocks! Thanks for sharing!! Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Stacey which manuka honey are you using? Mara > > Hey Alyssa, > Just wanted to chime in. I bit the bullet and gave Manuka honey a try and I've definitely seen an improvement in my symptoms. Hehe...and I haven't eaten it as frequently lately and all of a sudden I'm not feeling as well! > stacey > > >> >>> FWIW. My favorite antibiotics are olive leaf extract, astragalus and >>> Manuka Honey. >> >> >> What's your experience with Manuka honey? I just started taking it, >> and I can't tell yet if there's a difference. I'm on too many meds to >> be really in tune with my body. I'd be interested to know more about >> it and others' experiences, though! >> >> Peace =) >> Alyssa 16 yo >> UC April 2008, dx Sept 2008 >> SCD June 2009 (restarted) >> Azathioprine 75 mg 1x per day >> Prednisone 30 mg 1x per day >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 I use manuka honey with my recipes or a spoonfull with yoghurt sometimes. I sometimes use it instead of ordinary store bought natural honey but its okay to use both in any way right ? Mark To: BTVC-SCD Sent: Fri, May 14, 2010 6:08:27 PMSubject: Re: Re: List of "better" antibiotics? Stacey which manuka honey are you using?Mara> > Hey Alyssa,> Just wanted to chime in. I bit the bullet and gave Manuka honey a try and I've definitely seen an improvement in my symptoms. Hehe...and I haven't eaten it as frequently lately and all of a sudden I'm not feeling as well!> stacey> > >> >>> FWIW. My favorite antibiotics are olive leaf extract, astragalus and >>> Manuka Honey.>> >> >> What's your experience with Manuka honey? I just started taking it, >> and I can't tell yet if there's a difference. I'm on too many meds to >> be really in tune with my body. I'd be interested to know more about >> it and others' experiences, though!>> >> Peace =)>> Alyssa 16 yo>> UC April 2008, dx Sept 2008>> SCD June 2009 (restarted)>> Azathioprine 75 mg 1x per day>> Prednisone 30 mg 1x per day>> > > > > > ------------------------------------> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 Just wanted to chime in. I bit the bullet and gave Manuka honey a try and I've definitely seen an improvement in my symptoms. Hehe...and I haven't eaten it as frequently lately and all of a sudden I'm not feeling as well!Thanks for chiming! =) How much/when are you taking it? I've been taking one teaspoon a morning on an empty stomach, because I read it 'coats the bowels to reduce inflammation.' Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2010 Report Share Posted May 14, 2010 I wouldn't recommend one vendor over another, but I strongly recommend that you buy from a source that sells "active" Manuka Honey with a rating of at least UMF 16I have "Active 12+." I feel like it's probably potent enough for me though, because I've always been 'sensitive' =) Plus, the first time I took it, it was just a TINY amount in my ginger tea, and that night, I had the WORST cramps I'd ever had, and I haven't had cramps that bad since. It was a solid hour, maybe two, of horrible unceasing gut cramps, causing me to run to the bathroom every five minutes or so for some relief only to have nothing come out and no relief. Wasn't in a flare or anything, it was completely out of the blue, and once they went away they never came back. When I started taking the manuka honey recently, I started with a pinprick amount and slowly increased, and didn't have any reaction. I think this may be because I'm on prednisone and azathioprine though, so it's suppressing my body's reactions. My guess at my reaction before would be just some severe die-off. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Les,Thanks!AmeliaTo: BTVC-SCD Sent: Fri, May 14, 2010 5:54:30 PMSubject: Re: List of "better" antibiotics? > > Les, > > "I also mentioned olive leaf extract. It is anti-oxidant, anti-microbial > (kills Staph), anti-fungal, anti-malarial, anti-herpes, > anti-cholesterol, anti-diabetic, anti-parasitic and anti-hypertensive. > Google it as I did. Don't take my word for it." > > I would like to know if you know of any studies to show that olive leaf extract is an anti-malarial. We are moving to India soon and I want to protect the 5 of us as safely and naturally as possible. > > Amelia > > For the sheer volume of information, I suggest that you go to Curezone and search for olive leaf extract malaria and for artemisia malaria. Les > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Can this be purchased in stores or just online? Thanks >I use Wedderspoon's Manuka Honey Active 16+ and I was taking about a teaspoon in the morning while I got all my lunch stuff & smoothie together. I also used to have a little when I'd get home at night. >Stacey > > >> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a >> > try and I've definitely seen an improvement in my symptoms. >> > Hehe...and I haven't eaten it as frequently lately and all of a >> > sudden I'm not feeling as well! >> >> >> Thanks for chiming! =) How much/when are you taking it? I've been >> taking one teaspoon a morning on an empty stomach, because I read it >> 'coats the bowels to reduce inflammation.' >> >> Peace =) >> Alyssa 16 yo >> UC April 2008, dx Sept 2008 >> SCD June 2009 (restarted) >> Azathioprine 75 mg 1x per day >> Prednisone 30 mg 1x per day >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Thanks! If I am to start taking it, I assume start out taking only a little each day - like 1 tsp? And it's used for it's strong anti-bacterial properties, correct? How about inflammation or healing our insides? Subject: Re: List of better antibiotics?To: BTVC-SCD Date: Monday, May 17, 2010, 10:17 PM I....wouldn't. It costs a lot so using it for baking seems like kind of a waste.Stacey> >> >>> >> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a > >> >> > try and I've definitely seen an improvement in my symptoms. > >> >> > Hehe...and I haven't eaten it as frequently lately and all of a > >> >> > sudden I'm not feeling as well!> >> >> > >> >> > >> >> Thanks for chiming! =) How much/when are you taking it? I've been > >> >> taking one teaspoon a morning on an empty stomach, because I read it > >> >> 'coats the bowels to reduce inflammation.'> >> >> > >> >> Peace =)> >> >> Alyssa 16 yo> >> >> UC April 2008, dx Sept 2008> >> >> SCD June 2009 (restarted)> >> >> Azathioprine 75 mg 1x per day> >> >> Prednisone 30 mg 1x per day> >> >>> >> >> >> >> >>> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 maybe less - Alyssa said she started with a toothpick. MaraThanks! If I am to start taking it, I assume start out taking only a little each day - like 1 tsp? And it's used for it's strong anti-bacterial properties, correct? How about inflammation or healing our insides?Subject: Re: List of better antibiotics?To: BTVC-SCD Date: Monday, May 17, 2010, 10:17 PMI....wouldn't. It costs a lot so using it for baking seems like kind of a waste.Stacey> >> >>> >> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a > >> >> > try and I've definitely seen an improvement in my symptoms. > >> >> > Hehe...and I haven't eaten it as frequently lately and all of a > >> >> > sudden I'm not feeling as well!> >> >> > >> >> > >> >> Thanks for chiming! =) How much/when are you taking it? I've been > >> >> taking one teaspoon a morning on an empty stomach, because I read it > >> >> 'coats the bowels to reduce inflammation.'> >> >> > >> >> Peace =)> >> >> Alyssa 16 yo> >> >> UC April 2008, dx Sept 2008> >> >> SCD June 2009 (restarted)> >> >> Azathioprine 75 mg 1x per day> >> >> Prednisone 30 mg 1x per day> >> >>> >> >> >> >> >>> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 maybe less - Alyssa said she started with a toothpick. MaraThanks! If I am to start taking it, I assume start out taking only a little each day - like 1 tsp?I would definitely start small!! It's a pretty strong antibacterial agent, so you want to be careful of the die off. Try maybe 1/8 tsp to start off, and increase it a little every day. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
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