Re: List of better antibiotics?

[Guest guest]

Have you asked on pecanbread?

Mara

> Hi friends, I'm searching for a suggestion of antibiotics that may be less

damaging for my 3 y.o.(asd, seizures, allergic to penicillin), as we are headed

to the doc now for a bad cough. All of her regressions have occurred while on

antibiotics, along with severe diarrhea etc.

>

> Any advice would be so appreciated. Thanks

>

>

>

> ------------------------------------

>

>

[Guest guest]

I'm certainly no expert, but I saved antibiotic information that was posted on pecanbread a while back:

ANTIBIOTICS AND SCD

Antibiotics likely to cause problems: Clindamycin, Keflex, Ceftin, Ceclor, All other cephalosporins, Amoxicillin, Augmentin. Middle Of The Road (may or may not cause problems): Cipro, Levoflex (also Levaquin), Tequin, Avelox, Bactrim, Erythromycin, Biaxin, Zithromax Safe to Take: Macrodantin (Macrobid), Sulfa, Aminoglycoside, Flagyl (metronidiazole) , Oral and IV Vancomycin

I hope one of the "good" ones on this list will meet the doctor's criteria for treating your son.

Hugs

To: BTVC-SCD Sent: Wed, May 12, 2010 7:21:00 AMSubject: Re: List of "better" antibiotics?

Have you asked on pecanbread?Mara> Hi friends, I'm searching for a suggestion of antibiotics that may be less damaging for my 3 y.o.(asd, seizures, allergic to penicillin), as we are headed to the doc now for a bad cough. All of her regressions have occurred while on antibiotics, along with severe diarrhea etc.> > Any advice would be so appreciated. Thanks > > > > ------------ --------- --------- ------> >

[Guest guest]

oops.. sorry, ! I hope these help for treating your DAUGHTER.. not son

To: BTVC-SCD Sent: Wed, May 12, 2010 7:37:07 AMSubject: Re: List of "better" antibiotics?

I'm certainly no expert, but I saved antibiotic information that was posted on pecanbread a while back:

ANTIBIOTICS AND SCD

Antibiotics likely to cause problems: Clindamycin, Keflex, Ceftin, Ceclor, All other cephalosporins, Amoxicillin, Augmentin. Middle Of The Road (may or may not cause problems): Cipro, Levoflex (also Levaquin), Tequin, Avelox, Bactrim, Erythromycin, Biaxin, Zithromax Safe to Take: Macrodantin (Macrobid), Sulfa, Aminoglycoside, Flagyl (metronidiazole) , Oral and IV Vancomycin

I hope one of the "good" ones on this list will meet the doctor's criteria for treating your son.

Hugs

[Guest guest]

Does anyone know where doxycycline/tetracycline falls in these categories?

My son has severe acne and of course the dermatologist wants to

prescribe Accutane, claiming the IBD connection is just so the lawyers

can make money. (His theory is that IBD and acne both strike young

people, so it's all coincidence; and Accutane is " just " vitamin A, so

why aren't IBD patients cautioned not to take vitamin A supplements? -

talk about arrogance)

But there's no way I would risk that given all my son has been through

with the IBD.

Their next recommendation is doxycycline, which is in the tetracycline

family.

My guess is the risk is that it wipes out good bacteria as well, leaving

things open to C-diff, which has been a problem my son has also had, and

again I don't want to risk that.

We'll be talking with the GI, who fortunately is very cautious, but does

anyone have any insight on this?

Thanks

Sally

[Guest guest]

Hi Sally,

I'm no expert on SCD yet, but I've had some moderate adult acne issues (I'm 26,

they started when I was about 23). I did notice when I tried SCD for a month the

first time, my skin was super clear after a month.

It's interesting that Dr. Perricone's " Clear Skin Prescription " book

(http://www.amazon.com/Clear-Skin-Prescription-Perricone-Eliminate/dp/0060934360\

/ref=sr_1_1?ie=UTF8 & s=books & qid=1273699755 & sr=1-1) outlines an

" anti-inflammatory diet " that is very similar to SCD, if you take out the

oatmeal and a few other things. He also sells his own line of supplements...

which I haven't and would not buy (expensive!).

The brand of skin products I swear by is " a's Choice. " She reviews all kinds

of products and also offers her own line, which I love. It's a pretty good

bargain, too. You can check out her products, and learn lots of info on skin

conditions at http://www.cosmeticscop.com/. I've found the combination of 2% BHA

(salysilic acid) and benzoyl peroxide to be extremely effective on acne.

Hope that helps!

Microscopic (not Ulcerative) Colitis 2 years

SCD since 5/2/10

Entocort 9mg/day

1/2 Imodium/day

> One of things he's dealing with are some " weird " (that was the

> dermatologist's word - doesn't exactly inspire confidence) spots on the

> sides of his face that no one thinks is acne. Developed at the same time

> as the acne (after prednisone treatment back in 2007), but the facial

> acne is much improved, but these spots persist. They did a biopsy

> yesterday to try to determine if it might be " cutaneous Crohns " .

>

> And yes, I agree that I'd rather have some acne than a bad gut,

> but that is more difficult for an 18 year old boy to put into

> perspective, esp when I've seen little kids stare and point at him.

> Breaks my heart. And of course the social issues at that age are very

> important.

>

> Thanks again.

> Sally

>

[Guest guest]

FYI--I see this every time the 'safe' abx are listed: Levaquin is high risk for C. diff and is not a good choice at all for us IBDers. Cipro--in the same class of drugs, is a better choice.

As far as acne goes ( if it is indeed acne)--today, there are so many topical choices that work so well and are safe--e.g. Retin-A in low doses topically works well as does salicylic acid and benzoyl peroxide.

I had to take Zithromax this past year for ear congestion thought to be an infection of same. In 2 days I had D. I have never had D with abx before. Fortunately, I could stop b/c I didn't have an infection, just severe congestion. My point....'everyone's different'.

BTW, Clindamycin is the traditional abx to avoid as it is high risk for causing C. difficile.

Terry

[Guest guest]

> >Hi friends, I'm searching for a suggestion of

> >antibiotics that may be less damaging for my 3

> >y.o.(asd, seizures, allergic to penicillin), as

> >we are headed to the doc now for a bad cough.

> >All of her regressions have occurred while on

> >antibiotics, along with severe diarrhea etc.

>

> Here's something which might be of use:

>

> · Help! My doctor says I have to take

> antibiotics for <fill in the blank>. But I just

> know they're going to mess up my gut. Are there

> any antibiotics which are safe for SCDers?

>

> The following advice was originally from a

> Clostridium Difficile website (the origin of

> which I was unable to track). It is now posted on

> <http://www.breakingtheviciouscycle.info/>www.breakingtheviciouscycle.info.

>

> Antibiotics likely to cause problems:

> Clindamycin, Keflex, Ceftin, Ceclor, All other

> cephalosporins, Amoxicillin, Augmentin.

> Middle Of The Road (may or may not cause

> problems): Cipro, Levoflex (also Levaquin),

> Tequin, Avelox, Bactrim, Erythromycin, Biaxin, Zithromax

> Safe to Take: Macrodantin (Macrobid),

> Sulfa, Aminoglycoside, Flagyl (metronidiazole), Oral and IV Vancomycin

>

> As with anything medical, this

> recommendation is not intended to take the place

> of your doctor or healthcare professional's

> advice. But it may give you a starting point for

> discussing alternatives with him or her.

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

> Babette the Foundling Beagle

>

FWIW. My favorite antibiotics are olive leaf extract, astragalus and Manuka

Honey. Tamanu seems to offer much of the same benefits offered by Manuksa Honey,

like curing diabetic ulcers and severe burns, even after gangrene is present. I

have no experience with Tamanu, but if you need something for rashes or acne, it

would certainly be worth a little Googling.

For coughs we use an extract of English Ivy called Bronchial Soothe. It appears

to be far superior to the old cough syrups. At this point it has allowed my

grandson to put down his asthma medication. We pray that it will continue to do

so.

Les

[Guest guest]

Does anyone know where doxycycline/tetracycline falls in these categories?

When I found out I am hypoglycemia many decades ago, I was cautioned

about anything in the tetracycline family because these are very

broad spectrum antibiotics. So that means is that they try to kill

everything. The general rule is, take as narrow a one as will help

the problem (if you really need it) and then there " should " be fewer

problems. and of course up the probiotics!

[Guest guest]

Les,

Thanks so much for your list of natural antibiotics.

We have used Manuka Honey orally to help kill internal bacteria.

I found they make an acne cream too -

http://www.honeymarkproducts.com/Treating-Acne-with-Manuka-Honey.aspx

I also followed your suggestion and googled Tamanu - looks very interesting

http://www.medicinehunter.com/tamanu.htm

http://www.snowdriftfarm.com/form_tamanu.html

http://www.newchapter.com/products/tropical-tamanu

When I used the store locater in the New Chapter site, the one near me

said they do carry it, but are sold out.

Apparently Dr Oz (isn't he Oprah's buddy?) has been recommending it (not

sure for what purpose), and the store has a waiting list for the next order.

I found another source online and have it ordered. Certainly worth trying.

Thanks!

Sally

[Guest guest]

>

> > FWIW. My favorite antibiotics are olive leaf extract, astragalus and

> > Manuka Honey.

>

>

> What's your experience with Manuka honey? I just started taking it,

> and I can't tell yet if there's a difference. I'm on too many meds to

> be really in tune with my body. I'd be interested to know more about

> it and others' experiences, though!

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 75 mg 1x per day

> Prednisone 30 mg 1x per day

>

I probably mis-spoke when I mentioned Astragalus as an antibiotic. It's really

an immune system enhancer and adaptogen. In other countries it is given along

with Chemo to keep the chemo from tanking the immune system. Seems to me it

should help those who are taking steroids for the same reason. I think it was

considered illegal since it was from a root. I've been cured of Crohn's for over

ten years now so I really don't remember.

My veterinarian daughter wrote her senior paper on Manuka Honey. After she went

to work, she introduced it to the clinic where she practiced. It wasn't long

before they were bringing her all the trauma cases and even infected trauma

cases from other clinics. It was by far the best antibiotic they had ever used.

Severe burns were healed with minimum scarring and furred-over to look like new.

If you're interested you can go to <manukahoneyusa.com> and read the

testimonials and look at some of the pictures. Some say that they have cured

Crohn's and colitis with the honey alone. I am very skeptical about that, but

maybe it does help a limited number of folks.

I also mentioned olive leaf extract. It is anti-oxidant, anti-microbial (kills

Staph), anti-fungal, anti-malarial, anti-herpes, anti-cholesterol,

anti-diabetic, anti-parasitic and anti-hypertensive. Google it as I did. Don't

take my word for it.

Some Bible scholars are convinced that God was speaking of the olive tree when

He told Ezekiel that the fruit would be their food and the leaves their

medicine.

Since I am no longer a crohn's patient, I can't test it on myself, but if I was

I would try Reishi mushroom extract. It is an excellent adaptogen. I other words

it tweaks the bodily functions to make them operate properly. I gave some to a

systemic lupus patient and it erased some of his symptoms. It didn't completely

tame his immune system,but it made it a little less damaging. It might not work

with Crohn's at all, but I think I would give it a shot, with the strongest

extract I could get. I don't have any idea as to its legality. It may not be,

since it's fungus based.

Les

[Guest guest]

>

> > I've been cured of Crohn's for over ten years now so I really don't

> > remember.

>

>

> THAT'S SO COOL!! I can't wait until I can say that about my UC =) Did

> you do it with the SCD, or something else? I'm pretty sure I'm staying

> SCD anyways, but I'm just curious.

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 75 mg 1x per day

> Prednisone 30 mg 1x per day

>

You need not be curious.I was absolutely committed to SCD. Made my own catchup

and mayonnaise, lots of almond flour stuff. My loving daughters came home and

filled the freezers with many, many legal meals. When I got out of the hospital

I was driven by anger at the system, to get well in spite of all they did to me

and tried to do to me. Most of my doctors were truly awful, and that's why I

have embraced alternatives as I have. Through what I learned, I made myself well

and I guess that's the best way I have for sticking it to the system.

Stay with the SCD and don't cheat. Only after my symptoms were almost gone, did

I use some stuff that might be called " gray area " , like stevia and bifidus,

knowing that if it wasn't right it would let me know. My objective was to attack

the culprit bacteria in any way I could. It seems I got 'em.

Les

[Guest guest]

>

>

> Hey Alyssa,

> Just wanted to chime in. I bit the bullet and gave Manuka honey a try and

I've definitely seen an improvement in my symptoms. Hehe...and I haven't eaten

it as frequently lately and all of a sudden I'm not feeling as well!

> stacey

>

Alyssa and Stacey,

I wouldn't recommend one vendor over another, but I strongly recommend that you

buy from a source that sells " active " Manuka Honey with a rating of at least UMF

16. I tried to cut corners once and bought a product with a different rating

system. It was no better than local raw honey. Still OK but a lot less

horsepower than the real thing.

Les

[Guest guest]

Mara

I use Wedderspoon's Manuka Honey Active 16+

Stacey

> >>

> >>> FWIW. My favorite antibiotics are olive leaf extract, astragalus and

> >>> Manuka Honey.

> >>

> >>

> >> What's your experience with Manuka honey? I just started taking it,

> >> and I can't tell yet if there's a difference. I'm on too many meds to

> >> be really in tune with my body. I'd be interested to know more about

> >> it and others' experiences, though!

> >>

> >> Peace =)

> >> Alyssa 16 yo

> >> UC April 2008, dx Sept 2008

> >> SCD June 2009 (restarted)

> >> Azathioprine 75 mg 1x per day

> >> Prednisone 30 mg 1x per day

> >>

> >

> >

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

I use Wedderspoon's Manuka Honey Active 16+ and I was taking about a teaspoon in

the morning while I got all my lunch stuff & smoothie together. I also used to

have a little when I'd get home at night.

Stacey

>

> > Just wanted to chime in. I bit the bullet and gave Manuka honey a

> > try and I've definitely seen an improvement in my symptoms.

> > Hehe...and I haven't eaten it as frequently lately and all of a

> > sudden I'm not feeling as well!

>

>

> Thanks for chiming! =) How much/when are you taking it? I've been

> taking one teaspoon a morning on an empty stomach, because I read it

> 'coats the bowels to reduce inflammation.'

>

> Peace =)

> Alyssa 16 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Azathioprine 75 mg 1x per day

> Prednisone 30 mg 1x per day

>

[Guest guest]

I buy mine either at whole foods or a local health food store

Stacey

> >>

> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a

> >> > try and I've definitely seen an improvement in my symptoms.

> >> > Hehe...and I haven't eaten it as frequently lately and all of a

> >> > sudden I'm not feeling as well!

> >>

> >>

> >> Thanks for chiming! =) How much/when are you taking it? I've been

> >> taking one teaspoon a morning on an empty stomach, because I read it

> >> 'coats the bowels to reduce inflammation.'

> >>

> >> Peace =)

> >> Alyssa 16 yo

> >> UC April 2008, dx Sept 2008

> >> SCD June 2009 (restarted)

> >> Azathioprine 75 mg 1x per day

> >> Prednisone 30 mg 1x per day

> >>

> >

> >

>

[Guest guest]

Probably a good idea to start small though I started right out with a tsp twice

a day without any unwanted effects. You can check out

http://benefitofmanukahoney.com/ to read up on the benefits of the honey. It's

good for all sorts of issues including gastrointestinal disorders and ulcers.

Stacey

> > >> >>

> > >> >> > Just wanted to chime in. I bit the bullet and gave Manuka honey a

> > >> >> > try and I've definitely seen an improvement in my symptoms.

> > >> >> > Hehe...and I haven't eaten it as frequently lately and all of a

> > >> >> > sudden I'm not feeling as well!

> > >> >>

> > >> >>

> > >> >> Thanks for chiming! =) How much/when are you taking it? I've been

> > >> >> taking one teaspoon a morning on an empty stomach, because I read it

> > >> >> 'coats the bowels to reduce inflammation.'

> > >> >>

> > >> >> Peace =)

> > >> >> Alyssa 16 yo

> > >> >> UC April 2008, dx Sept 2008

> > >> >> SCD June 2009 (restarted)

> > >> >> Azathioprine 75 mg 1x per day

> > >> >> Prednisone 30 mg 1x per day

> > >> >>

> > >> >

> > >> >

> > >>

> > >

> > >

> >

>