Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Thanks for the reply Alyssa, Did you have to up the dose of the pred and azathioprine? I thought you were on 20 and 50 before. Have you tried entocort enemas? Originally they helped me overnight, but this last flare I used them for 2 months straight (even though your not supposed to) and eventually they started working. I'm trying to taper off them now and doing ok so far.-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: luckycharms@...Date: Sat, 15 May 2010 14:49:39 -0400Subject: Re: How am I going to stay SCD while traveling all the time? On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. I bet you could stay SCD and not stress too much at the same time. I'm sure there's a happy medium. You might have to eat more advanced foods than you would normally be ready for, but advanced SCD is better than non-SCD. There are plenty of SCD foods that you could prepare a bunch of ahead of time and pack for the plane. Just get a bunch of single-serving size tupperwares and try to make a big batch of something every weekend. Since it's only you eating it, I'm sure you'll always have leftovers to freeze, and you'll gradually build up the foods you have in your freezer. I'm sure your hotel would have a microwave and a fridge/freezer SOMEWHERE that you could use, and you could just defrost meals as needed. In restaurants you can order fried eggs, plain salads, and plain meats and just bring your own shredded cheese, seasonings, etc... Nut flour goodies, larabars, homemade jerky, etc...are all easy to bring when traveling. If worst comes to worst, you could always just hit a grocery store and pick up a block of cheese, some plain nuts, and some fruit/veggies for a snack. Pretty advanced with the whole nuts and raw veggies and such, but I would do that before getting a non-SCD meal. I bet you could do it, and I'm sure the more you travel, it will only get easier. So if you can get through the first few times on SCD, you can probably do all the others.CONGRATULATIONS on getting your dream job by the way!!!! That's great! I do hope you manage to stay SCD though, because in the long run it probably will end up helping you. It just isn't enough for now. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Hi , It's doable, just takes some planning. Get a hotel room where you have a fridge and, if possible, a microwave. You can totally cobble together a week of SCD food between what you bring, what you buy at the grocery store, and what you can get at restaurants. I know many people have made great suggestions on here, and I think you can search the posts by subject, so perhaps you can track down some old posts. You can pack frozen meals and baked goods, buy fruit, vegetables, nut butters, cheese, order plain food at restaurants that are willing to accommodate. You'll probably find a good rhythm after a while. One thing I would recommend is pack more than you think you need of things you're bringing that are homemade, like baked goods. You can do lots in a microwave. I've done eggs and veggies and, while not delightful, they were decent. I just got back from a week-long work trip. I was driving all over Texas, and it actually would have been much easier to just go to one destination for one week so I could go grocery shopping, etc. Also, all the food I brought I could have brought via plane. Take heart, SCD friend--you really can do this. Best, SCD 3.5 years Crohn's 13 years > > > I'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. > > I don't know how i'll be able to get ready for a trip, AND cook a weeks worth of food plus bring it with me on a plane??? I'm sure i'll be able to buy foods from a grocery store once i'm at my destination but my hotel won't have a stove or any kind of kitchen in it. > > On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. > > I know there's no easy way around this, so worst case scenario i'll eat " semi-legal " while i'm gone. Like steaks and cooked veggies even if I don't have the option of getting one that's not pre-marinated. I'm just hoping my body won't go nuts.... so i'm thinking maybe Is hould slowly start adding in some things that I might come across while i'm gone so I can get my body used to dealing with it again. > > Any hope? suggestions? I'd go as far as paying for someone to send me meals to my hotel while i'm gone, but at the same time i'd feel like a huge inconvenience for doing that. > > - > UC - 1+ years > SCD - 11 months 100% strict and 4 months restricted diet. > Colazol - 9 pills a day > Prednisone 25mg > entocort With vit E mixed in > Back to intro/stage 1 for now. > > > > > > > > > > _________________________________________________________________ > Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. > http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_2 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Thanks for the reply Alyssa, Did you have to up the dose of the pred and azathioprine? I thought you were on 20 and 50 before. Pred I never got below 25, and had to go back up to 30, Azathioprine I was on 50, but apparently the amount circulating in my blood wasn't in the target range so I had to up that to 75. Hopefully that will kick in soon so I can get off the steroids, but for the moment I'm having solid BMs at least =)Have you tried entocort enemas? I really wanted to, but my GI said it would only help the end portion of my colon and I was inflamed all the way through. So blech. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 ,My suggestion for the travel is to do what you can to prepare, chose wisely when eating out, stay super-strict when you are home. I'll bet you will be fine. You might take longer to completely heal, but hopefully you will avoid adding too much stress and you will avoid a big flare.I would not recommend adding illegals in to 'help your body adjust.' It won't, but the bacteria will love it. You will get plenty of accidental illegals while you are traveling, it isn't helpful to give your body illegals when you are home too.AmeliaTo: btvc-scd Sent: Sat, May 15, 2010 8:05:04 PMSubject: RE: How am I going to stay SCD while traveling all the time? Thanks for the reply Alyssa, Did you have to up the dose of the pred and azathioprine? I thought you were on 20 and 50 before. Have you tried entocort enemas? Originally they helped me overnight, but this last flare I used them for 2 months straight (even though your not supposed to) and eventually they started working. I'm trying to taper off them now and doing ok so far.-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD@yahoogroup s.comFrom: luckycharms@ nc.rr.comDate: Sat, 15 May 2010 14:49:39 -0400Subject: Re: How am I going to stay SCD while traveling all the time? On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. I bet you could stay SCD and not stress too much at the same time. I'm sure there's a happy medium. You might have to eat more advanced foods than you would normally be ready for, but advanced SCD is better than non-SCD. There are plenty of SCD foods that you could prepare a bunch of ahead of time and pack for the plane. Just get a bunch of single-serving size tupperwares and try to make a big batch of something every weekend. Since it's only you eating it, I'm sure you'll always have leftovers to freeze, and you'll gradually build up the foods you have in your freezer. I'm sure your hotel would have a microwave and a fridge/freezer SOMEWHERE that you could use, and you could just defrost meals as needed. In restaurants you can order fried eggs, plain salads, and plain meats and just bring your own shredded cheese, seasonings, etc... Nut flour goodies, larabars, homemade jerky, etc...are all easy to bring when traveling. If worst comes to worst, you could always just hit a grocery store and pick up a block of cheese, some plain nuts, and some fruit/veggies for a snack. Pretty advanced with the whole nuts and raw veggies and such, but I would do that before getting a non-SCD meal. I bet you could do it, and I'm sure the more you travel, it will only get easier. So if you can get through the first few times on SCD, you can probably do all the others.CONGRATULATIONS on getting your dream job by the way!!!! That's great! I do hope you manage to stay SCD though, because in the long run it probably will end up helping you. It just isn't enough for now. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Congrats on getting your dream job! What helped me tremendously when I last traveled out of town was the Menu Card (in the files) which you present to your waiter to figure out what you can eat from their menu. Or what the chef can recommend. It worked really well for me. I had to enlarge the card so I could read it without my glasses though. If I were in your shoes I would still carry some SCD legal food in my suitcase – at least some muffins, cookies, nuts, something to snack on in case you get hungry. I’ve found most baked goods freeze well. And I would think you could buy bananas and legal cheese if you could get to a grocery store in whatever city you are in. Just some thoughts. Traveling always dehydrates me, so be aware and drink lots of fluid. I also now keep a small vial of sea salt in my purse to aid in re-hydration if needed. Not suggesting you get a purse…but it comes in handy. Carol CD 22 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of T I'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 You're right. Originally my thoughts were geared towards what I can do to prepare my body for those illegals. I don't want to be in the middle of a big job, have to eat an illegal for the first time, and have it cause some big reaction that takes me out of commission. If that's going to happen I want it to happen now while I can deal with it. However, now I don't think the risk is worth it so i'll just do what I have to, when I have to -UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: bhide_thehague@...Date: Sat, 15 May 2010 13:21:35 -0700Subject: Re: How am I going to stay SCD while traveling all the time? ,My suggestion for the travel is to do what you can to prepare, chose wisely when eating out, stay super-strict when you are home. I'll bet you will be fine. You might take longer to completely heal, but hopefully you will avoid adding too much stress and you will avoid a big flare.I would not recommend adding illegals in to 'help your body adjust.' It won't, but the bacteria will love it. You will get plenty of accidental illegals while you are traveling, it isn't helpful to give your body illegals when you are home too.AmeliaFrom: T <scdguy26 (AT) hotmail (DOT) com>To: btvc-scd Sent: Sat, May 15, 2010 8:05:04 PMSubject: RE: How am I going to stay SCD while traveling all the time? Thanks for the reply Alyssa, Did you have to up the dose of the pred and azathioprine? I thought you were on 20 and 50 before. Have you tried entocort enemas? Originally they helped me overnight, but this last flare I used them for 2 months straight (even though your not supposed to) and eventually they started working. I'm trying to taper off them now and doing ok so far.-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD@yahoogroup s.comFrom: luckycharms@ nc.rr.comDate: Sat, 15 May 2010 14:49:39 -0400Subject: Re: How am I going to stay SCD while traveling all the time? On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. I bet you could stay SCD and not stress too much at the same time. I'm sure there's a happy medium. You might have to eat more advanced foods than you would normally be ready for, but advanced SCD is better than non-SCD. There are plenty of SCD foods that you could prepare a bunch of ahead of time and pack for the plane. Just get a bunch of single-serving size tupperwares and try to make a big batch of something every weekend. Since it's only you eating it, I'm sure you'll always have leftovers to freeze, and you'll gradually build up the foods you have in your freezer. I'm sure your hotel would have a microwave and a fridge/freezer SOMEWHERE that you could use, and you could just defrost meals as needed. In restaurants you can order fried eggs, plain salads, and plain meats and just bring your own shredded cheese, seasonings, etc... Nut flour goodies, larabars, homemade jerky, etc...are all easy to bring when traveling. If worst comes to worst, you could always just hit a grocery store and pick up a block of cheese, some plain nuts, and some fruit/veggies for a snack. Pretty advanced with the whole nuts and raw veggies and such, but I would do that before getting a non-SCD meal. I bet you could do it, and I'm sure the more you travel, it will only get easier. So if you can get through the first few times on SCD, you can probably do all the others.CONGRATULATIONS on getting your dream job by the way!!!! That's great! I do hope you manage to stay SCD though, because in the long run it probably will end up helping you. It just isn't enough for now. Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 I'm dedicated to SCD, but I wouldn't go as far as getting a purse! thanks for the congrats Hopefully I can survive without a huge flare! I don't want to have to quit because of something I don't deserve!-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: cpompilo@...Date: Sat, 15 May 2010 15:24:41 -0500Subject: RE: How am I going to stay SCD while traveling all the time? Congrats on getting your dream job! What helped me tremendously when I last traveled out of town was the Menu Card (in the files) which you present to your waiter to figure out what you can eat from their menu. Or what the chef can recommend. It worked really well for me. I had to enlarge the card so I could read it without my glasses though. If I were in your shoes I would still carry some SCD legal food in my suitcase – at least some muffins, cookies, nuts, something to snack on in case you get hungry. I’ve found most baked goods freeze well. And I would think you could buy bananas and legal cheese if you could get to a grocery store in whatever city you are in. Just some thoughts. Traveling always dehydrates me, so be aware and drink lots of fluid. I also now keep a small vial of sea salt in my purse to aid in re-hydration if needed. Not suggesting you get a purse…but it comes in handy. Carol CD 22 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of T I'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. _,_._,___ The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 LOL! Computer bag. MaraI'm dedicated to SCD, but I wouldn't go as far as getting a purse! thanks for the congrats Hopefully I can survive without a huge flare! I don't want to have to quit because of something I don't deserve!-UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: cpompilo@...Date: Sat, 15 May 2010 15:24:41 -0500Subject: RE: How am I going to stay SCD while traveling all the time?Congrats on getting your dream job!What helped me tremendously when I last traveled out of town was the Menu Card (in the files) which you present to your waiter to figure out what you can eat from their menu. Or what the chef can recommend. It worked really well for me. I had to enlarge the card so I could read it without my glasses though.If I were in your shoes I would still carry some SCD legal food in my suitcase – at least some muffins, cookies, nuts, something to snack on in case you get hungry. I’ve found most baked goods freeze well. And I would think you could buy bananas and legal cheese if you could get to a grocery store in whatever city you are in. Just some thoughts.Traveling always dehydrates me, so be aware and drink lots of fluid. I also now keep a small vial of sea salt in my purse to aid in re-hydration if needed.Not suggesting you get a purse…but it comes in handy.CarolCD 22 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of TI'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. _,_._,___The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Not suggesting you get a purse…but it comes in handy.Lol!! Man-purse...attractive =) Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 Hey , That is wonderful news about the job. What cities are you traveling to? People familiar with them can tell you what restaurants are safe. I always stay in a Residence Inn type hotel and try to find the nearest whole foods or trader joes. If you have eggs, cheese, nut butters and some precut fruit, you can get a meal together quickly. When you are home, cook and freeze in large quantities. You may need to buy an extra freezer. The challenge will be the yogurt, but with an extra yogurt maker you could make a lot at a time. Don't give up- I think you can do it! PJ > > > Thanks for the reply Alyssa, Did you have to up the dose of the pred > > and azathioprine? I thought you were on 20 and 50 before. > > Pred I never got below 25, and had to go back up to 30, Azathioprine I > was on 50, but apparently the amount circulating in my blood wasn't in > the target range so I had to up that to 75. Hopefully that will kick > in soon so I can get off the steroids, but for the moment I'm having > solid BMs at least =) > > > > > Have you tried entocort enemas? > > I really wanted to, but my GI said it would only help the end portion > of my colon and I was inflamed all the way through. So blech. > > Peace =) > Alyssa 16 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > Azathioprine 75 mg 1x per day > Prednisone 30 mg 1x per day > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 If we could build up to tolerating illegals- we would not be doing SCD!! We can't tolerate them. Think positive . You don't want to be having gut issues with your new job and you are finally feeling better. Stake out some restaurants in the cities you are traveling to. Talk to the owner/chefs about what is safe to eat. Even a breakfast place can poach you some eggs. It will take some creativity- but I trust you can do this. No purse? How about a cool lunchbox?? PJ > > > You're right. Originally my thoughts were geared towards what I can do to prepare my body for those illegals. I don't want to be in the middle of a big job, have to eat an illegal for the first time, and have it cause some big reaction that takes me out of commission. If that's going to happen I want it to happen now while I can deal with it. However, now I don't think the risk is worth it so i'll just do what I have to, when I have to > > - > UC - 1+ years > SCD - 11 months 100% strict and 4 months restricted diet. > Colazol - 9 pills a day > Prednisone 25mg > entocort With vit E mixed in > Back to intro/stage 1 for now. > > > > > > > > > > > To: BTVC-SCD > From: bhide_thehague@... > Date: Sat, 15 May 2010 13:21:35 -0700 > Subject: Re: How am I going to stay SCD while traveling all the time? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > , > > My suggestion for the travel is to do what you can to prepare, chose wisely when eating out, stay super-strict when you are home. I'll bet you will be fine. You might take longer to completely heal, but hopefully you will avoid adding too much stress and you will avoid a big flare. > > I would not recommend adding illegals in to 'help your body adjust.' It won't, but the bacteria will love it. You will get plenty of accidental illegals while you are traveling, it isn't helpful to give your body illegals when you are home too. > > Amelia > > > > To: btvc-scd > Sent: Sat, May 15, 2010 8:05:04 PM > Subject: RE: How am I going to stay SCD while traveling all the time? > > > > > > > > > > > > > > > > > > > > Thanks for the reply Alyssa, Did you have to up the dose of the pred and azathioprine? I thought you were on 20 and 50 before. > > Have you tried entocort enemas? Originally they helped me overnight, but this last flare I used them for 2 months straight (even though your not supposed to) and eventually they started working. I'm trying to taper off them now and doing ok so far. > > - > UC - 1+ years > SCD - 11 months 100% strict and 4 months restricted diet. > Colazol - 9 pills a day > Prednisone 25mg > entocort With vit E mixed in > Back to intro/stage 1 for now. > > > > > > > > > > > > To: BTVC-SCD@yahoogroup s.com > From: luckycharms@ nc.rr.com > Date: Sat, 15 May 2010 14:49:39 -0400 > Subject: Re: How am I going to stay SCD while traveling all the time? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. > I bet you could stay SCD and not stress too much at the same time. I'm sure there's a happy medium. You might have to eat more advanced foods than you would normally be ready for, but advanced SCD is better than non-SCD. There are plenty of SCD foods that you could prepare a bunch of ahead of time > and pack for the plane. Just get a bunch of single-serving size tupperwares and try to make a big batch of something every weekend. Since it's only you eating it, I'm sure you'll always have leftovers to freeze, and you'll gradually build up the foods you have in your freezer. I'm sure your hotel would have a microwave and a fridge/freezer SOMEWHERE that you could use, and you could just defrost meals as needed. In restaurants you can order fried eggs, plain salads, and plain meats and just bring your own shredded cheese, seasonings, etc... Nut flour goodies, larabars, homemade jerky, etc...are all easy to bring when traveling. If worst comes to worst, you could always just hit a grocery store and pick up a block of cheese, some plain nuts, and some fruit/veggies for a snack. Pretty advanced with the whole nuts and raw veggies and such, but I would do that before getting a non-SCD meal. I bet you could do it, and I'm sure the more you travel, it will > only get easier. So if you can get through the first few times on SCD, you can probably do all the others. > CONGRATULATIONS on getting your dream job by the way!!!! That's great! I do hope you manage to stay SCD though, because in the long run it probably will end up helping you. It just isn't enough for now. > Peace =)Alyssa 16 yo UC April 2008, dx Sept 2008SCD June 2009 (restarted)Azathioprine 75 mg 1x per dayPrednisone 30 mg 1x per day > > > > > > > > > > > > > > > > Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. > > > > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. > http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_1 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2010 Report Share Posted May 15, 2010 At 03:32 PM 5/15/2010, you wrote: I'm dedicated to SCD, but I wouldn't go as far as getting a purse! So use what my non-SCD husband uses when he carries SCD foods to work: an insulated lunch bag with a cold pack in it! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Babette the Foundling Beagle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Hi Congratulations on your new job - and getting to do lots of travelling. Exciting and terrifying at the same time! And fantastic news that your B has finally stopped! Its been a long road for you, but how wonderful to hear that things are changing. I found when travelling that if I dripped the yogurt, I would have a concentrated form of it available for a longer period, and all I needed to do was have a tablespoonful a day. I also used to find the cheesecake the only thing that would make me feel full in the early days, and I think if you packaged it sturdily, it would travel well. I also make a double-recipe of the Simple Bread from Elana's Pantry (http://www.elanaspantry.com/simple-bread/), which lasts me all week. This with butter, nut butters, cheese, prosciutto, grilled veg, etc (maybe not all at the same time!) goes a long way. The dripped yogurt also makes a great spread, along with some honey. You could also find some frozen or fresh fruit (I'm currently using frozen raspberries), and just let them cook down until you get a jam-type consistency. Again, its concentrated, so will take up less room, but still work really well with the bread, especially with nut butter. I don't know if this is an option for you, but when we travel, I try to find a short-term apartment rental, so that I have a kitchen available. If we have to stay at a hotel, then I speak to their staff, explaining that I am on a medically-restricted diet and have to bring some special food items with me, which require refrigeration, and ask whether it would be possible to keep them in their fridge or freezer? I put everything into one large thermal freezer bag and label it with my details, to make it less likely that it will be thrown away. You could always make a quick call ahead of time to the hotel you'll be staying at to speak with the manager. If you just don't have time to do loads of cooking when you're at home between trips, could you hire a personal chef to prepare a large quantity of your chosen SCD recipes, and then you could freeze them for use (for travel only) for 2-4 months at a time? Or you could work together, and make twice the amount of food! Good luck with SCD travel - it can be done! And tremendous news about your healing so far! I hope it continues and improves. Licia colitis/SCD feb 2006 no meds since july 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 At the bubba keg site they have insulated thermos with a bottom part for dry foods. Check amazon.com or camping stores. Tiffin.com (I think) has something similar.  There's two places (DW and SCDBakery) for pre-made baked goods. You may want to ask about DW and other places who may sell SCD yogurt locally but they won't ship. I lost all my bookmarks reformatting the hard drive. I think there's a place in Austin who sells goat dccc, milk and yogurt but I'm not sure it's 24 hour. And someone mentioned in PA, a place to get yogurt--Amish maybe? There's a place in Salt Lake, kind of like a farmer's market that sells homemade yogurt or at least you could get fresh fruit/meat/eggs/milk if the yogurt isn't legal. You'll probably have a blast checking out all the local markets finding things.  Good luck, just some ideas.Debbie 41 cd  Hi Congratulations on your new job - and getting to do lots of travelling. Exciting and terrifying at the same time! And fantastic news that your B has finally stopped! Its been a long road for you, but how wonderful to hear that things are changing. I found when travelling that if I dripped the yogurt, I would have a concentrated form of it available for a longer period, and all I needed to do was have a tablespoonful a day. I also used to find the cheesecake the only thing that would make me feel full in the early days, and I think if you packaged it sturdily, it would travel well. I also make a double-recipe of the Simple Bread from Elana's Pantry (http://www.elanaspantry.com/simple-bread/), which lasts me all week. This with butter, nut butters, cheese, prosciutto, grilled veg, etc (maybe not all at the same time!) goes a long way. The dripped yogurt also makes a great spread, along with some honey. You could also find some frozen or fresh fruit (I'm currently using frozen raspberries), and just let them cook down until you get a jam-type consistency. Again, its concentrated, so will take up less room, but still work really well with the bread, especially with nut butter. I don't know if this is an option for you, but when we travel, I try to find a short-term apartment rental, so that I have a kitchen available. If we have to stay at a hotel, then I speak to their staff, explaining that I am on a medically-restricted diet and have to bring some special food items with me, which require refrigeration, and ask whether it would be possible to keep them in their fridge or freezer? I put everything into one large thermal freezer bag and label it with my details, to make it less likely that it will be thrown away. You could always make a quick call ahead of time to the hotel you'll be staying at to speak with the manager. If you just don't have time to do loads of cooking when you're at home between trips, could you hire a personal chef to prepare a large quantity of your chosen SCD recipes, and then you could freeze them for use (for travel only) for 2-4 months at a time? Or you could work together, and make twice the amount of food! Good luck with SCD travel - it can be done! And tremendous news about your healing so far! I hope it continues and improves.Liciacolitis/SCD feb 2006no meds since july 2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 Hmmm. . . it sounds like the yogurts you're referring to aren't SCD yogurt, though, right? > > > > > > > Hi > > > > Congratulations on your new job - and getting to do lots of travelling. > > Exciting and terrifying at the same time! And fantastic news that your B has > > finally stopped! Its been a long road for you, but how wonderful to hear > > that things are changing. > > > > I found when travelling that if I dripped the yogurt, I would have a > > concentrated form of it available for a longer period, and all I needed to > > do was have a tablespoonful a day. I also used to find the cheesecake the > > only thing that would make me feel full in the early days, and I think if > > you packaged it sturdily, it would travel well. I also make a double-recipe > > of the Simple Bread from Elana's Pantry ( > > http://www.elanaspantry.com/simple-bread/), which lasts me all week. This > > with butter, nut butters, cheese, prosciutto, grilled veg, etc (maybe not > > all at the same time!) goes a long way. The dripped yogurt also makes a > > great spread, along with some honey. You could also find some frozen or > > fresh fruit (I'm currently using frozen raspberries), and just let them cook > > down until you get a jam-type consistency. Again, its concentrated, so will > > take up less room, but still work really well with the bread, especially > > with nut butter. I don't know if this is an option for you, but when we > > travel, I try to find a short-term apartment rental, so that I have a > > kitchen available. If we have to stay at a hotel, then I speak to their > > staff, explaining that I am on a medically-restricted diet and have to bring > > some special food items with me, which require refrigeration, and ask > > whether it would be possible to keep them in their fridge or freezer? I put > > everything into one large thermal freezer bag and label it with my details, > > to make it less likely that it will be thrown away. You could always make a > > quick call ahead of time to the hotel you'll be staying at to speak with the > > manager. > > > > If you just don't have time to do loads of cooking when you're at home > > between trips, could you hire a personal chef to prepare a large quantity of > > your chosen SCD recipes, and then you could freeze them for use (for travel > > only) for 2-4 months at a time? Or you could work together, and make twice > > the amount of food! > > > > Good luck with SCD travel - it can be done! And tremendous news about your > > healing so far! I hope it continues and improves. > > > > Licia > > colitis/SCD feb 2006 > > no meds since july 2006 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 It is possible to purchase SCD yogurt. There's a lady in Memphis that sells SCD yogurt and lots of other SCD foods. She started off years ago cooking for a friend that had a strong medical need for SCD but was too weak to do the cooking. Now the food lady cooks for lots of SCD folks and even ships a lot of it around the country (obviously the local folks have a much greater selection). We have a lot of people in this area that have been on SCD for 5-10 years (simply as a healthy lifestyle) and they occassionally use a bit of c*c*a or other illegals, so, like anything else, you have to read the ingredient lists to make sure each item has only ingredients that your body can tolerate. Just google the food lady To: BTVC-SCD Sent: Sun, May 16, 2010 9:57:51 AMSubject: Re: How am I going to stay SCD while traveling all the time? Hmmm. . . it sounds like the yogurts you're referring to aren't SCD yogurt, though, right? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2010 Report Share Posted May 16, 2010 You're right. Originally my thoughts were geared towards what I can do to prepare my body for those illegals. I don't want to be in the middle of a big job, have to eat an illegal for the first time, and have it cause some big reaction that takes me out of commission. If that's going to happen I want it to happen now while I can deal with it. However, now I don't think the risk is worth it so i'll just do what I have to, when I have to , I know we can all understand your concern about not wanting a problem during these important work things. However, seems to me that if you cause a reaction ahead of time, it's going to backfire on you because then if/when you have one while travelling it will probably be worse. So maybe another good thing about not doing this is that you'll worry enough about illegals to be super duper on the lookout for them so you can avoid them! I'm sure with enough planning, you will probably do just fine. But it does take that planning and organizing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Hey , hey all - best wishes to you on your new job!! CONGRATZ!!!!Fear not about staying SCD legal. Where there is a will, there is a way :)If you don't want a purse, maybe you will find this cool business looking 'slim lunch bag' cooler helpful: http://www.ebags.com/product/ebags/slim-lunch-box/88875 ebags makes some good stuff, you can check out coolers in general on their site: http://www.ebags.com/category/lunch-bags-and-coolers/2008250?seeall=true & lastterm=cooler I use their regular lunch cooler - love it. it's very sturdy compared to other stuff I've seen, and it's got a shoulder strap, I don't think the slim lunch bag does, not sure (but maybe with some doing one could be attached - maybe by a seamstress/tailor?): http://www.ebags.com/product/ebags/lunch-cooler/19846 for finding SCD legal foods, I think meat actually will be the easiest to find - I wouldn't go compromising on a marinated steak. In general, I would just plan to spend a little more on food than usual. A quality restaurant usually will have 100% beef hamburger, I always ask them if it is. also, when ordering food/meat, I always specifiy - no sauce, no seasonings. I find in chinese food restaurants, I can order beef with no sauce, and they'll usually ask " steamed? " and I'll say yes, please, and no sauce or seasonings, and I can get steamed beef plain. also, steamed veggies plain. I found in my years, especially back when I was vegan (pre-SCD), carefully perusing the menu to find potentials I would just order a bit of something off one meal and combine it with another. I found that when explaining I had dietary restrictions/problems, people were frequently extremely friendly and willing to help, and often even cook up food especially that they had lying around the kitchen anyways. I often find also you can get stuff in ways that just isn't on the menu in general - as a teenager i learned this is a rule of thumb with Chinese restaurants. There is so much to put on a menu, they have to limit it somehow. especially for marketing purposes, presentation. But if you go to any chinese food restaurant I've been to and they don't have something on the menu you've seen at another one, if you ask for it, they'll be like " ya sure! " . Sometimes at some restaurants, like asian restaurants, pineapple is on the menu, so if you just ask them to cook up some pineapple plain for you to eat with your meat they might, if you can eat fruit, and if you need it cooked. if not needed cooked, they might just give it to you with your meal Also, California and many other places are littered with Whole Foods, who usually have prepared foods like rotissarie chicken etc and other meats. and often grilled veggies (sometimes in the hot foods section, sometimes prepackaged in the take home meals section). other supermarkets often sell rotissarie chicken too - if going somewhere, it might relieve stress to research ahead, look up restaurants and supermarkets, call supermarkets to find out if they sell rotissarie chickens. You can even call restaurants. You can also call your hotel and ask them questions about resources in the area. People are often very nice and willing to help - if you catch someone who isn't, call again later and get someone nice! this trick has helped so much throughout life. if you're hotel is shady, call another hotel in the area that's nicer and ask _them_ for advice on resources! ;)here's the webpage for whole foods locations, you can search by state, and they are in vancouver and ontario too: http://www.wholefoodsmarket.com/stores/once you find/get food, it's good to have a fridge in the room, also in a pinch styrofoam coolers are mad cheap and usually easy to find, and ice is often free at hotels/motels. I've done that. Also, if staying somewhere and no kitchen, if you really want to you could buy a hotplate type electric burner, one or two burner, and bring it. I'm not sure how much you want to pack heh. Also, you could always send stuff ahead of time to your hotel (food or other supplies) - just call them and tell them you need to receive a package, and you can have it shipped to arrive when you do, or ask them if it's ok if they receive it b4 you get there, I'm sure usually it would be. Are you renting a car when you arrive? transport really isn't so hot outside big cities, and in big cities food is really much easier to get anyways.Also, I really recommend hitting up SCDers. I'm in NYC, if you were around I'd be more than happy to hook you up with yogurt or whatever I could I would strategize ahead of time, and focus on foods you are good with and will last you/nourish you/ fill you up. Bananas are great, avocados and butter (or I recommend ghee) are good sources of fat and filling. If you can eat fruit, and you need it cooked, you might be able to find someplace that makes cakes or something or tarts and has fruit lying around and ask them to just cook up a little for you, maybe berries and stuff. remember to ask them no added sugar - they do that alot, it's almost customary to add sugar to fruit when you cook it - brings out flavor. Also, to make food last freezing helps, decreases some nourishment but is worth it in a pinch. might help if you want to ship something too.hotels with kitchens are handy if you can swing it - is your employer choosing the hotel? can you make a special request with that? if you can, residence inn hotels are good, here's a location finder for them: http://www.marriott.com/residence-inn/travel.miother hotels sometimes have kitchens too, you could call around.if you are in a city, vegetarian friendly places are often really great with veggies, especially grilled veggies like zucchini and eggplant, or steamed veggies. If they have them around, you can always ask them to cook them especially for you - and you can always order large quantities and stock up for later This totally can be done I would do what you can to reduce stress, plan ahead, talk it out with people, expect the unexpected, keep a sense of humor. travelling can cause stress anyways - I would do everything possible to reduce that, be prepared for stuff, be solidly equipped and packed and informed, be loose and ready to go with whatever flow comes. Get yourself feeling like you are on top of things as much as possible. little things can make things so much easier. don't stress yourself out in the process of removing stress and planning either remember to enjoy yourself too!! and also, each trip should get easier Have a great time on your journeys, and remember it never hurts to ask.Best!  I'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. I don't know how i'll be able to get ready for a trip, AND cook a weeks worth of food plus bring it with me on a plane??? I'm sure i'll be able to buy foods from a grocery store once i'm at my destination but my hotel won't have a stove or any kind of kitchen in it. On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. I know there's no easy way around this, so worst case scenario i'll eat " semi-legal " while i'm gone. Like steaks and cooked veggies even if I don't have the option of getting one that's not pre-marinated. I'm just hoping my body won't go nuts.... so i'm thinking maybe Is hould slowly start adding in some things that I might come across while i'm gone so I can get my body used to dealing with it again. Any hope? suggestions? I'd go as far as paying for someone to send me meals to my hotel while i'm gone, but at the same time i'd feel like a huge inconvenience for doing that.- UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 Oh yeah, also it's good to find food containers that are freezer/microwave safe, if you're going to microwave. I don't know what your financial budget is for these things, but Cambro makes some of the best here's a description of some of their products from a really expensive site:http://www.chefsresource.com/foodservice-storage.htmland here's a place it looks like you can buy their products in batches of 6 for great deals, like 40% off (although shipping looks a little high) http://www.instawares.com/cambro.0.62.0.0.htmremember lids for this line are sold separatelyBest! Hey , hey all - best wishes to you on your new job!! CONGRATZ!!!! Fear not about staying SCD legal. Where there is a will, there is a way :)If you don't want a purse, maybe you will find this cool business looking 'slim lunch bag' cooler helpful: http://www.ebags.com/product/ebags/slim-lunch-box/88875 ebags makes some good stuff, you can check out coolers in general on their site: http://www.ebags.com/category/lunch-bags-and-coolers/2008250?seeall=true & lastterm=cooler I use their regular lunch cooler - love it. it's very sturdy compared to other stuff I've seen, and it's got a shoulder strap, I don't think the slim lunch bag does, not sure (but maybe with some doing one could be attached - maybe by a seamstress/tailor?): http://www.ebags.com/product/ebags/lunch-cooler/19846 for finding SCD legal foods, I think meat actually will be the easiest to find - I wouldn't go compromising on a marinated steak. In general, I would just plan to spend a little more on food than usual. A quality restaurant usually will have 100% beef hamburger, I always ask them if it is. also, when ordering food/meat, I always specifiy - no sauce, no seasonings. I find in chinese food restaurants, I can order beef with no sauce, and they'll usually ask " steamed? " and I'll say yes, please, and no sauce or seasonings, and I can get steamed beef plain. also, steamed veggies plain. I found in my years, especially back when I was vegan (pre-SCD), carefully perusing the menu to find potentials I would just order a bit of something off one meal and combine it with another. I found that when explaining I had dietary restrictions/problems, people were frequently extremely friendly and willing to help, and often even cook up food especially that they had lying around the kitchen anyways. I often find also you can get stuff in ways that just isn't on the menu in general - as a teenager i learned this is a rule of thumb with Chinese restaurants. There is so much to put on a menu, they have to limit it somehow. especially for marketing purposes, presentation. But if you go to any chinese food restaurant I've been to and they don't have something on the menu you've seen at another one, if you ask for it, they'll be like " ya sure! " . Sometimes at some restaurants, like asian restaurants, pineapple is on the menu, so if you just ask them to cook up some pineapple plain for you to eat with your meat they might, if you can eat fruit, and if you need it cooked. if not needed cooked, they might just give it to you with your meal Also, California and many other places are littered with Whole Foods, who usually have prepared foods like rotissarie chicken etc and other meats. and often grilled veggies (sometimes in the hot foods section, sometimes prepackaged in the take home meals section). other supermarkets often sell rotissarie chicken too - if going somewhere, it might relieve stress to research ahead, look up restaurants and supermarkets, call supermarkets to find out if they sell rotissarie chickens. You can even call restaurants. You can also call your hotel and ask them questions about resources in the area. People are often very nice and willing to help - if you catch someone who isn't, call again later and get someone nice! this trick has helped so much throughout life. if you're hotel is shady, call another hotel in the area that's nicer and ask _them_ for advice on resources! ;)here's the webpage for whole foods locations, you can search by state, and they are in vancouver and ontario too: http://www.wholefoodsmarket.com/stores/once you find/get food, it's good to have a fridge in the room, also in a pinch styrofoam coolers are mad cheap and usually easy to find, and ice is often free at hotels/motels. I've done that. Also, if staying somewhere and no kitchen, if you really want to you could buy a hotplate type electric burner, one or two burner, and bring it. I'm not sure how much you want to pack heh. Also, you could always send stuff ahead of time to your hotel (food or other supplies) - just call them and tell them you need to receive a package, and you can have it shipped to arrive when you do, or ask them if it's ok if they receive it b4 you get there, I'm sure usually it would be. Are you renting a car when you arrive? transport really isn't so hot outside big cities, and in big cities food is really much easier to get anyways.Also, I really recommend hitting up SCDers. I'm in NYC, if you were around I'd be more than happy to hook you up with yogurt or whatever I could I would strategize ahead of time, and focus on foods you are good with and will last you/nourish you/ fill you up. Bananas are great, avocados and butter (or I recommend ghee) are good sources of fat and filling. If you can eat fruit, and you need it cooked, you might be able to find someplace that makes cakes or something or tarts and has fruit lying around and ask them to just cook up a little for you, maybe berries and stuff. remember to ask them no added sugar - they do that alot, it's almost customary to add sugar to fruit when you cook it - brings out flavor. Also, to make food last freezing helps, decreases some nourishment but is worth it in a pinch. might help if you want to ship something too.hotels with kitchens are handy if you can swing it - is your employer choosing the hotel? can you make a special request with that? if you can, residence inn hotels are good, here's a location finder for them: http://www.marriott.com/residence-inn/travel.miother hotels sometimes have kitchens too, you could call around.if you are in a city, vegetarian friendly places are often really great with veggies, especially grilled veggies like zucchini and eggplant, or steamed veggies. If they have them around, you can always ask them to cook them especially for you - and you can always order large quantities and stock up for later This totally can be done I would do what you can to reduce stress, plan ahead, talk it out with people, expect the unexpected, keep a sense of humor. travelling can cause stress anyways - I would do everything possible to reduce that, be prepared for stuff, be solidly equipped and packed and informed, be loose and ready to go with whatever flow comes. Get yourself feeling like you are on top of things as much as possible. little things can make things so much easier. don't stress yourself out in the process of removing stress and planning either remember to enjoy yourself too!! and also, each trip should get easier Have a great time on your journeys, and remember it never hurts to ask.Best!  I'm sort of in a tough situation right now. Starting a new job next month. It's my dream job, so YAY! On the flip side, I've been on SCD a year and I don't know if I can continue it with the responsibilities that I will have. I'm going to be traveling at the minimum a week out of every month to places like California, Kansas, Canada, Florida, North Carolina, ect. I'm from Pennsylvania so these won't be driving trips, i'll be flying. I don't know how i'll be able to get ready for a trip, AND cook a weeks worth of food plus bring it with me on a plane??? I'm sure i'll be able to buy foods from a grocery store once i'm at my destination but my hotel won't have a stove or any kind of kitchen in it. On the same note, I don't want to stress myself out over it too much either. I've noticed a big correlation between my stress level and my disease. More so than with what foods i'm eating. I know there's no easy way around this, so worst case scenario i'll eat " semi-legal " while i'm gone. Like steaks and cooked veggies even if I don't have the option of getting one that's not pre-marinated. I'm just hoping my body won't go nuts.... so i'm thinking maybe Is hould slowly start adding in some things that I might come across while i'm gone so I can get my body used to dealing with it again. Any hope? suggestions? I'd go as far as paying for someone to send me meals to my hotel while i'm gone, but at the same time i'd feel like a huge inconvenience for doing that.- UC - 1+ yearsSCD - 11 months 100% strict and 4 months restricted diet.Colazol - 9 pills a day Prednisone 25mg entocort With vit E mixed inBack to intro/stage 1 for now. Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. See how. Quote Link to comment Share on other sites More sharing options...
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