Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 The recent discussion about our book and it's purpose, in part, to bring public awareness to our disease reminded me of just how little it is known. When Marlon Brando died no mention was made of the cause. I called his sister Jocelyn who is a friend - please don't try to decipher in which way - from what I call my Hollywood days. He died, she told me, from PF. I had never heard of it and didn't even know it had to do with the lungs. There was no public announcement of the cause of death. PF seems to have been shrouded in silence in those days and no body wanted to be associated with it, even in death. I've since learned that a number of celebrities of all stripes have also died of PF. I don't mean to prey upon the dead, but usually the death of a famous person brings awareness of the cause. But in our book, our personal stories, our struggles to understand the unknown, to stumble through to a viable life when there is no guidance except from those who went ahead of us, is what is most compelling and which will arouse the public to help us. And in doing so, we help ourselves and all those who will follow us. Jack79/IPF - UIP/dx06/05 Maine Quote Link to comment Share on other sites More sharing options...
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