Re: Been Lurking

[Guest guest]

Hi , I know your ears were burning while we were in Chatt. we did talk about you.. lol If I can do or say anything to help others understand this disease a little better I will feel much better.When I think back about Ginger, Joyce, Lo and I am sure others that were so real with us, It has helped meto look this disease in the eye and not fear it. I don't feel brave just informed. I think we should all know as much as we can ALLthe way through this process. I know my biggest help is my faith in God. It is strong and therefore what have I to fear.Anyhow Baby we missed you and it is good to see you posting again. check in more..Huga to those two big ol' guys you have there.. Love & Prayers, Peggy Florida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Hi Everyone! First I'd like to welcome all you newbies. You have found a great bunch of people to help you through this crazy journey we all share. Thanks for all the pictures posted from the Chattanooga trip. It was great to see so many familiar faces and some new ones too. I wish I could have gone but it just wasn't in the cards. I haven't posted in a while but I have been lurking quietly and reading your posts. Looks like you have all been very busy and have a lot of creative ideas going. I got one of the best gifts ever from my husband recently. He found a backpack for my O2. It was a complete surprise! Standard black bag that had some grey cord as zipper pulls and zig zag tension pull in the front. We figured out how to switch the cording out. And for those of yhou who know me a little probably know with out me saying that the new cord I used is PINK. Of course I added my silver skull and cross bones clip w/ pink jewels! I just love my new O2 bag! I don't curse nearly as much as I did when I was using the shoulder strap bag from Apria. There hasn't been much going on around here. I've been sleeping unusually long hours during the day. Sometimes till 2pm. Showering has become more of a chore. My oxygen needs have increased beyond exertion only. I understand what is happening and am thankfull to have had a break from the progression for a while. I'm still expecting to have my LapBand surgery within the next month or so providing my upcoming PFT results are acceptable. Peggy, I want to tell you how proud I am of you for the courage and strength you've shown. I'm amazed at the grace with which you approach even the largest of battles. I'm so happy the morphine has helped. It's great to know you are getting some releif. You, and the kids are welcome to call if you ever need to talk. Burns 34 FL IPF dx 1/06

[Guest guest]

,

We did miss you alot in Chattanooga. Please keep looking after yourself and get all the rest you need. So happy to hear about your new backpack! What a great surprise.

Please keep us posted about your surgery. I hope it goes smoothly and you get the results you want and need from it. Believe me I understand the weight struggle!

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tue, November 10, 2009 9:26:53 PMSubject: Been Lurking

Hi Everyone! First I'd like to welcome all you newbies. You have found a great bunch of people to help you through this crazy journey we all share. Thanks for all the pictures posted from the Chattanooga trip. It was great to see so many familiar faces and some new ones too. I wish I could have gone but it just wasn't in the cards. I haven't posted in a while but I have been lurking quietly and reading your posts. Looks like you have all been very busy and have a lot of creative ideas going.I got one of the best gifts ever from my husband recently. He found a backpack for my O2. It was a complete surprise! Standard black bag that had some grey cord as zipper pulls and zig zag tension pull in the front. We figured out how to switch the cording out. And for those of yhou who know me a little probably know with out me saying that the new cord I used is PINK. Of course I added my silver skull and cross bones clip w/ pink jewels! I

just love my new O2 bag! I don't curse nearly as much as I did when I was using the shoulder strap bag from Apria.There hasn't been much going on around here. I've been sleeping unusually long hours during the day. Sometimes till 2pm. Showering has become more of a chore. My oxygen needs have increased beyond exertion only. I understand what is happening and am thankfull to have had a break from the progression for a while. I'm still expecting to have my LapBand surgery within the next month or so providing my upcoming PFT results are acceptable.Peggy, I want to tell you how proud I am of you for the courage and strength you've shown. I'm amazed at the grace with which you approach even the largest of battles. I'm so happy the morphine has helped. It's great to know you are getting some releif. You, and the kids are welcome to call if you ever need to talk. Burns 34 FLIPF dx

1/06

[Guest guest]

,And where does one find a silver skull and crossbones with pink jewels....sounds like the perfect bling for my nose hose LOLDyane Phoenix ipf 02>> Hi Everyone! First I'd like to welcome all you newbies. You have found a great bunch of people to help you through this crazy journey we all share. > > Thanks for all the pictures posted from the Chattanooga trip. It was great to see so many familiar faces and some new ones too. I wish I could have gone but it just wasn't in the cards. > > I haven't posted in a while but I have been lurking quietly and reading your posts. Looks like you have all been very busy and have a lot of creative ideas going.> > I got one of the best gifts ever from my husband recently. He found a backpack for my O2. It was a complete surprise! Standard black bag that had some grey cord as zipper pulls and zig zag tension pull in the front. We figured out how to switch the cording out. And for those of yhou who know me a little probably know with out me saying that the new cord I used is PINK. Of course I added my silver skull and cross bones clip w/ pink jewels! I just love my new O2 bag! I don't curse nearly as much as I did when I was using the shoulder strap bag from Apria.> > There hasn't been much going on around here. I've been sleeping unusually long hours during the day. Sometimes till 2pm. Showering has become more of a chore. My oxygen needs have increased beyond exertion only. I understand what is happening and am thankfull to have had a break from the progression for a while. I'm still expecting to have my LapBand surgery within the next month or so providing my upcoming PFT results are acceptable.> > Peggy, I want to tell you how proud I am of you for the courage and strength you've shown. I'm amazed at the grace with which you approach even the largest of battles. I'm so happy the morphine has helped. It's great to know you are getting some releif. You, and the kids are welcome to call if you ever need to talk. > > Burns 34 FL> IPF dx 1/06>

[Guest guest]

Dyane,

LOL! It was a gift from a friend. She found it on St. Street in downtown

St. Augustine. If I find another I will be glad to send it your way. I love it!

It gives my tank a little spunk

34 FL

IPF dx 1/06

> >

> > Hi Everyone! First I'd like to welcome all you newbies. You have found

> a great bunch of people to help you through this crazy journey we all

> share.

> >

> > Thanks for all the pictures posted from the Chattanooga trip. It was

> great to see so many familiar faces and some new ones too. I wish I

> could have gone but it just wasn't in the cards.

> >

> > I haven't posted in a while but I have been lurking quietly and

> reading your posts. Looks like you have all been very busy and have a

> lot of creative ideas going.

> >

> > I got one of the best gifts ever from my husband recently. He found a

> backpack for my O2. It was a complete surprise! Standard black bag that

> had some grey cord as zipper pulls and zig zag tension pull in the

> front. We figured out how to switch the cording out. And for those of

> yhou who know me a little probably know with out me saying that the new

> cord I used is PINK. Of course I added my silver skull and cross bones

> clip w/ pink jewels! I just love my new O2 bag! I don't curse nearly as

> much as I did when I was using the shoulder strap bag from Apria.

> >

> > There hasn't been much going on around here. I've been sleeping

> unusually long hours during the day. Sometimes till 2pm. Showering has

> become more of a chore. My oxygen needs have increased beyond exertion

> only. I understand what is happening and am thankfull to have had a

> break from the progression for a while. I'm still expecting to have my

> LapBand surgery within the next month or so providing my upcoming PFT

> results are acceptable.

> >

> > Peggy, I want to tell you how proud I am of you for the courage and

> strength you've shown. I'm amazed at the grace with which you approach

> even the largest of battles. I'm so happy the morphine has helped. It's

> great to know you are getting some releif. You, and the kids are

> welcome to call if you ever need to talk.

> >

> > Burns 34 FL

> > IPF dx 1/06

> >

>

[Guest guest]

,It just struck me that would be so cool to hang on the damn cannula, need to go ask my sister what harley has available lol Spunk is what keeps us going (that and caffeine= you can have my Starbucks when you can pry it from my cold dead hand Mhwaaaaaaaahahahahah)Dyane > > >> > > Hi Everyone! First I'd like to welcome all you newbies. You have found> > a great bunch of people to help you through this crazy journey we all> > share.> > >> > > Thanks for all the pictures posted from the Chattanooga trip. It was> > great to see so many familiar faces and some new ones too. I wish I> > could have gone but it just wasn't in the cards.> > >> > > I haven't posted in a while but I have been lurking quietly and> > reading your posts. Looks like you have all been very busy and have a> > lot of creative ideas going.> > >> > > I got one of the best gifts ever from my husband recently. He found a> > backpack for my O2. It was a complete surprise! Standard black bag that> > had some grey cord as zipper pulls and zig zag tension pull in the> > front. We figured out how to switch the cording out. And for those of> > yhou who know me a little probably know with out me saying that the new> > cord I used is PINK. Of course I added my silver skull and cross bones> > clip w/ pink jewels! I just love my new O2 bag! I don't curse nearly as> > much as I did when I was using the shoulder strap bag from Apria.> > >> > > There hasn't been much going on around here. I've been sleeping> > unusually long hours during the day. Sometimes till 2pm. Showering has> > become more of a chore. My oxygen needs have increased beyond exertion> > only. I understand what is happening and am thankfull to have had a> > break from the progression for a while. I'm still expecting to have my> > LapBand surgery within the next month or so providing my upcoming PFT> > results are acceptable.> > >> > > Peggy, I want to tell you how proud I am of you for the courage and> > strength you've shown. I'm amazed at the grace with which you approach> > even the largest of battles. I'm so happy the morphine has helped. It's> > great to know you are getting some releif. You, and the kids are> > welcome to call if you ever need to talk.> > >> > > Burns 34 FL> > > IPF dx 1/06> > >> >>

[Guest guest]

Beth,

I meant to mention how great the pictures are of you in Chattanooga. I could see

the changes you've made. You are doing a great job with working out. It even

shows in your smile!

>

> ,

> We did miss you alot in Chattanooga. Please keep looking after yourself and

get all the rest you need. So happy to hear about your new backpack! What a

great surprise.

>

> Please keep us posted about your surgery. I hope it goes smoothly and you get

the results you want and need from it. Believe me I understand the weight

struggle!

> Hugs,

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>  

>  

>

>

>

>

> ________________________________

>

> To: Breathe-Support

> Sent: Tue, November 10, 2009 9:26:53 PM

> Subject: Been Lurking

>

>  

> Hi Everyone! First I'd like to welcome all you newbies. You have found a great

bunch of people to help you through this crazy journey we all share.

>

> Thanks for all the pictures posted from the Chattanooga trip. It was great to

see so many familiar faces and some new ones too. I wish I could have gone but

it just wasn't in the cards.

>

> I haven't posted in a while but I have been lurking quietly and reading your

posts. Looks like you have all been very busy and have a lot of creative ideas

going.

>

> I got one of the best gifts ever from my husband recently. He found a backpack

for my O2. It was a complete surprise! Standard black bag that had some grey

cord as zipper pulls and zig zag tension pull in the front. We figured out how

to switch the cording out. And for those of yhou who know me a little probably

know with out me saying that the new cord I used is PINK. Of course I added my

silver skull and cross bones clip w/ pink jewels! I just love my new O2 bag! I

don't curse nearly as much as I did when I was using the shoulder strap bag from

Apria.

>

> There hasn't been much going on around here. I've been sleeping unusually long

hours during the day. Sometimes till 2pm. Showering has become more of a chore.

My oxygen needs have increased beyond exertion only. I understand what is

happening and am thankfull to have had a break from the progression for a while.

I'm still expecting to have my LapBand surgery within the next month or so

providing my upcoming PFT results are acceptable.

>

> Peggy, I want to tell you how proud I am of you for the courage and strength

you've shown. I'm amazed at the grace with which you approach even the largest

of battles. I'm so happy the morphine has helped. It's great to know you are

getting some releif. You, and the kids are welcome to call if you ever need

to talk.

>

> Burns 34 FL

> IPF dx 1/06

>

[Guest guest]

-

We missed you! Glad your sweet husband found you a workable backpack. I finally settled on one from LL Bean, and it makes such a difference.

Hugs,

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

To: Breathe-Support Sent: Wed, November 11, 2009 3:48:34 PMSubject: Re: Been Lurking

Beth, I meant to mention how great the pictures are of you in Chattanooga. I could see the changes you've made. You are doing a great job with working out. It even shows in your smile!>> ,> We did miss you alot in Chattanooga. Please keep looking after yourself and get all the rest you need. So happy to hear about your new backpack! What a great surprise. > > Please keep us posted about your surgery. I hope it goes smoothly and you get the results you want and need from it. Believe me I understand the weight struggle!> Hugs,>  > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>  >

 > > > > > ____________ _________ _________ __> > To: Breathe-Support@ yahoogroups. com> Sent: Tue, November 10, 2009 9:26:53 PM> Subject: Been Lurking> >  > Hi Everyone! First I'd like to welcome all you newbies. You have found a great bunch of people to help you through this crazy journey we all share. > > Thanks for all the pictures posted from the Chattanooga trip. It was great to see so many familiar faces and some new ones too. I wish I could have gone but it just wasn't in the cards. > > I haven't posted in a while but I have been lurking quietly and reading your posts. Looks like you have all been very busy and have a lot of creative

ideas going.> > I got one of the best gifts ever from my husband recently. He found a backpack for my O2. It was a complete surprise! Standard black bag that had some grey cord as zipper pulls and zig zag tension pull in the front. We figured out how to switch the cording out. And for those of yhou who know me a little probably know with out me saying that the new cord I used is PINK. Of course I added my silver skull and cross bones clip w/ pink jewels! I just love my new O2 bag! I don't curse nearly as much as I did when I was using the shoulder strap bag from Apria.> > There hasn't been much going on around here. I've been sleeping unusually long hours during the day. Sometimes till 2pm. Showering has become more of a chore. My oxygen needs have increased beyond exertion only. I understand what is happening and am thankfull to have had a break from the progression for a while. I'm still expecting to have my LapBand surgery

within the next month or so providing my upcoming PFT results are acceptable.> > Peggy, I want to tell you how proud I am of you for the courage and strength you've shown. I'm amazed at the grace with which you approach even the largest of battles. I'm so happy the morphine has helped. It's great to know you are getting some releif. You, and the kids are welcome to call if you ever need to talk. > > Burns 34 FL> IPF dx 1/06>