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Is this a chat online? Why do you have to call?To: Support <breathe-support >Sent: Thu, November 19, 2009 11:13:59 AMSubject: Chat - This Evening!!

Hi everybody,

Chat is tonight..... .call in number Pin 961089 #

Call in times:

4:00 pm WST

5:00 pm MST

6:00 pm CST

7:00 pm EST

Great opportunity to be able to talk to your fellow board members! Be there or be square!

Leanne

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call the telephone number with your telephone

then punch in the code

you will be able to converse with whoever is talking that evening

chat lasts one hour

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Chat - This Evening!!To: Breathe-Support Date: Thursday, November 19, 2009, 11:20 AM

Is this a chat online? Why do you have to call?

To: Support <breathe-support@ yahoogroups. com>Sent: Thu, November 19, 2009 11:13:59 AMSubject: Chat - This Evening!!

Hi everybody,

Chat is tonight..... .call in number Pin 961089 #

Call in times:

4:00 pm WST

5:00 pm MST

6:00 pm CST

7:00 pm EST

Great opportunity to be able to talk to your fellow board members! Be there or be square!

Leanne

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I am in the chat room. It is mighty lonesome. I can't tell myself anything I don't already know.....Hello! Hello! Pretty music...Hugs!!!!

Jerr/Mississippi/54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more.

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Jerry and all who were there...

I had to wait 15 minutes to get connected and was disconnected 30 minutes later.

Enjoyed the chat, but it gets hard to tell who is speaking and what is said.

Gets interrupted with squeaks and whistles. Was nice to hear everyone. Joyce

made a good point about those who do not have the luxury of having pulmonary

rehab available to them. Maybe some of us who have been can share more of our

experiences. That would be an interesting chapter in the book as well... what

we learn from our rehab, AND what we learn on our own. I was 3 years out there

without a clue but did develop many of the strategies that were taught to me in

rehab. It was nice to get the reinforcement for some of my behaviors. The nice

thing about rehab for me was learning when I did weights to breath on the

exertion portion of the exercise. Typically I would sit or stand while doing

weights and didn't have the problem of my sats dropping so I could concentrate

on my breathing. It makes steps so much easier because I worked on the

breathing when I did weights. For example... I would lift hand weights over my

head (straight up) and breath out as I pushed up. When I did the rowing

machine, I would breath out as I pulled back on the " oars " . When I go up the

steps, I breathe out as I lift myself to the next level. The therapist

suggested that as I become more comfortable, I could do two steps on that

principle. The rhythm is VERY important as well. That was the main difference

on my 6 minute walk test and my ABG with exercise... my breathing now has a

rhythm that makes my tolerance much higher. My PFTs showed marked improvement

as well. Hope this information is helpful to you.

Stefani 61 year old Utahn

ILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> I am in the chat room. It is mighty lonesome. I can't tell myself anything I

don't already know.....Hello! Hello!  Pretty music...Hugs!!!!

>  

> Jerr/Mississippi/54/IPF/dx April 05

>

> Who believes that hard times help us appreciate the good times even more.

>

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Stefani,

I am not on O2 but I know that my sats are too low sometime with exercise. I, too, use the same technique at the gym and found that my sats actually rise when doing abs because of the rhythm. You might also benefit from Yoga if the class is more meditative. I was in one that was too active...nearly approaching Pilates. There are some excellent breathing cd's for yogis. I feel wonderful after taking the time to do that here at home.

I do wish I knew more about pulmonary rehab. I don't think it is available to me here but it might be in a larger town nearby.

To: Breathe-Support Sent: Thu, November 19, 2009 6:50:03 PMSubject: Re: Chat - This Evening!!

Jerry and all who were there...I had to wait 15 minutes to get connected and was disconnected 30 minutes later. Enjoyed the chat, but it gets hard to tell who is speaking and what is said. Gets interrupted with squeaks and whistles. Was nice to hear everyone. Joyce made a good point about those who do not have the luxury of having pulmonary rehab available to them. Maybe some of us who have been can share more of our experiences. That would be an interesting chapter in the book as well... what we learn from our rehab, AND what we learn on our own. I was 3 years out there without a clue but did develop many of the strategies that were taught to me in rehab. It was nice to get the reinforcement for some of my behaviors. The nice thing about rehab for me was learning when I did weights to breath on the exertion portion of the exercise. Typically I would sit or stand while doing weights and didn't have the problem of my sats dropping so I could

concentrate on my breathing. It makes steps so much easier because I worked on the breathing when I did weights. For example... I would lift hand weights over my head (straight up) and breath out as I pushed up. When I did the rowing machine, I would breath out as I pulled back on the "oars". When I go up the steps, I breathe out as I lift myself to the next level. The therapist suggested that as I become more comfortable, I could do two steps on that principle. The rhythm is VERY important as well. That was the main difference on my 6 minute walk test and my ABG with exercise... my breathing now has a rhythm that makes my tolerance much higher. My PFTs showed marked improvement as well. Hope this information is helpful to you.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> I am in the chat room. It is mighty lonesome. I can't tell myself anything I don't already know.....Hello! Hello! Pretty music...Hugs! !!!> > Jerr/Mississippi/ 54/IPF/dx April 05> > Who believes that hard times help us appreciate the good times even more.>

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Stefani,

I am not on O2 but I know that my sats are too low sometime with exercise. I, too, use the same technique at the gym and found that my sats actually rise when doing abs because of the rhythm. You might also benefit from Yoga if the class is more meditative. I was in one that was too active...nearly approaching Pilates. There are some excellent breathing cd's for yogis. I feel wonderful after taking the time to do that here at home.

I do wish I knew more about pulmonary rehab. I don't think it is available to me here but it might be in a larger town nearby.

Bettye Kline

PF dx June 09

To: Breathe-Support Sent: Thu, November 19, 2009 6:50:03 PMSubject: Re: Chat - This Evening!!

Jerry and all who were there...I had to wait 15 minutes to get connected and was disconnected 30 minutes later. Enjoyed the chat, but it gets hard to tell who is speaking and what is said. Gets interrupted with squeaks and whistles. Was nice to hear everyone. Joyce made a good point about those who do not have the luxury of having pulmonary rehab available to them. Maybe some of us who have been can share more of our experiences. That would be an interesting chapter in the book as well... what we learn from our rehab, AND what we learn on our own. I was 3 years out there without a clue but did develop many of the strategies that were taught to me in rehab. It was nice to get the reinforcement for some of my behaviors. The nice thing about rehab for me was learning when I did weights to breath on the exertion portion of the exercise. Typically I would sit or stand while doing weights and didn't have the problem of my sats dropping so I could

concentrate on my breathing. It makes steps so much easier because I worked on the breathing when I did weights. For example... I would lift hand weights over my head (straight up) and breath out as I pushed up. When I did the rowing machine, I would breath out as I pulled back on the "oars". When I go up the steps, I breathe out as I lift myself to the next level. The therapist suggested that as I become more comfortable, I could do two steps on that principle. The rhythm is VERY important as well. That was the main difference on my 6 minute walk test and my ABG with exercise... my breathing now has a rhythm that makes my tolerance much higher. My PFTs showed marked improvement as well. Hope this information is helpful to you.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> I am in the chat room. It is mighty lonesome. I can't tell myself anything I don't already know.....Hello! Hello! Pretty music...Hugs! !!!> > Jerr/Mississippi/ 54/IPF/dx April 05> > Who believes that hard times help us appreciate the good times even more.>

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