Guest guest Posted November 19, 2009 Report Share Posted November 19, 2009 I'm not sure where you are located but here is a link to the searchable directory of the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr.org/Resources/SearchableCertifiedProgramDirectory/tabid/113/Default.aspx It is by no means comprehensive but it's a good directory nonetheless. You could also call around to local hospitas, ask for the respiratory therapy department and inquire if they have or know of a pulmonary rehab program in your area. If there is no program within a reasonable distance of your home you do have other options. Joyce Rudy, one of our members, participates in a program of "medically supervised exercise". While that's less than ideal, it's something. The other suggestion I would make is to ask your pulmo to order a consultation with a respiratory therapist and possibly a physical therapist to work out a safe exercise program for you. The RT would teach some of the breathing techniques that Stefani speaks of, they are extremely helpful. Again this is not as desirable as a full fledged pulmonary rehab program but it's something and something is better than nothing. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thu, November 19, 2009 9:00:04 PMSubject: Re: Re: Chat - This Evening!! Stefani, I am not on O2 but I know that my sats are too low sometime with exercise. I, too, use the same technique at the gym and found that my sats actually rise when doing abs because of the rhythm. You might also benefit from Yoga if the class is more meditative. I was in one that was too active...nearly approaching Pilates. There are some excellent breathing cd's for yogis. I feel wonderful after taking the time to do that here at home. I do wish I knew more about pulmonary rehab. I don't think it is available to me here but it might be in a larger town nearby. Bettye Kline PF dx June 09 From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, November 19, 2009 6:50:03 PMSubject: Re: Chat - This Evening!! Jerry and all who were there...I had to wait 15 minutes to get connected and was disconnected 30 minutes later. Enjoyed the chat, but it gets hard to tell who is speaking and what is said. Gets interrupted with squeaks and whistles. Was nice to hear everyone. Joyce made a good point about those who do not have the luxury of having pulmonary rehab available to them. Maybe some of us who have been can share more of our experiences. That would be an interesting chapter in the book as well... what we learn from our rehab, AND what we learn on our own. I was 3 years out there without a clue but did develop many of the strategies that were taught to me in rehab. It was nice to get the reinforcement for some of my behaviors. The nice thing about rehab for me was learning when I did weights to breath on the exertion portion of the exercise. Typically I would sit or stand while doing weights and didn't have the problem of my sats dropping so I could concentrate on my breathing. It makes steps so much easier because I worked on the breathing when I did weights. For example... I would lift hand weights over my head (straight up) and breath out as I pushed up. When I did the rowing machine, I would breath out as I pulled back on the "oars". When I go up the steps, I breathe out as I lift myself to the next level. The therapist suggested that as I become more comfortable, I could do two steps on that principle. The rhythm is VERY important as well. That was the main difference on my 6 minute walk test and my ABG with exercise... my breathing now has a rhythm that makes my tolerance much higher. My PFTs showed marked improvement as well. Hope this information is helpful to you.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> I am in the chat room. It is mighty lonesome. I can't tell myself anything I don't already know.....Hello! Hello! Pretty music...Hugs! !!!> > Jerr/Mississippi/ 54/IPF/dx April 05> > Who believes that hard times help us appreciate the good times even more.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2009 Report Share Posted November 20, 2009 Thanks, Beth...You are a fountain of information and it helps so very much. Happy Thanksgiving and we all have to count our blessings. They are there if we just look. Bettye Kline To: Breathe-Support Sent: Thu, November 19, 2009 8:45:57 PMSubject: Bettye I'm not sure where you are located but here is a link to the searchable directory of the American Association of Cardiovascular and Pulmonary Rehabilitation: http://www.aacvpr. org/Resources/ SearchableCertif iedProgramDirect ory/tabid/ 113/Default. aspx It is by no means comprehensive but it's a good directory nonetheless. You could also call around to local hospitas, ask for the respiratory therapy department and inquire if they have or know of a pulmonary rehab program in your area. If there is no program within a reasonable distance of your home you do have other options. Joyce Rudy, one of our members, participates in a program of "medically supervised exercise". While that's less than ideal, it's something. The other suggestion I would make is to ask your pulmo to order a consultation with a respiratory therapist and possibly a physical therapist to work out a safe exercise program for you. The RT would teach some of the breathing techniques that Stefani speaks of, they are extremely helpful. Again this is not as desirable as a full fledged pulmonary rehab program but it's something and something is better than nothing. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Bettye Kline <bettyekline24@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Thu, November 19, 2009 9:00:04 PMSubject: Re: Re: Chat - This Evening!! Stefani, I am not on O2 but I know that my sats are too low sometime with exercise. I, too, use the same technique at the gym and found that my sats actually rise when doing abs because of the rhythm. You might also benefit from Yoga if the class is more meditative. I was in one that was too active...nearly approaching Pilates. There are some excellent breathing cd's for yogis. I feel wonderful after taking the time to do that here at home. I do wish I knew more about pulmonary rehab. I don't think it is available to me here but it might be in a larger town nearby. Bettye Kline PF dx June 09 From: Stefani <sfshaner (AT) gmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thu, November 19, 2009 6:50:03 PMSubject: Re: Chat - This Evening!! Jerry and all who were there...I had to wait 15 minutes to get connected and was disconnected 30 minutes later. Enjoyed the chat, but it gets hard to tell who is speaking and what is said. Gets interrupted with squeaks and whistles. Was nice to hear everyone. Joyce made a good point about those who do not have the luxury of having pulmonary rehab available to them. Maybe some of us who have been can share more of our experiences. That would be an interesting chapter in the book as well... what we learn from our rehab, AND what we learn on our own. I was 3 years out there without a clue but did develop many of the strategies that were taught to me in rehab. It was nice to get the reinforcement for some of my behaviors. The nice thing about rehab for me was learning when I did weights to breath on the exertion portion of the exercise. Typically I would sit or stand while doing weights and didn't have the problem of my sats dropping so I could concentrate on my breathing. It makes steps so much easier because I worked on the breathing when I did weights. For example... I would lift hand weights over my head (straight up) and breath out as I pushed up. When I did the rowing machine, I would breath out as I pulled back on the "oars". When I go up the steps, I breathe out as I lift myself to the next level. The therapist suggested that as I become more comfortable, I could do two steps on that principle. The rhythm is VERY important as well. That was the main difference on my 6 minute walk test and my ABG with exercise... my breathing now has a rhythm that makes my tolerance much higher. My PFTs showed marked improvement as well. Hope this information is helpful to you.Stefani 61 year old UtahnILD 2/2006, NSIP (fibrotic) 10/2009, Diabetes II 2/2006, Sleep Apnea 4/2009>> I am in the chat room. It is mighty lonesome. I can't tell myself anything I don't already know.....Hello! Hello! Pretty music...Hugs! !!!> > Jerr/Mississippi/ 54/IPF/dx April 05> > Who believes that hard times help us appreciate the good times even more.> Quote Link to comment Share on other sites More sharing options...
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