Re: Re: PF book questionnaire

[Guest guest]

Beth, I don't remember

receiving that invitation to the new board.

Please send it again. thanks.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Beth wrote:

Cees,

Just a quick word. Barb did not intentionally put it on the

board. She was trying to email it to Leanne and emailed it to the board

accidentally. It has since been removed.

I have not had a chance to look at it yet but I will this

evening. I will look at Barbara's original and your comments and let

everyone know what I think.

To everyone: You all should have received an invitation in your

emails to the board that I created for us. Please check your emails.

That will be a perfect place to have these discussions.

Have a good weekend everyone!

Beth

From:

"ceesnews (AT) yahoo (DOT) com" <ceesnews (AT) yahoo (DOT) com>

To: mbmurtha (AT) yahoo (DOT) com;

breathe-support ; Jack Marshall

<mrshlljck (AT) yahoo (DOT) com>; Barbara McD <bamny (AT) yahoo (DOT) com>;

ceesnews (AT) yahoo (DOT) com

Sent: Sat, November

21, 2009 7:13:46 AM

Subject: Re: PF book

questionnaire

Dear Barbara, Beth, Leanne and Jack:

I'm so impressed you got this questionnaire done

so fast, Barbara. Is it because you had to cancel your day

of PFTs, etc.? I sure hope you & your husband are starting to feel

better.

Great job! Some really good questions. I

re-attached the questionnaire w/my comments, additional questions,

etc., in red for everyone to read & think about. Some were just

minor proofreading things that the editor in me couldn't stop myself

from fixing. But I also suggested some new questions that I think are

important or to clarify some of the ones you included. I only ask that

all of you consider them. I was kinda curious though why you already

put it on the board before getting any of our comments.

I'm glad we all got to talk the other day, but I had a really

hard time figuring out what was going on. I thought maybe it was just

me until Stefani posted these comments about the Thurs. chat.

" it gets hard to tell who is speaking and what is

said. Gets interrupted with squeaks and whistles."

My experience was that your voices

kept cutting out, so I was only getting parts of sentences & had to

try to splice together your meaning in my head while the rest of you

apparently were continuing with the conversation. I would speak up

during some of the longer blank times only to find out that I

apparently was interrupting someone. Poor Barbara, you sounded really

upset, so I'm guessing I must have cut you off more than once. I'm so

sorry. It wasn't intentional.

At least once, I kept hearing voices but no actual

words were clear, so I asked what was happening & that I didn't

understand. But you all said nobody was talking at the time, so what

was I hearing? And then every once in awhile, things

were crystal clear.

While I appreciate that the technology is

available when we need it, I don't think it's something I'll do again

unless it's really necessary. Thank goodness Beth is going to set

up our group website/chat room thingy. In the meantime, we've always

got personal email.

Anyway, I've started working on my proposed

outline, but it's taking some time. I'm trying to include some actual

examples under the chapter headings to give you all a better idea of

what I'm talking about, but collecting them is taking some time. It's

in the works though.

Cees

From: Barbara McD <bamny (AT) yahoo (DOT) com>

Subject: PF book questionnaire

To: mbmurtha (AT) yahoo (DOT) com, breathe-support ,

"Jack Marshall" <mrshlljck (AT) yahoo (DOT) com>, "cees"

<ceesnews (AT) yahoo (DOT) com>

Date: Friday, November 20, 2009, 9:16 AM

Dear Beth, Leanne, Jack and Cees:

I am attaching the proposed questionnaire. Please

feel free to email me with any suggested changes or additions.

B

Barbara McD

PF--Sept 08;

Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude

is everything.

[Guest guest]

Me either and me too..Thanks!Roxanne, 59, South Carolina

2006 Asthma/ PF

2008 PF/ Sarcoidosis/Gerd

I pray you enough.....

From: Barbara McD <bamny (AT) yahoo (DOT) com>

Subject: PF book questionnaire

To: mbmurtha (AT) yahoo (DOT) com, breathe-support@ yahoogroups. com,

"Jack Marshall" <mrshlljck (AT) yahoo (DOT) com>, "cees"

<ceesnews (AT) yahoo (DOT) com>

Date: Friday, November 20, 2009, 9:16 AM

Dear Beth, Leanne, Jack and Cees:

I am attaching the proposed questionnaire. Please

feel free to email me with any suggested changes or additions.

B

Barbara McD

PF--Sept 08;

Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude

is everything.

[Guest guest]

Beth,I did not get anything about a board.Kathy IPF 10/09 Type 2 Diabetes forever ago

From: Barbara McD <bamny (AT) yahoo (DOT) com>Subject: PF book questionnaireTo: mbmurtha (AT) yahoo (DOT) com, breathe-support@ yahoogroups. com, "Jack Marshall" <mrshlljck (AT) yahoo (DOT) com>, "cees" <ceesnews (AT) yahoo (DOT) com>Date: Friday, November 20, 2009, 9:16 AM

Dear Beth, Leanne, Jack and Cees:

I am attaching the proposed questionnaire. Please feel free to email me with any suggested changes or additions.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

[Guest guest]



MB.... I have rec'd nothing re: invitation...

Don't even know what you are talking about. I see the correspondence among a few of you about the book in discussion but nothing about you creating something new.

MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!

PF book questionnaireTo: mbmurtha (AT) yahoo (DOT) com, breathe-support@ yahoogroups. com, "Jack Marshall" <mrshlljck (AT) yahoo (DOT) com>, "cees" <ceesnews (AT) yahoo (DOT) com>Date: Friday, November 20, 2009, 9:16 AM

Dear Beth, Leanne, Jack and Cees:

I am attaching the proposed questionnaire. Please feel free to email me with any suggested changes or additions.

B

Barbara McD

PF--Sept 08; Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude is everything.

[Guest guest]

I didn't get one either.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

From: Barbara McD <bamny (AT) yahoo (DOT) com>

Subject: PF book questionnaire

To: mbmurtha (AT) yahoo (DOT) com, breathe-support@ yahoogroups. com,

"Jack Marshall" <mrshlljck (AT) yahoo (DOT) com>, "cees"

<ceesnews (AT) yahoo (DOT) com>

Date: Friday, November 20, 2009, 9:16 AM

Dear Beth, Leanne, Jack and Cees:

I am attaching the proposed questionnaire. Please

feel free to email me with any suggested changes or additions.

B

Barbara McD

PF--Sept 08;

Sjogren's--Apr 09; Reynaud's--seems like forever

Beautiful Western NC

Attitude

is everything.